Literature DB >> 33788075

A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood.

Kiah Evans1,2,3, Larah van der Meer4,5,6, Matthew J F Eggleston7, Lauren J Taylor8, Hiran Thabrew9, Hannah Waddington6, Andrew J O Whitehouse10,4,8.   

Abstract

The diagnostic experiences of autistic adults in New Zealand have not been investigated and little is known globally about autistic adults' satisfaction with the autism diagnostic process. This study describes the diagnostic experiences of 70 autistic adults living in New Zealand and explores how these experiences are related to satisfaction during three stages of the diagnostic process. The results show that autistic adults were reasonably satisfied with the early query and diagnostic assessment stages, but were dissatisfied with the post-diagnostic support stage, with significant unmet needs. Dissatisfaction during the post-diagnostic support stage was also related to satisfaction during previous stages and poor coordination of supports. Suggestions are made on how to improve the autism diagnostic pathway for autistic adults in New Zealand.
© 2021. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.

Entities:  

Keywords:  Autism Spectrum Disorder; Diagnosis; Experience; Identification; Support

Mesh:

Year:  2021        PMID: 33788075     DOI: 10.1007/s10803-021-04983-0

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  18 in total

1.  Normal for an Asperger: notions of the meanings of diagnoses among adults with Asperger syndrome.

Authors:  Hanna Bertilsdotter Rosqvist
Journal:  Intellect Dev Disabil       Date:  2012-04

2.  The experiences and needs of female adults with high-functioning autism spectrum disorder.

Authors:  Susanna Baldwin; Debra Costley
Journal:  Autism       Date:  2015-06-25

3.  Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom.

Authors:  Laura Crane; James W Chester; Lorna Goddard; Lucy A Henry; Elisabeth Hill
Journal:  Autism       Date:  2015-03-25

4.  'I just don't fit anywhere': support experiences and future support needs of individuals with Asperger syndrome in middle adulthood.

Authors:  Gemma M Griffith; Vasiliki Totsika; Susie Nash; Richard P Hastings
Journal:  Autism       Date:  2011-05-24

Review 5.  Diagnosis of autism in adulthood: A scoping review.

Authors:  Yunhe Huang; Samuel Rc Arnold; Kitty-Rose Foley; Julian N Trollor
Journal:  Autism       Date:  2020-02-28

6.  'I was exhausted trying to figure it out': The experiences of females receiving an autism diagnosis in middle to late adulthood.

Authors:  Alexandra Leedham; Andrew R Thompson; Richard Smith; Megan Freeth
Journal:  Autism       Date:  2019-05-30

7.  'Suddenly the first fifty years of my life made sense': Experiences of older people with autism.

Authors:  Aoife Hickey; Jason Crabtree; Joshua Stott
Journal:  Autism       Date:  2017-02-13

8.  Experiences of receiving a diagnosis of autism spectrum disorder: a survey of adults in the United kingdom.

Authors:  Lydia Jones; Lorna Goddard; Elisabeth L Hill; Lucy A Henry; Laura Crane
Journal:  J Autism Dev Disord       Date:  2014-12

9.  Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals.

Authors:  Laura Crane; Richard Batty; Hanna Adeyinka; Lorna Goddard; Lucy A Henry; Elisabeth L Hill
Journal:  J Autism Dev Disord       Date:  2018-11

Review 10.  Identifying the lost generation of adults with autism spectrum conditions.

Authors:  Meng-Chuan Lai; Simon Baron-Cohen
Journal:  Lancet Psychiatry       Date:  2015-11       Impact factor: 27.083

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