Literature DB >> 31144507

'I was exhausted trying to figure it out': The experiences of females receiving an autism diagnosis in middle to late adulthood.

Alexandra Leedham1,2, Andrew R Thompson1, Richard Smith2, Megan Freeth1.   

Abstract

Females often receive autism spectrum condition diagnoses later than males, leaving needs misunderstood. This study aimed to explore the lived experiences of female adults diagnosed with an autism spectrum condition in middle to late adulthood. Eleven autistic females diagnosed over the age of 40 years completed semi-structured interviews, analysed using Interpretative Phenomenological Analysis. Four superordinate themes emerged: A hidden condition (pretending to be normal and fitting in; mental health and mislabelling), The process of acceptance (initial reactions and search for understanding; re-living life through a new lens), The impact of others post-diagnosis (initial reactions; stereotyped assumptions), and A new identity on the autism spectrum (negotiating relationships, connections and community; changing well-being and views of the self; the meaning of diagnosis). Findings highlight several factors not previously identified that affect late diagnosis in females, including widespread limited understandings of others. Diagnosis was experienced by several participants as facilitating transition from being self-critical to self-compassionate, coupled with an increased sense of agency. Participants experienced a change in identity that enabled greater acceptance and understanding of the self. However, this was painful to adjust to at such a late stage.

Entities:  

Keywords:  Interpretative Phenomenological Analysis; autism diagnosis; autistic female; middle to late adulthood

Year:  2019        PMID: 31144507     DOI: 10.1177/1362361319853442

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  27 in total

1.  A Qualitative Exploration into the Sensory Experiences of Autistic Mothers.

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2.  A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood.

Authors:  Kiah Evans; Larah van der Meer; Matthew J F Eggleston; Lauren J Taylor; Hiran Thabrew; Hannah Waddington; Andrew J O Whitehouse
Journal:  J Autism Dev Disord       Date:  2021-03-31

3.  Self-harm and Suicidality Experiences of Middle-Age and Older Adults With vs. Without High Autistic Traits.

Authors:  Rebecca A Charlton; Francesca Happé; Gavin R Stewart; Anne Corbett; Clive Ballard; Byron Creese; Dag Aarsland; Adam Hampshire
Journal:  J Autism Dev Disord       Date:  2022-05-26

4.  "Peas in a pod": Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults.

Authors:  Rozanna Lilley; Wenn Lawson; Gabrielle Hall; Joanne Mahony; Hayley Clapham; Melanie Heyworth; Samuel Arnold; Julian Trollor; Michael Yudell; Elizabeth Pellicano
Journal:  J Autism Dev Disord       Date:  2022-07-14

5.  The relevance of the interpersonal theory of suicide for predicting past-year and lifetime suicidality in autistic adults.

Authors:  R L Moseley; N J Gregory; P Smith; C Allison; S Cassidy; S Baron-Cohen
Journal:  Mol Autism       Date:  2022-03-21       Impact factor: 6.476

Review 6.  The Potential Role of miRNAs as Predictive Biomarkers in Neurodevelopmental Disorders.

Authors:  Iman Imtiyaz Ahmed Juvale; Ahmad Tarmizi Che Has
Journal:  J Mol Neurosci       Date:  2021-03-27       Impact factor: 3.444

7.  Self-Perceived Quality of Life in Spanish-Speaking Women with Autism Spectrum Disorders.

Authors:  Paula Morales Hidalgo; María Merino Martínez; Angélica Gutiérrez González; Lola Garrote Petisco; Carol Amat Forcadell; Cynthia I D'Agostino; Laura Pérez de la Varga
Journal:  J Autism Dev Disord       Date:  2021-12-25

8.  'When my autism broke': A qualitative study spotlighting autistic voices on menopause.

Authors:  Rachel L Moseley; Tanya Druce; Julie M Turner-Cobb
Journal:  Autism       Date:  2020-01-31

9.  Quantifying compensatory strategies in adults with and without diagnosed autism.

Authors:  Lucy Anne Livingston; Punit Shah; Victoria Milner; Francesca Happé
Journal:  Mol Autism       Date:  2020-02-12       Impact factor: 7.509

10.  Camouflaging Intent, First Impressions, and Age of ASC Diagnosis in Autistic Men and Women.

Authors:  Hannah L Belcher; Sharon Morein-Zamir; Will Mandy; Ruth M Ford
Journal:  J Autism Dev Disord       Date:  2021-08-03
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