Literature DB >> 33449863

Extending Research Protections to Tribal Communities.

Bobby Saunkeah1, Julie A Beans2, Michael T Peercy1, Vanessa Y Hiratsuka2, Paul Spicer3.   

Abstract

The history of research in American Indian/Alaska Native (AI/AN) communities has been marked by unethical practices, resulting in mistrust and reluctance to participate in research. Harms are not limited to individual persons-tribal communities experience harmful misrepresentation and generalizations disrespectful of AI/AN groups' heritage, cultures, and beliefs. The Belmont Report's research ethics principles are applied primarily to protect individual research participants. The principles of sovereignty and solidarity are argued to be important concepts in extending Belmont's research protections to tribal communities. Sovereignty, an expression of respect for autonomy at a group level, is the basis for tribal self-determination. The principle of solidarity provides an ethical underpinning for tribes' obligations to protect community interests and culture. Extension of Belmont through these principles should serve to minimize harms to AI/AN groups in research.

Entities:  

Keywords:  Alaska Native; American Indian; Belmont Report; CBPR; solidarity; sovereignty

Mesh:

Year:  2021        PMID: 33449863      PMCID: PMC8280236          DOI: 10.1080/15265161.2020.1865477

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   14.676


  37 in total

1.  Justice and solidarity in priority setting in health care.

Authors:  Rogeer Hoedemaekers; Wim Dekkers
Journal:  Health Care Anal       Date:  2003-12

2.  Ethical analysis of research partnerships with communities.

Authors:  Ernest Wallwork
Journal:  Kennedy Inst Ethics J       Date:  2008-03

3.  The role of solidarity in social responsibility for health.

Authors:  Massimo Reichlin
Journal:  Med Health Care Philos       Date:  2011-11

4.  Beyond Belmont: Ensuring Respect for AI/AN Communities Through Tribal IRBs, Laws, and Policies.

Authors:  Sara Chandros Hull; David R Wilson Diné
Journal:  Am J Bioeth       Date:  2017-07       Impact factor: 11.229

5.  Beyond the Belmont Principles: A Community-Based Approach to Developing an Indigenous Ethics Model and Curriculum for Training Health Researchers Working with American Indian and Alaska Native Communities.

Authors:  Myra Parker; Cynthia Pearson; Caitlin Donald; Celia B Fisher
Journal:  Am J Community Psychol       Date:  2019-07-29

6.  Fostering Ethical, Legal, and Social Implications Research in Tribal Communities: The Center for the Ethics of Indigenous Genomic Research.

Authors:  Vanessa Y Hiratsuka; Julie A Beans; Justin Reedy; Joseph M Yracheta; Michael T Peercy; Bobby Saunkeah; R Brian Woodbury; Marcia O'Leary; Paul G Spicer
Journal:  J Empir Res Hum Res Ethics       Date:  2019-09-09       Impact factor: 1.742

7.  Alaska native people's perceptions, understandings, and expectations for research involving biological specimens.

Authors:  Vanessa Y Hiratsuka; Jennifer K Brown; Theresa J Hoeft; Denise A Dillard
Journal:  Int J Circumpolar Health       Date:  2012-05-22       Impact factor: 1.228

8.  Conducting research with tribal communities: sovereignty, ethics, and data-sharing issues.

Authors:  Anna Harding; Barbara Harper; Dave Stone; Catherine O'Neill; Patricia Berger; Stuart Harris; Jamie Donatuto
Journal:  Environ Health Perspect       Date:  2011-09-02       Impact factor: 9.031

9.  Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation.

Authors:  Vanessa Y Hiratsuka; Julie A Beans; Renee F Robinson; Jennifer L Shaw; Ileen Sylvester; Denise A Dillard
Journal:  Int J Environ Res Public Health       Date:  2017-10-31       Impact factor: 3.390

10.  Deliberations About Genomic Research and Biobanks With Citizens of the Chickasaw Nation.

Authors:  Justin Reedy; Jessica W Blanchard; Justin Lund; Paul G Spicer; Christie Byars; Michael Peercy; Bobby Saunkeah; Erika Blacksher
Journal:  Front Genet       Date:  2020-05-14       Impact factor: 4.599

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  1 in total

1.  For the Good of the Community: Considering the Impact of Evidence-Based Treatment Adaptation on Tribal Communities.

Authors:  Ashleigh Coser; Terrence K Kominsky; Evan J White
Journal:  Behav Ther (N Y N Y)       Date:  2021-04
  1 in total

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