Literature DB >> 32221842

Gene editing and disabled people: a response to Felicity Boardman.

Iñigo de Miguel Beriain1,2.   

Abstract

Is the germline gene editing (GEE) of embryos with disabling conditions a moral obligation? According to a recent editorial by F. Broadmann, there are strong reasons to hold the opposite, since "such a focus on the benefit to individual embryos is to overlook the broader societal changes that genome editing will signal, as well as the potential negative impacts on existing persons with genetic conditions". This paper is aimed at rebuking these arguments by invoking the human dignity principle.

Entities:  

Year:  2020        PMID: 32221842      PMCID: PMC7295876          DOI: 10.1007/s12687-020-00460-w

Source DB:  PubMed          Journal:  J Community Genet        ISSN: 1868-310X


  14 in total

1.  Choosing who will be disabled: genetic intervention and the morality of inclusion.

Authors:  Allen Buchanan
Journal:  Soc Philos Policy       Date:  1996

2.  Disability rights critique of prenatal genetic testing: reflections and recommendations.

Authors:  Erik Parens; Adrienne Asch
Journal:  Ment Retard Dev Disabil Res Rev       Date:  2003

3.  Failures of Imagination: Disability and the Ethics of Selective Reproduction.

Authors:  Marta Soniewicka
Journal:  Bioethics       Date:  2015-02-17       Impact factor: 1.898

4.  An ethical pathway for gene editing.

Authors:  Julian Savulescu; Peter Singer
Journal:  Bioethics       Date:  2019-02       Impact factor: 1.898

5.  Gene Editing, the Mystic Threat to Human Dignity.

Authors:  Vera Lúcia Raposo
Journal:  J Bioeth Inq       Date:  2019-03-18       Impact factor: 1.352

6.  Human dignity and gene editing: Using human dignity as an argument against modifying the human genome and germline is a logical fallacy.

Authors:  Iñigo de Miguel Beriain
Journal:  EMBO Rep       Date:  2018-09-20       Impact factor: 8.807

7.  Human genome editing and the identity politics of genetic disability.

Authors:  Felicity Boardman
Journal:  J Community Genet       Date:  2019-09-06

8.  The moral imperative to continue gene editing research on human embryos.

Authors:  Julian Savulescu; Jonathan Pugh; Thomas Douglas; Christopher Gyngell
Journal:  Protein Cell       Date:  2015-07       Impact factor: 14.870

9.  How do genetically disabled adults view selective reproduction? Impairment, identity, and genetic screening.

Authors:  Felicity K Boardman; Rachel Hale
Journal:  Mol Genet Genomic Med       Date:  2018-09-09       Impact factor: 2.183

10.  Germline genome editing versus preimplantation genetic diagnosis: Is there a case in favour of germline interventions?

Authors:  Robert Ranisch
Journal:  Bioethics       Date:  2019-08-25       Impact factor: 1.898

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  1 in total

1.  Letter to the editor. Gene editing and disabled people: a response to Iñigo de Miguel Beriain.

Authors:  Felicity Boardman
Journal:  J Community Genet       Date:  2020-04-30
  1 in total

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