| Literature DB >> 32251390 |
Maui Hudson1,2, Nanibaa' A Garrison3, Rogena Sterling4, Nadine R Caron5,6, Keolu Fox7, Joseph Yracheta8,9, Jane Anderson10, Phil Wilcox11,12, Laura Arbour13, Alex Brown14,15, Maile Taualii16, Tahu Kukutai17, Rodney Haring18, Ben Te Aika11, Gareth S Baynam19, Peter K Dearden11,20, David Chagné21,22, Ripan S Malhi23, Ibrahim Garba24, Nicki Tiffin25,26,27, Deborah Bolnick28,29, Matthew Stott30, Anna K Rolleston31, Leah L Ballantyne13, Ray Lovett32, Dominique David-Chavez24,33, Andrew Martinez24, Andrew Sporle34, Maggie Walter35,36,37, Jeff Reading38, Stephanie Russo Carroll24,39.
Abstract
Addressing Indigenous rights and interests in genetic resources has become increasingly challenging in an open science environment that promotes unrestricted access to genomic data. Although Indigenous experiences with genetic research have been shaped by a series of negative interactions, there is increasing recognition that equitable benefits can only be realized through greater participation of Indigenous communities. Issues of trust, accountability and equity underpin Indigenous critiques of genetic research and the sharing of genomic data. This Perspectives article highlights identified issues for Indigenous communities around the sharing of genomic data and suggests principles and actions that genomic researchers can adopt to recognize community rights and interests in data.Mesh：
Year: 2020 PMID： 32251390 DOI： 10.1038/s41576-020-0228-x
Source DB: PubMed Journal: Nat Rev Genet ISSN： 1471-0056 Impact factor: 53.242