Literature DB >> 21610188

'I just don't fit anywhere': support experiences and future support needs of individuals with Asperger syndrome in middle adulthood.

Gemma M Griffith1, Vasiliki Totsika, Susie Nash, Richard P Hastings.   

Abstract

The experiences of individuals in middle adulthood with Asperger syndrome have been the subject of little previous research, especially in terms of their experience of support services. In the present research, 11 adults with Asperger syndrome were interviewed. Interpretative phenomenological analysis (IPA) was used to interpret the interviews. Four themes emerged from the analysis: living with Asperger syndrome; employment issues; experiences with mainstream support; and future steps towards supporting adults with Asperger syndrome. The findings highlighted the anxiety, depression, and communication difficulties that people with Asperger syndrome may experience. Much of the available support is perceived as unsuitable for individuals with Asperger syndrome. All participants wanted to remain as independent as possible, and believed an individualized approach to support would be greatly beneficial. Recommendations are made for future practice to help support adults with Asperger syndrome.

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Mesh:

Year:  2011        PMID: 21610188     DOI: 10.1177/1362361311405223

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  25 in total

1.  Higher education experiences of students with autism spectrum disorder: challenges, benefits and support needs.

Authors:  Valérie Van Hees; Tinneke Moyson; Herbert Roeyers
Journal:  J Autism Dev Disord       Date:  2015-06

2.  A Snapshot of Social Support Networks Among Parental Caregivers of Adults with Autism.

Authors:  Christina N Marsack-Topolewski
Journal:  J Autism Dev Disord       Date:  2020-04

3.  Meeting FACES: Preliminary Findings from a Community Workshop for Minority Parents of Children with Autism in Central North Carolina.

Authors:  Jamie N Pearson; Amanda L Traficante; Lauren M Denny; Kayla Malone; Evadine Codd
Journal:  J Autism Dev Disord       Date:  2020-01

4.  A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood.

Authors:  Kiah Evans; Larah van der Meer; Matthew J F Eggleston; Lauren J Taylor; Hiran Thabrew; Hannah Waddington; Andrew J O Whitehouse
Journal:  J Autism Dev Disord       Date:  2021-03-31

5.  Extended Reality Guidelines for Supporting Autism Interventions Based on Stakeholders' Needs.

Authors:  Valentin Bauer; Tifanie Bouchara; Patrick Bourdot
Journal:  J Autism Dev Disord       Date:  2022-03-04

6.  Experiences of receiving a diagnosis of autism spectrum disorder: a survey of adults in the United kingdom.

Authors:  Lydia Jones; Lorna Goddard; Elisabeth L Hill; Lucy A Henry; Laura Crane
Journal:  J Autism Dev Disord       Date:  2014-12

7.  College students' perceptions of peers with autism spectrum disorder.

Authors:  Nicole L Matthews; Agnes R Ly; Wendy A Goldberg
Journal:  J Autism Dev Disord       Date:  2015-01

Review 8.  A review of decreased sound tolerance in autism: Definitions, phenomenology, and potential mechanisms.

Authors:  Zachary J Williams; Jason L He; Carissa J Cascio; Tiffany G Woynaroski
Journal:  Neurosci Biobehav Rev       Date:  2020-12-04       Impact factor: 8.989

9.  Prevalence of Decreased Sound Tolerance (Hyperacusis) in Individuals With Autism Spectrum Disorder: A Meta-Analysis.

Authors:  Zachary J Williams; Evan Suzman; Tiffany G Woynaroski
Journal:  Ear Hear       Date:  2021 Sep/Oct       Impact factor: 3.562

10.  Aspergers--different, not less: occupational strengths and job interests of individuals with Asperger's Syndrome.

Authors:  Timo Lorenz; Kathrin Heinitz
Journal:  PLoS One       Date:  2014-06-20       Impact factor: 3.240

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