Literature DB >> 22822304

Health Care Reform and Concurrent Curative Care for Terminally Ill Children: A Policy Analysis.

Lisa C Lindley1.   

Abstract

Within the Patient Protection and Affordable Care Act of 2010 or health care reform, is a relatively small provision about concurrent curative care that significantly affects terminally ill children. Effective on March 23, 2010, terminally ill children, who are enrolled in a Medicaid or state Children's Health Insurance Plans (CHIP) hospice benefit, may concurrently receive curative care related to their terminal health condition. The purpose of this article was to conduct a policy analysis of the concurrent curative care legislation by examining the intended goals of the policy to improve access to care and enhance quality of end of life care for terminally ill children. In addition, the policy analysis explored the political feasibility of implementing concurrent curative care at the state-level. Based on this policy analysis, the federal policy of concurrent curative care for children would generally achieve its intended goals. However, important policy omissions focus attention on the need for further federal end of life care legislation for children. These findings have implications nurses.

Entities:  

Year:  2011        PMID: 22822304      PMCID: PMC3401095          DOI: 10.1097/NJH.0b013e318202e308

Source DB:  PubMed          Journal:  J Hosp Palliat Nurs        ISSN: 1522-2179            Impact factor:   1.918


  56 in total

1.  Health services use and health care expenditures for children with disabilities.

Authors:  Paul W Newacheck; Moira Inkelas; Sue E Kim
Journal:  Pediatrics       Date:  2004-07       Impact factor: 7.124

2.  Partners in care: together for kids: Florida's model of pediatric palliative care.

Authors:  Caprice A Knapp; Vanessa L Madden; Charlotte M Curtis; Phyllis J Sloyer; I-Chan Huang; Lindsay A Thompson; Elizabeth A Shenkman
Journal:  J Palliat Med       Date:  2008-11       Impact factor: 2.947

3.  Pediatric palliative and hospice care: Pennsylvania's model of collaboration.

Authors:  Betsy Hawley
Journal:  Pediatr Nurs       Date:  2010 Jan-Feb

4.  Availability and use of palliative care and end-of-life services for pediatric oncology patients.

Authors:  Donna L Johnston; Kim Nagel; Debra L Friedman; Jane L Meza; Craig A Hurwitz; Sarah Friebert
Journal:  J Clin Oncol       Date:  2008-10-01       Impact factor: 44.544

5.  Tender mercies: increasing access to hospice services for children with life-threatening conditions.

Authors:  Devon Dabbs; Lori Butterworth; Elinor Hall
Journal:  MCN Am J Matern Child Nurs       Date:  2007 Sep-Oct       Impact factor: 1.412

6.  Comparing pediatric deaths with and without hospice support.

Authors:  David S Dickens
Journal:  Pediatr Blood Cancer       Date:  2010-05       Impact factor: 3.167

7.  Searching for "the dying point:" providers' experiences with palliative care in pediatric acute care.

Authors:  Sharron L Docherty; Margaret S Miles; Debra Brandon
Journal:  Pediatr Nurs       Date:  2007 Jul-Aug

8.  Oncology nurses' perceptions of obstacles and supportive behaviors at the end of life.

Authors:  Renea L Beckstrand; Josie Moore; Lynn Callister; A Elaine Bond
Journal:  Oncol Nurs Forum       Date:  2009-07       Impact factor: 2.172

Review 9.  Collaborative communication in pediatric palliative care: a foundation for problem-solving and decision-making.

Authors:  Chris Feudtner
Journal:  Pediatr Clin North Am       Date:  2007-10       Impact factor: 3.278

10.  The economic impact on families when a child is diagnosed with cancer.

Authors:  B Miedema; J Easley; P Fortin; R Hamilton; M Mathews
Journal:  Curr Oncol       Date:  2008-08       Impact factor: 3.677

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  15 in total

1.  Hospice Use for Infants With Life-Threatening Health Conditions, 2007 to 2010.

Authors:  Lisa C Lindley; Katherine M Newnam
Journal:  J Pediatr Health Care       Date:  2016-05-28       Impact factor: 1.812

2.  Coverage of palliative and hospice care for pediatric patients with a life-limiting illness: a policy brief.

Authors:  Jessica Keim-Malpass; Terra G Hart; Joy R Miller
Journal:  J Pediatr Health Care       Date:  2013-09-18       Impact factor: 1.812

3.  Determinants of access to pediatric hospice care: A conceptual model.

Authors:  Lisa C Lindley
Journal:  J Hosp Palliat Nurs       Date:  2015-04       Impact factor: 1.918

4.  The Effect of Pediatric Palliative Care Policy on Hospice Utilization Among California Medicaid Beneficiaries.

Authors:  Lisa C Lindley
Journal:  J Pain Symptom Manage       Date:  2016-09-29       Impact factor: 3.612

5.  A profile of children with complex chronic conditions at end of life among Medicaid beneficiaries: implications for health care reform.

Authors:  Lisa C Lindley; Maureen E Lyon
Journal:  J Palliat Med       Date:  2013-10-08       Impact factor: 2.947

6.  Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children.

Authors:  Jessica Laird; Melanie J Cozad; Jessica Keim-Malpass; Jennifer W Mack; Lisa C Lindley
Journal:  Health Aff (Millwood)       Date:  2020-10       Impact factor: 6.301

7.  A Comparison of Young Adults With and Without Cancer in Concurrent Hospice Care: Implications for Transitioning to Adult Health Care.

Authors:  Kim Mooney-Doyle; Jessica Keim-Malpass; Radion Svynarenko; Lisa C Lindley
Journal:  J Adolesc Young Adult Oncol       Date:  2021-04-20       Impact factor: 2.223

8.  A National Profile of Children Receiving Pediatric Concurrent Hospice Care, 2011 to 2013.

Authors:  Lisa C Lindley; Melanie J Cozad; Radion Svynarenko; Jessica Keim-Malpass; Jennifer W Mack
Journal:  J Hosp Palliat Nurs       Date:  2021-06-01       Impact factor: 2.131

9.  A Stakeholder-Driven Qualitative Study to Define High Quality End-of-Life Care for Children With Cancer.

Authors:  Prasanna Ananth; Sophia Mun; Noora Reffat; Randall Li; Tannaz Sedghi; Madeline Avery; Jennifer Snaman; Cary P Gross; Xiaomei Ma; Joanne Wolfe
Journal:  J Pain Symptom Manage       Date:  2021-02-05       Impact factor: 5.576

10.  Patterns of Health Care Services During Pediatric Concurrent Hospice Care: A National Study.

Authors:  Lisa C Lindley; Radion Svynarenko; Kim Mooney-Doyle; Annette Mendola; Wendy C Naumann; Jessica Keim-Malpass
Journal:  Am J Hosp Palliat Care       Date:  2021-05-25       Impact factor: 2.500

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