Literature DB >> 32090259

Leveraging the health information technology infrastructure to advance federal research priorities.

Teresa Zayas-Cabán1, Amy P Abernethy2, Patricia Flatley Brennan3, Stephanie Devaney4, Anthony R Kerlavage5, Rachel Ramoni6, P Jon White7.   

Abstract

Ensuring that federally funded health research keeps pace with the explosion of health data depends on better information technology (IT), access to high-quality electronic health data, and supportive policies. Because it prominently funds and conducts health research, the U.S. federal government needs health IT to rapidly evolve and has the ability to drive that evolution. The Office of the National Coordinator for Health Information Technology developed the National Health IT Priorities for Research: A Policy and Development Agenda (the Agenda) that identifies health IT priorities for research in consultation with relevant federal agencies. This article describes support for the Agenda from the Food and Drug Administration, the National Institutes of Health, and the Veterans Health Administration. Advancing the Agenda will benefit these agencies and support their missions as well as the entire ecosystem leveraging the health IT infrastructure or using data from health IT systems for research. Published by Oxford University Press on behalf of the American Medical Informatics Association 2020. This work is written by US Government employees and is in the public domain in the US.

Keywords:  federal government; goals; health information technology; policy; research

Year:  2020        PMID: 32090259      PMCID: PMC7647255          DOI: 10.1093/jamia/ocaa011

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  14 in total

1.  Report of the AMIA EHR-2020 Task Force on the status and future direction of EHRs.

Authors:  Thomas H Payne; Sarah Corley; Theresa A Cullen; Tejal K Gandhi; Linda Harrington; Gilad J Kuperman; John E Mattison; David P McCallie; Clement J McDonald; Paul C Tang; William M Tierney; Charlotte Weaver; Charlene R Weir; Michael H Zaroukian
Journal:  J Am Med Inform Assoc       Date:  2015-05-28       Impact factor: 4.497

2.  A 21st-Century Health IT System - Creating a Real-World Information Economy.

Authors:  Kenneth D Mandl; Isaac S Kohane
Journal:  N Engl J Med       Date:  2017-05-18       Impact factor: 91.245

3.  Opportunities and challenges in leveraging electronic health record data in oncology.

Authors:  Marc L Berger; Melissa D Curtis; Gregory Smith; James Harnett; Amy P Abernethy
Journal:  Future Oncol       Date:  2016-03-08       Impact factor: 3.404

4.  The National Library of Medicine: Accelerating Discovery, Delivering Information, Improving Health.

Authors:  Patricia Flatley Brennan
Journal:  Ann Intern Med       Date:  2016-08-16       Impact factor: 25.391

5.  National health information technology priorities for research: A policy and development agenda.

Authors:  Teresa Zayas-Cabán; Kevin J Chaney; Donald W Rucker
Journal:  J Am Med Inform Assoc       Date:  2020-04-01       Impact factor: 4.497

Review 6.  Deep EHR: A Survey of Recent Advances in Deep Learning Techniques for Electronic Health Record (EHR) Analysis.

Authors:  Benjamin Shickel; Patrick James Tighe; Azra Bihorac; Parisa Rashidi
Journal:  IEEE J Biomed Health Inform       Date:  2017-10-27       Impact factor: 5.772

Review 7.  Cancer Moonshot Data and Technology Team: Enabling a National Learning Healthcare System for Cancer to Unleash the Power of Data.

Authors:  E R Hsu; J D Klemm; A R Kerlavage; D Kusnezov; W A Kibbe
Journal:  Clin Pharmacol Ther       Date:  2017-05       Impact factor: 6.875

8.  Advances in the Use of Real-World Evidence for Medical Devices: An Update From the National Evaluation System for Health Technology.

Authors:  Rachael L Fleurence; Jeffrey Shuren
Journal:  Clin Pharmacol Ther       Date:  2019-03-19       Impact factor: 6.875

9.  A Comprehensive Infrastructure for Big Data in Cancer Research: Accelerating Cancer Research and Precision Medicine.

Authors:  Izumi V Hinkson; Tanja M Davidsen; Juli D Klemm; Anthony R Kerlavage; Warren A Kibbe; Ishwar Chandramouliswaran
Journal:  Front Cell Dev Biol       Date:  2017-09-21

10.  From Discovery to Practice and Survivorship: Building a National Real-World Data Learning Healthcare Framework for Military and Veteran Cancer Patients.

Authors:  Jerry S H Lee; Kathleen M Darcy; Hai Hu; Yovanni Casablanca; Thomas P Conrads; Clifton L Dalgard; John B Freymann; Sean E Hanlon; Grant D Huang; Leonid Kvecher; George L Maxwell; Frank Meng; Joel T Moncur; Clesson Turner; Justin M Wells; Matthew D Wilkerson; Kangmin Zhu; Rachel B Ramoni; Craig D Shriver
Journal:  Clin Pharmacol Ther       Date:  2019-04-29       Impact factor: 6.875

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  3 in total

1.  Meeting the challenge: Health information technology's essential role in achieving precision medicine.

Authors:  Teresa Zayas-Cabán; Kevin J Chaney; Courtney C Rogers; Joshua C Denny; P Jon White
Journal:  J Am Med Inform Assoc       Date:  2021-06-12       Impact factor: 4.497

Review 2.  HL7 FHIR-based tools and initiatives to support clinical research: a scoping review.

Authors:  Stephany N Duda; Nan Kennedy; Douglas Conway; Alex C Cheng; Viet Nguyen; Teresa Zayas-Cabán; Paul A Harris
Journal:  J Am Med Inform Assoc       Date:  2022-08-16       Impact factor: 7.942

3.  Fast-Tracking Health Data Standards Development and Adoption in Real-World Settings: A Pilot Approach.

Authors:  Allison F Dennis; P Jon White; Teresa Zayas-Cabán
Journal:  Appl Clin Inform       Date:  2021-08-11       Impact factor: 2.762

  3 in total

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