Literature DB >> 31423880

Researching Experiences of Cancer Risk Through Online Blogs: A Reflexive Account of Working Toward Ethical Practice.

Emily Ross1.   

Abstract

By providing space to document personal narratives and hold virtual discussions, the Internet represents a fruitful resource for sociologists of health and illness. However, the use of social media content for research entails complex ethical considerations. Due to the fluidity of online material, existing ethical guidelines advise a deliberative approach. However, this has led to disparity in the use of social media resources within the social sciences. I share an account of "doing ethics" for qualitative research with blogs focused on hereditary cancer risk. Blogging emerged not only as cathartic for authors, but also a means of accessing support. Blogs may thus be construed as constitutive and not only representative of cancer (risk) experience. Ethical questions surround anonymity and the appropriation of authors' accounts beyond the context in which they are composed. By sharing reflections on working with hereditary cancer risk blogs, I contribute to the continued reflexivity of social media researchers.

Entities:  

Keywords:  cancer/oncology; qualitative methods; research ethics; social media research; sociology

Mesh:

Year:  2019        PMID: 31423880      PMCID: PMC7049467          DOI: 10.1177/1556264619867840

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  28 in total

1.  Decision-making about inherited cancer risk: exploring dimensions of genetic responsibility.

Authors:  Holly Etchegary; Fiona Miller; Sonya deLaat; Brenda Wilson; June Carroll; Mario Cappelli
Journal:  J Genet Couns       Date:  2009-03-18       Impact factor: 2.537

2.  Gender, cancer experience and internet use: a comparative keyword analysis of interviews and online cancer support groups.

Authors:  Clive Seale; Sue Ziebland; Jonathan Charteris-Black
Journal:  Soc Sci Med       Date:  2005-12-19       Impact factor: 4.634

3.  Repositioning the patient: the implications of being 'at risk'.

Authors:  S Scott; L Prior; F Wood; J Gray
Journal:  Soc Sci Med       Date:  2005-04       Impact factor: 4.634

4.  Guilt, blame and responsibility: men's understanding of their role in the transmission of BRCA1/2 mutations within their family.

Authors:  Nina Hallowell; Audrey Arden-Jones; Ros Eeles; Claire Foster; Anneke Lucassen; Clare Moynihan; Maggie Watson
Journal:  Sociol Health Illn       Date:  2006-11

5.  Family stories and the use of heuristics: women from suspected hereditary breast and ovarian cancer (HBOC) families.

Authors:  Regina Kenen; Audrey Ardern-Jones; Rosalind Eeles
Journal:  Sociol Health Illn       Date:  2003-11

6.  Accommodating risk: responses to BRCA1/2 genetic testing of women who have had cancer.

Authors:  N Hallowell; C Foster; R Eeles; A Ardern-Jones; M Watson
Journal:  Soc Sci Med       Date:  2004-08       Impact factor: 4.634

7.  How the internet affects patients' experience of cancer: a qualitative study.

Authors:  Sue Ziebland; Alison Chapple; Carol Dumelow; Julie Evans; Suman Prinjha; Linda Rozmovits
Journal:  BMJ       Date:  2004-03-06

8.  The experience of young adult cancer patients described through online narratives.

Authors:  Bora Kim; David Michael Gillham
Journal:  Cancer Nurs       Date:  2013 Sep-Oct       Impact factor: 2.592

Review 9.  Surgical treatment in familial adenomatous polyposis.

Authors:  Vera N Tudyka; Susan K Clark
Journal:  Ann Gastroenterol       Date:  2012

10.  From "a Fair Game" to "a Form of Covert Research": Research Ethics Committee Members' Differing Notions of Consent and Potential Risk to Participants Within Social Media Research.

Authors:  R A Hibbin; G Samuel; G E Derrick
Journal:  J Empir Res Hum Res Ethics       Date:  2018-01-19       Impact factor: 1.742

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.