Literature DB >> 32282559

Pediatric Concurrent Hospice Care: A Scoping Review and Directions for Future Nursing Research.

Lisa C Lindley, Jessica Keim-Malpass, Radion Svynarenko, Melanie J Cozad, Jennifer W Mack, Pamela S Hinds.   

Abstract

In 2010, forgoing curative therapies were removed as a hospice eligibility criterion for children through section 2302 of the Patient Protection and Affordable Care Act called Concurrent Care for Children. Given that concurrent care is a federally mandated option for children and their families, no review of the science has been conducted. The purpose of this study was to systematically collect the evidence on concurrent hospice care, critically appraise the evidence, and identify areas for future nursing research. Of the 186 articles identified for review, 14 met the inclusion and exclusion criteria. Studies in this review described concurrent hospice care from a variety of perspectives: policy, legal, and ethics. However, only 1 article evaluated the impact of concurrent hospice care on outcomes, whereas several studies explained clinical and state-level implementation. There is a need for further studies that move beyond conceptualization and generate baseline and outcomes data. Understanding the effectiveness of concurrent hospice care might provide important information for future nursing research. The approaches used to disseminate and implement concurrent hospice care at state, provider, and family levels should be explored.

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Year:  2020        PMID: 32282559      PMCID: PMC7716801          DOI: 10.1097/NJH.0000000000000648

Source DB:  PubMed          Journal:  J Hosp Palliat Nurs        ISSN: 1522-2179            Impact factor:   2.131


  25 in total

1.  Factors influencing the implementation of health care reform: an examination of the Concurrent Care for Children provision.

Authors:  Lisa C Lindley; Sheri Edwards; Donald J Bruce
Journal:  Am J Hosp Palliat Care       Date:  2013-07-08       Impact factor: 2.500

2.  Economic outcomes in palliative and end-of-life care: current state of affairs.

Authors:  Peter May; J Brian Cassel
Journal:  Ann Palliat Med       Date:  2018-07-15

3.  Health Care Reform and Concurrent Curative Care for Terminally Ill Children: A Policy Analysis.

Authors:  Lisa C Lindley
Journal:  J Hosp Palliat Nurs       Date:  2011-03       Impact factor: 1.918

Review 4.  Factors Associated With the Use of U.S. Community-Based Palliative Care for Children With Life-Limiting or Life-Threatening Illnesses and Their Families: An Integrative Review.

Authors:  Jackelyn Y Boyden; Martha A Q Curley; Janet A Deatrick; Mary Ersek
Journal:  J Pain Symptom Manage       Date:  2017-08-12       Impact factor: 3.612

5.  The experience of providing hospice care concurrent with cancer treatment in the VA.

Authors:  Leah M Haverhals; Chelsea E Manheim; Vincent Mor; Mary Ersek; Bruce Kinosian; Karl A Lorenz; Katherine E Faricy-Anderson; Risha A Gidwani-Marszowski; Cari Levy
Journal:  Support Care Cancer       Date:  2018-11-22       Impact factor: 3.603

6.  Pediatric Complex Chronic Conditions: Evaluating Two Versions of the Classification System.

Authors:  Lisa C Lindley; Melanie J Cozad; Christine A Fortney
Journal:  West J Nurs Res       Date:  2019-07-29       Impact factor: 1.967

7.  Quality of paediatric hospice care for children with and without multiple complex chronic conditions.

Authors:  Lisa C Lindley; Jessica Keim-Malpass
Journal:  Int J Palliat Nurs       Date:  2017-05-02

8.  High Intensity of End-of-Life Care Among Adolescent and Young Adult Cancer Patients in the New York State Medicaid Program.

Authors:  Jennifer W Mack; Kun Chen; Francis P Boscoe; Foster C Gesten; Patrick J Roohan; Maria J Schymura; Deborah Schrag
Journal:  Med Care       Date:  2015-12       Impact factor: 2.983

9.  Association of Expanded VA Hospice Care With Aggressive Care and Cost for Veterans With Advanced Lung Cancer.

Authors:  Vincent Mor; Todd H Wagner; Cari Levy; Mary Ersek; Susan C Miller; Risha Gidwani-Marszowski; Nina Joyce; Katherine Faricy-Anderson; Emily A Corneau; Karl Lorenz; Bruce Kinosian; Scott Shreve
Journal:  JAMA Oncol       Date:  2019-06-01       Impact factor: 31.777

10.  Measuring Health Spillover Effects in Caregivers of Children with Autism Spectrum Disorder: A Comparison of the EQ-5D-3L and SF-6D.

Authors:  Clare C Brown; J Mick Tilford; Nalin Payakachat; D Keith Williams; Karen A Kuhlthau; Jeffrey M Pyne; Renske J Hoefman; Werner B F Brouwer
Journal:  Pharmacoeconomics       Date:  2019-04       Impact factor: 4.981

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  8 in total

Review 1.  Easing the Journey-an Updated Review of Palliative Care for the Patient with High-Grade Glioma.

Authors:  Rita C Crooms; Margaret O Johnson; Heather Leeper; Ambereen Mehta; Michelle McWhirter; Akanksha Sharma
Journal:  Curr Oncol Rep       Date:  2022-02-22       Impact factor: 5.075

2.  Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children.

Authors:  Jessica Laird; Melanie J Cozad; Jessica Keim-Malpass; Jennifer W Mack; Lisa C Lindley
Journal:  Health Aff (Millwood)       Date:  2020-10       Impact factor: 6.301

3.  A Comparison of Young Adults With and Without Cancer in Concurrent Hospice Care: Implications for Transitioning to Adult Health Care.

Authors:  Kim Mooney-Doyle; Jessica Keim-Malpass; Radion Svynarenko; Lisa C Lindley
Journal:  J Adolesc Young Adult Oncol       Date:  2021-04-20       Impact factor: 2.223

4.  A National Profile of Children Receiving Pediatric Concurrent Hospice Care, 2011 to 2013.

Authors:  Lisa C Lindley; Melanie J Cozad; Radion Svynarenko; Jessica Keim-Malpass; Jennifer W Mack
Journal:  J Hosp Palliat Nurs       Date:  2021-06-01       Impact factor: 2.131

5.  Obamacare: A bibliometric perspective.

Authors:  Alvaro Carrasco-Aguilar; José Javier Galán; Ramón Alberto Carrasco
Journal:  Front Public Health       Date:  2022-08-12

6.  Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications.

Authors:  Jackelyn Y Boyden; Douglas L Hill; Gwenn LaRagione; Joanne Wolfe; Chris Feudtner
Journal:  Children (Basel)       Date:  2022-07-26

7.  Patterns of Health Care Services During Pediatric Concurrent Hospice Care: A National Study.

Authors:  Lisa C Lindley; Radion Svynarenko; Kim Mooney-Doyle; Annette Mendola; Wendy C Naumann; Jessica Keim-Malpass
Journal:  Am J Hosp Palliat Care       Date:  2021-05-25       Impact factor: 2.500

8.  Differences in characteristics of children with cancer who receive standard versus concurrent hospice care.

Authors:  Radion Svynarenko; Jennifer W Mack; Lisa C Lindley
Journal:  Pediatr Blood Cancer       Date:  2021-05-27       Impact factor: 3.167

  8 in total

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