Literature DB >> 32090265

National health information technology priorities for research: A policy and development agenda.

Teresa Zayas-Cabán1, Kevin J Chaney1, Donald W Rucker1.   

Abstract

The growth of digitized health data presents exciting opportunities to leverage the health information technology (IT) infrastructure for advancing biomedical and health services research. However, challenges impede use of those resources effectively and at scale to improve outcomes. The Office of the National Coordinator for Health Information Technology (ONC) led a collaborative effort to identify challenges, priorities, and actions to leverage health IT and electronic health data for research. Specifically, ONC led a review of relevant literature and programs, key informant interviews, and a stakeholder workshop to identify electronic health data and health IT infrastructure gaps. This effort resulted in the National Health IT Priorities for Research: A Policy and Development Agenda, which articulates an optimized health information ecosystem for scientific discovery. This article outlines 9 priorities and recommended actions to be implemented in collaboration with the research and informatics communities for realizing this vision. Published by Oxford University Press on behalf of the American Medical Informatics Association 2020. This work is written by US Government employees and is in the public domain in the US.

Keywords:  development; federal government; health information technology; policy; research

Year:  2020        PMID: 32090265      PMCID: PMC7647301          DOI: 10.1093/jamia/ocaa008

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  37 in total

1.  Opportunities and challenges in the use of personal health data for health research.

Authors:  Matthew J Bietz; Cinnamon S Bloss; Scout Calvert; Job G Godino; Judith Gregory; Michael P Claffey; Jerry Sheehan; Kevin Patrick
Journal:  J Am Med Inform Assoc       Date:  2015-09-02       Impact factor: 4.497

2.  Enhance Diversity Among Researchers to Promote Participant Trust in Precision Medicine Research.

Authors:  Demetrio Sierra-Mercado; Gabriel Lázaro-Muñoz
Journal:  Am J Bioeth       Date:  2018-04       Impact factor: 11.229

Review 3.  Choosing Among Common Data Models for Real-World Data Analyses Fit for Making Decisions About the Effectiveness of Medical Products.

Authors:  Sebastian Schneeweiss; Jeff S Brown; Andrew Bate; Gianluca Trifirò; Dorothee B Bartels
Journal:  Clin Pharmacol Ther       Date:  2019-08-25       Impact factor: 6.875

Review 4.  Clinical Data Reuse or Secondary Use: Current Status and Potential Future Progress.

Authors:  S M Meystre; C Lovis; T Bürkle; G Tognola; A Budrionis; C U Lehmann
Journal:  Yearb Med Inform       Date:  2017-09-11

5.  Electronic Health Records Data and Metadata: Challenges for Big Data in the United States.

Authors:  Lauren E Sweet; Heather Lea Moulaison
Journal:  Big Data       Date:  2013-12-14       Impact factor: 2.128

6.  African Americans' views on research and the Tuskegee Syphilis Study.

Authors:  V S Freimuth; S C Quinn; S B Thomas; G Cole; E Zook; T Duncan
Journal:  Soc Sci Med       Date:  2001-03       Impact factor: 4.634

Review 7.  A guide to deep learning in healthcare.

Authors:  Andre Esteva; Alexandre Robicquet; Bharath Ramsundar; Volodymyr Kuleshov; Mark DePristo; Katherine Chou; Claire Cui; Greg Corrado; Sebastian Thrun; Jeff Dean
Journal:  Nat Med       Date:  2019-01-07       Impact factor: 53.440

Review 8.  Barriers to participation in mental health research: are there specific gender, ethnicity and age related barriers?

Authors:  Anna Woodall; Craig Morgan; Claire Sloan; Louise Howard
Journal:  BMC Psychiatry       Date:  2010-12-02       Impact factor: 3.630

9.  Maximizing clinical research participation in vulnerable older persons: identification of barriers and motivators.

Authors:  Edward R Marcantonio; Jasneet Aneja; Richard N Jones; David C Alsop; Tamara G Fong; Gregory J Crosby; Deborah J Culley; L Adrienne Cupples; Sharon K Inouye
Journal:  J Am Geriatr Soc       Date:  2008-07-24       Impact factor: 5.562

Review 10.  Big Data Application in Biomedical Research and Health Care: A Literature Review.

Authors:  Jake Luo; Min Wu; Deepika Gopukumar; Yiqing Zhao
Journal:  Biomed Inform Insights       Date:  2016-01-19
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  9 in total

1.  Meeting the challenge: Health information technology's essential role in achieving precision medicine.

Authors:  Teresa Zayas-Cabán; Kevin J Chaney; Courtney C Rogers; Joshua C Denny; P Jon White
Journal:  J Am Med Inform Assoc       Date:  2021-06-12       Impact factor: 4.497

2.  Leveraging the health information technology infrastructure to advance federal research priorities.

Authors:  Teresa Zayas-Cabán; Amy P Abernethy; Patricia Flatley Brennan; Stephanie Devaney; Anthony R Kerlavage; Rachel Ramoni; P Jon White
Journal:  J Am Med Inform Assoc       Date:  2020-04-01       Impact factor: 4.497

Review 3.  HL7 FHIR-based tools and initiatives to support clinical research: a scoping review.

Authors:  Stephany N Duda; Nan Kennedy; Douglas Conway; Alex C Cheng; Viet Nguyen; Teresa Zayas-Cabán; Paul A Harris
Journal:  J Am Med Inform Assoc       Date:  2022-08-16       Impact factor: 7.942

4.  Fast-Tracking Health Data Standards Development and Adoption in Real-World Settings: A Pilot Approach.

Authors:  Allison F Dennis; P Jon White; Teresa Zayas-Cabán
Journal:  Appl Clin Inform       Date:  2021-08-11       Impact factor: 2.762

5.  Evaluating Telehealth Adoption and Related Barriers Among Hospitals Located in Rural and Urban Areas.

Authors:  Jie Chen; Aitalohi Amaize; Deanna Barath
Journal:  J Rural Health       Date:  2020-11-12       Impact factor: 4.333

Review 6.  Standardizing, harmonizing, and protecting data collection to broaden the impact of COVID-19 research: the rapid acceleration of diagnostics-underserved populations (RADx-UP) initiative.

Authors:  Gabriel A Carrillo; Michael Cohen-Wolkowiez; Emily M D'Agostino; Keith Marsolo; Lisa M Wruck; Laura Johnson; James Topping; Al Richmond; Giselle Corbie; Warren A Kibbe
Journal:  J Am Med Inform Assoc       Date:  2022-08-16       Impact factor: 7.942

7.  Electronic health records and clinician burnout: A story of three eras.

Authors:  Kevin B Johnson; Michael J Neuss; Don Eugene Detmer
Journal:  J Am Med Inform Assoc       Date:  2021-04-23       Impact factor: 4.497

8.  Patient-led data sharing for clinical bioinformatics research: USCDI and beyond.

Authors:  William J Gordon; Daniel Gottlieb; David Kreda; Joshua C Mandel; Kenneth D Mandl; Isaac S Kohane
Journal:  J Am Med Inform Assoc       Date:  2021-09-18       Impact factor: 7.942

9.  Key insights in the AIDA community policy on sharing of clinical imaging data for research in Sweden.

Authors:  Joel Hedlund; Anders Eklund; Claes Lundström
Journal:  Sci Data       Date:  2020-10-06       Impact factor: 6.444

  9 in total

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