Literature DB >> 32439815

"Good-Parent Beliefs": Research, Concept, and Clinical Practice.

Meaghann S Weaver1, Tessie October2,3, Chris Feudtner4,5, Pamela S Hinds3,6.   

Abstract

Parents of ill children have willingly identified their personal beliefs about what they should do or focus on to fulfill their own internal definition of being a good parent for their child. This observation has led to the development of the good-parent beliefs concept over the past decade. A growing qualitative, quantitative, and mixed-methods research base has explored the ways that good-parent beliefs guide family decision-making and influence family relationships. Parents have expressed comfort in speaking about their good-parent beliefs. Whether parents achieve their unique good-parent beliefs definition affects their sense of whether they did a good job in their role of parenting their ill child. In this state-of-the-art article, we offer an overview of the good-parent beliefs concept over the past decade, addressing what is currently known and gaps in what we know, and explore how clinicians may incorporate discussions about the good-parent beliefs into clinical practice.
Copyright © 2020 by the American Academy of Pediatrics.

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Year:  2020        PMID: 32439815      PMCID: PMC7263052          DOI: 10.1542/peds.2019-4018

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  22 in total

1.  Perceptions of inadequate health care and feelings of guilt in parents after the death of a child to a malignancy: a population-based long-term follow-up.

Authors:  Pamela J Surkan; Ulrika Kreicbergs; Unnur Valdimarsdóttir; Ullakarin Nyberg; Erik Onelöv; Paul W Dickman; Gunnar Steineck
Journal:  J Palliat Med       Date:  2006-04       Impact factor: 2.947

Review 2.  Systematic review of psychosocial morbidities among bereaved parents of children with cancer.

Authors:  Abby R Rosenberg; K Scott Baker; Karen Syrjala; Joanne Wolfe
Journal:  Pediatr Blood Cancer       Date:  2011-10-28       Impact factor: 3.167

3.  Changes Over Time in Good-Parent Beliefs Among Parents of Children With Serious Illness: A Two-Year Cohort Study.

Authors:  Douglas L Hill; Jennifer A Faerber; Yimei Li; Victoria A Miller; Karen W Carroll; Wynne Morrison; Pamela S Hinds; Chris Feudtner
Journal:  J Pain Symptom Manage       Date:  2019-04-23       Impact factor: 3.612

4.  The parent perspective: "being a good parent" when making critical decisions in the PICU.

Authors:  Tessie W October; Kiondra R Fisher; Chris Feudtner; Pamela S Hinds
Journal:  Pediatr Crit Care Med       Date:  2014-05       Impact factor: 3.624

5.  The Indirect Effect of Positive Parenting on the Relationship Between Parent and Sibling Bereavement Outcomes After the Death of a Child.

Authors:  Adam T Morris; Crystal Gabert-Quillen; Sarah Friebert; Nancy Carst; Douglas L Delahanty
Journal:  J Pain Symptom Manage       Date:  2015-09-18       Impact factor: 3.612

Review 6.  The Grief of Parents After the Death of a Young Child.

Authors:  Sue Morris; Kalen Fletcher; Richard Goldstein
Journal:  J Clin Psychol Med Settings       Date:  2019-09

7.  Patterns of parental bereavement following the loss of a child and related factors.

Authors:  Maru Barrera; Norma Mammone D'Agostino; Gerald Schneiderman; Susan Tallett; Lynlee Spencer; Vesna Jovcevska
Journal:  Omega (Westport)       Date:  2007

8.  "Being a good patient" during times of illness as defined by adolescent patients with cancer.

Authors:  Meaghann S Weaver; Justin N Baker; Jami S Gattuso; Deborah V Gibson; Pamela S Hinds
Journal:  Cancer       Date:  2016-05-03       Impact factor: 6.860

9.  Discovering dad: paternal roles, responsibilities, and support needs as defined by fathers of children with complex cardiac conditions perioperatively.

Authors:  Jacob Robinson; David Huskey; Sabrina Schalley; Dale Wratchford; James Hammel; Meaghann S Weaver
Journal:  Cardiol Young       Date:  2019-08-08       Impact factor: 1.093

10.  The Many Roles of the Rock: A Qualitative Inquiry into the Roles and Responsibilities of Fathers of Children with Brain Tumors.

Authors:  Jacob E Robinson; David Huskey; Jonathan Schwartz; Meaghann S Weaver
Journal:  Children (Basel)       Date:  2019-10-11
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  7 in total

1.  Parental Attitudes toward Artificial Intelligence-Driven Precision Medicine Technologies in Pediatric Healthcare.

Authors:  Bryan A Sisk; Alison L Antes; Sara Burrous; James M DuBois
Journal:  Children (Basel)       Date:  2020-09-20

2.  Clinicians' Perspectives on the Functions of Communication in Pediatric Oncology.

Authors:  Bryan A Sisk; Ginny L Schulz; Erica C Kaye; Justin N Baker; Jennifer W Mack; James M DuBois
Journal:  J Palliat Med       Date:  2021-07-13       Impact factor: 2.947

3.  Assume It Will Break: Parental Perspectives on Negative Communication Experiences in Pediatric Oncology.

Authors:  Bryan A Sisk; Jessica A Zavadil; Lindsay J Blazin; Justin N Baker; Jennifer W Mack; James M DuBois
Journal:  JCO Oncol Pract       Date:  2021-04-13

4.  "Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer.

Authors:  Bryan A Sisk; Megan A Keenan; Lindsay J Blazin; Erica Kaye; Justin N Baker; Jennifer W Mack; James M DuBois
Journal:  Pediatr Blood Cancer       Date:  2021-04-16       Impact factor: 3.838

5.  Care Provider Behaviors That Shape Parent Identity as a "Good Parent" to Their Seriously Ill Child.

Authors:  Marie L Neumann; Meaghann S Weaver; Blyth Lord; Lori Wiener; Pamela S Hinds
Journal:  Palliat Med Rep       Date:  2021-04-27

6.  Cancer treatment decision-making among parents of paediatric oncology patients in Guatemala: a mixed-methods study.

Authors:  Dylan E Graetz; Silvia Rivas; Huiqi Wang; Yuvanesh Vedaraju; Gia Ferrara; Lucia Fuentes; Ana Cáceres-Serrano; Federico Antillon-Klussmann; Meenakshi Devidas; Monika Metzger; Carlos Rodriguez-Galindo; Jennifer W Mack
Journal:  BMJ Open       Date:  2022-08-11       Impact factor: 3.006

7.  Ethical considerations in the care of encephalopathic neonates treated with therapeutic hypothermia.

Authors:  Monica E Lemmon; Courtney J Wusthoff; Renee D Boss; Lisa Anne Rasmussen
Journal:  Semin Fetal Neonatal Med       Date:  2021-06-12       Impact factor: 3.726

  7 in total

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