Literature DB >> 24915932

Experiences of receiving a diagnosis of autism spectrum disorder: a survey of adults in the United kingdom.

Lydia Jones1, Lorna Goddard, Elisabeth L Hill, Lucy A Henry, Laura Crane.   

Abstract

A total of 128 adults with high-functioning autism spectrum disorders were surveyed concerning the process they went through to obtain their diagnosis and the subsequent support they received. Results suggested that routes to diagnosis were quite heterogeneous and overall levels of satisfaction with the diagnostic process were mixed; 40 % of respondents were 'very/quite' dissatisfied, whilst 47 % were 'very/quite' satisfied. The extent of delays, number of professionals seen, quality of information given at diagnosis and levels of post-diagnostic support predicted overall satisfaction with the diagnostic process. Important areas and suggestions for improvement were noted for all stages of the diagnostic pathway. Respondents also displayed above average levels of depressed mood and anxiety, with greater support being requested in this area.

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Mesh：

Year:  2014        PMID： 24915932     DOI： 10.1007/s10803-014-2161-3

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN： 0162-3257


  35 in total

1.  Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom.

Authors:  Laura Crane; James W Chester; Lorna Goddard; Lucy A Henry; Elisabeth Hill
Journal:  Autism       Date:  2015-03-25

2.  [Psychosocial functioning of adults with late diagnosed autism spectrum disorders--a retrospective study].

Authors:  F-G Lehnhardt; A Gawronski; K Volpert; L Schilbach; R Tepest; K Vogeley
Journal:  Fortschr Neurol Psychiatr       Date:  2011-11-15       Impact factor: 0.752

3.  Autobiographical memory in adults with autism spectrum disorder: the role of depressed mood, rumination, working memory and theory of mind.

Authors:  Laura Crane; Lorna Goddard; Linda Pring
Journal:  Autism       Date:  2011-10-05

4.  A survey of parents' reactions to the diagnosis of an autistic spectrum disorder by a local service: access to information and use of services.

Authors:  Warren Mansell; Kathleen Morris
Journal:  Autism       Date:  2004-12

5.  Diagnosis, disclosure, and having autism: an interpretative phenomenological analysis of the perceptions of young people with autism.

Authors:  Jaci C Huws; Robert S P Jones
Journal:  J Intellect Dev Disabil       Date:  2008-06

6.  Schizoid personality in girls: a follow-up study--what are the links with Asperger's syndrome?

Authors:  S Wolff; R J McGuire
Journal:  J Child Psychol Psychiatry       Date:  1995-07       Impact factor: 8.982

7.  The not guilty verdict: psychological reactions to a diagnosis of Asperger syndrome in adulthood.

Authors:  Clare Punshon; Paul Skirrow; Glynis Murphy
Journal:  Autism       Date:  2009-05

8.  The disclosure of a diagnosis of an autistic spectrum disorder: determinants of satisfaction in a sample of Scottish parents.

Authors:  Clare A Brogan; Christina Knussen
Journal:  Autism       Date:  2003-03

9.  The empathy quotient: an investigation of adults with Asperger syndrome or high functioning autism, and normal sex differences.

Authors:  Simon Baron-Cohen; Sally Wheelwright
Journal:  J Autism Dev Disord       Date:  2004-04

10.  An islet of social ability in Asperger Syndrome: judging social attributes from faces.

Authors:  Sarah White; Elisabeth Hill; Joel Winston; Uta Frith
Journal:  Brain Cogn       Date:  2006-02-03       Impact factor: 2.310
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  33 in total

1.  Can the Five Factor Model of Personality Account for the Variability of Autism Symptom Expression? Multivariate Approaches to Behavioral Phenotyping in Adult Autism Spectrum Disorder.

Authors:  Benjamin C Schwartzman; Jeffrey J Wood; Steven K Kapp
Journal:  J Autism Dev Disord       Date:  2016-01

2.  GPs' confidence in caring for their patients on the autism spectrum: an online self-report study.

Authors:  Silvana Unigwe; Carole Buckley; Laura Crane; Lorcan Kenny; Anna Remington; Elizabeth Pellicano
Journal:  Br J Gen Pract       Date:  2017-05-08       Impact factor: 5.386

3.  Meeting FACES: Preliminary Findings from a Community Workshop for Minority Parents of Children with Autism in Central North Carolina.

Authors:  Jamie N Pearson; Amanda L Traficante; Lauren M Denny; Kayla Malone; Evadine Codd
Journal:  J Autism Dev Disord       Date:  2020-01

4.  A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood.

Authors:  Kiah Evans; Larah van der Meer; Matthew J F Eggleston; Lauren J Taylor; Hiran Thabrew; Hannah Waddington; Andrew J O Whitehouse
Journal:  J Autism Dev Disord       Date:  2021-03-31

5.  'They ask no questions and pass no criticism': A mixed-methods study exploring pet ownership in autism.

Authors:  Gray Atherton; Emma Edisbury; Andrea Piovesan; Liam Cross
Journal:  J Autism Dev Disord       Date:  2022-06-09

6.  Exploring the Experiences of Parents Whose Child has Received a Diagnosis of Autistic Spectrum Disorder in Adulthood.

Authors:  Hannah Legg; Anna Tickle; Alinda Gillott; Sarah Wilde
Journal:  J Autism Dev Disord       Date:  2022-01-08

7.  First Psychometric Properties of the Dutch Interview for Diagnostic Assessment of Autism Spectrum Disorder in Adult Males Without Intellectual Disability.

Authors:  Richard Vuijk; Mathijs Deen; Arnoud Arntz; Hilde M Geurts
Journal:  J Autism Dev Disord       Date:  2021-08-18

8.  A Mixed Methods Study of Barriers to Formal Diagnosis of Autism Spectrum Disorder in Adults.

Authors:  Laura Foran Lewis
Journal:  J Autism Dev Disord       Date:  2017-08

9.  Predicting the diagnosis of autism in adults using the Autism-Spectrum Quotient (AQ) questionnaire.

Authors:  K L Ashwood; N Gillan; J Horder; H Hayward; E Woodhouse; F S McEwen; J Findon; H Eklund; D Spain; C E Wilson; T Cadman; S Young; V Stoencheva; C M Murphy; D Robertson; T Charman; P Bolton; K Glaser; P Asherson; E Simonoff; D G Murphy
Journal:  Psychol Med       Date:  2016-06-29       Impact factor: 7.723

10.  Living with autism without knowing: receiving a diagnosis in later life.

Authors:  Steven D Stagg; Hannah Belcher
Journal:  Health Psychol Behav Med       Date:  2019-11-06
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