Literature DB >> 31308520

Overvaluing individual consent ignores risks to tribal participants.

Krystal S Tsosie1, Joseph M Yracheta2, Donna Dickenson3.   

Abstract

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Year:  2019        PMID： 31308520      PMCID： PMC7250136          DOI： 10.1038/s41576-019-0161-z

Source DB:  PubMed          Journal:  Nat Rev Genet        ISSN： 1471-0056            Impact factor:   53.242


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  2 in total

1.  From "Personalized" to "Precision" Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic Medicine.

Authors:  Eric Juengst; Michelle L McGowan; Jennifer R Fishman; Richard A Settersten
Journal:  Hastings Cent Rep       Date:  2016-09       Impact factor: 2.683

Review 2.  A framework for enhancing ethical genomic research with Indigenous communities.

Authors:  Katrina G Claw; Matthew Z Anderson; Rene L Begay; Krystal S Tsosie; Keolu Fox; Nanibaa' A Garrison
Journal:  Nat Commun       Date:  2018-07-27       Impact factor: 14.919
  2 in total
  18 in total

Review 1.  Evaluating the promise of inclusion of African ancestry populations in genomics.

Authors:  Amy R Bentley; Shawneequa L Callier; Charles N Rotimi
Journal:  NPJ Genom Med       Date:  2020-02-25       Impact factor: 8.617

Review 2.  Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.

Authors:  Maui Hudson; Nanibaa' A Garrison; Rogena Sterling; Nadine R Caron; Keolu Fox; Joseph Yracheta; Jane Anderson; Phil Wilcox; Laura Arbour; Alex Brown; Maile Taualii; Tahu Kukutai; Rodney Haring; Ben Te Aika; Gareth S Baynam; Peter K Dearden; David Chagné; Ripan S Malhi; Ibrahim Garba; Nicki Tiffin; Deborah Bolnick; Matthew Stott; Anna K Rolleston; Leah L Ballantyne; Ray Lovett; Dominique David-Chavez; Andrew Martinez; Andrew Sporle; Maggie Walter; Jeff Reading; Stephanie Russo Carroll
Journal:  Nat Rev Genet       Date:  2020-04-06       Impact factor: 53.242

3.  Ethical Machine Learning in Healthcare.

Authors:  Irene Y Chen; Emma Pierson; Sherri Rose; Shalmali Joshi; Kadija Ferryman; Marzyeh Ghassemi
Journal:  Annu Rev Biomed Data Sci       Date:  2021-05-06

Review 4.  Social and scientific motivations to move beyond groups in allele frequencies: The TOPMed experience.

Authors:  Sarah C Nelson; Stephanie M Gogarten; Stephanie M Fullerton; Carmen R Isasi; Braxton D Mitchell; Kari E North; Stephen S Rich; Matthew R G Taylor; Sebastian Zöllner; Tamar Sofer
Journal:  Am J Hum Genet       Date:  2022-09-01       Impact factor: 11.043

Review 5.  Ethical microbiome research with Indigenous communities.

Authors:  Shani Msafiri Mangola; Justin R Lund; Stephanie L Schnorr; Alyssa N Crittenden
Journal:  Nat Microbiol       Date:  2022-05-16       Impact factor: 30.964

Review 6.  Opportunities and challenges for the use of common controls in sequencing studies.

Authors:  Genevieve L Wojcik; Jessica Murphy; Jacob L Edelson; Christopher R Gignoux; Alexander G Ioannidis; Alisa Manning; Manuel A Rivas; Steven Buyske; Audrey E Hendricks
Journal:  Nat Rev Genet       Date:  2022-05-17       Impact factor: 59.581

7.  Urban American Indian and Alaska Native Data Sovereignty: Ethical Issues.

Authors:  Emily A Haozous; Juliet Lee; Claradina Soto
Journal:  Am Indian Alsk Native Ment Health Res       Date:  2021

Review 8.  Human genetic admixture.

Authors:  Katharine L Korunes; Amy Goldberg
Journal:  PLoS Genet       Date:  2021-03-11       Impact factor: 5.917

9.  Extending Research Protections to Tribal Communities.

Authors:  Bobby Saunkeah; Julie A Beans; Michael T Peercy; Vanessa Y Hiratsuka; Paul Spicer
Journal:  Am J Bioeth       Date:  2021-01-15       Impact factor: 14.676

Review 10.  Evaluating the promise of inclusion of African ancestry populations in genomics.

Authors:  Amy R Bentley; Shawneequa L Callier; Charles N Rotimi
Journal:  NPJ Genom Med       Date:  2020-02-25       Impact factor: 8.617
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