Literature DB >> 31171685

Ethics of inclusion: Cultivate trust in precision medicine.

Sandra Soo-Jin Lee1, Stephanie M Fullerton2, Aliya Saperstein3, Janet K Shim4.   

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Year:  2019        PMID: 31171685      PMCID: PMC7261394          DOI: 10.1126/science.aaw8299

Source DB:  PubMed          Journal:  Science        ISSN: 0036-8075            Impact factor:   47.728


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  9 in total

1.  The use of race variables in genetic studies of complex traits and the goal of reducing health disparities: a transdisciplinary perspective.

Authors:  Alexandra E Shields; Michael Fortun; Evelynn M Hammonds; Patricia A King; Caryn Lerman; Rayna Rapp; Patrick F Sullivan
Journal:  Am Psychol       Date:  2005-01

2.  Using "socially assigned race" to probe white advantages in health status.

Authors:  Camara Phyllis Jones; Benedict I Truman; Laurie D Elam-Evans; Camille A Jones; Clara Y Jones; Ruth Jiles; Susan F Rumisha; Geraldine S Perry
Journal:  Ethn Dis       Date:  2008       Impact factor: 1.847

3.  Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.

Authors:  Stephanie A Kraft; Mildred K Cho; Katherine Gillespie; Meghan Halley; Nina Varsava; Kelly E Ormond; Harold S Luft; Benjamin S Wilfond; Sandra Soo-Jin Lee
Journal:  Am J Bioeth       Date:  2018-04       Impact factor: 11.229

4.  Genetics. The illusive gold standard in genetic ancestry testing.

Authors:  Sandra Soo-Jin Lee; Sandra Soo-Jin Lee; Deborah A Bolnick; Troy Duster; Pilar Ossorio; Kimberly Tallbear
Journal:  Science       Date:  2009-07-03       Impact factor: 47.728

5.  ASHG Denounces Attempts to Link Genetics and Racial Supremacy.

Authors: 
Journal:  Am J Hum Genet       Date:  2018-10-19       Impact factor: 11.025

6.  Genomics is failing on diversity.

Authors:  Alice B Popejoy; Stephanie M Fullerton
Journal:  Nature       Date:  2016-10-13       Impact factor: 49.962

7.  Race and ancestry in the age of inclusion: technique and meaning in post-genomic science.

Authors:  Janet K Shim; Sara L Ackerman; Katherine Weatherford Darling; Robert A Hiatt; Sandra Soo-Jin Lee
Journal:  J Health Soc Behav       Date:  2014-11-06

8.  Enhancing diversity to reduce health information disparities and build an evidence base for genomic medicine.

Authors:  Lucia A Hindorff; Vence L Bonham; Lucila Ohno-Machado
Journal:  Per Med       Date:  2018-09-13       Impact factor: 2.512

9.  Genetic ancestry, social classification, and racial inequalities in blood pressure in Southeastern Puerto Rico.

Authors:  Clarence C Gravlee; Amy L Non; Connie J Mulligan
Journal:  PLoS One       Date:  2009-09-09       Impact factor: 3.240

  9 in total
  8 in total

Review 1.  Enabling Technologies for Personalized and Precision Medicine.

Authors:  Dean Ho; Stephen R Quake; Edward R B McCabe; Wee Joo Chng; Edward K Chow; Xianting Ding; Bruce D Gelb; Geoffrey S Ginsburg; Jason Hassenstab; Chih-Ming Ho; William C Mobley; Garry P Nolan; Steven T Rosen; Patrick Tan; Yun Yen; Ali Zarrinpar
Journal:  Trends Biotechnol       Date:  2020-01-21       Impact factor: 19.536

2.  The Use of Racial Categories in Precision Medicine Research.

Authors:  Shawneequa L Callier
Journal:  Ethn Dis       Date:  2019-12-12       Impact factor: 1.847

Review 3.  Artificial Intelligence in Medical Imaging and its Impact on the Rare Disease Community: Threats, Challenges and Opportunities.

Authors:  Navid Hasani; Faraz Farhadi; Michael A Morris; Moozhan Nikpanah; Arman Rhamim; Yanji Xu; Anne Pariser; Michael T Collins; Ronald M Summers; Elizabeth Jones; Eliot Siegel; Babak Saboury
Journal:  PET Clin       Date:  2022-01

Review 4.  The Ethics of Consent in a Shifting Genomic Ecosystem.

Authors:  Sandra Soo-Jin Lee
Journal:  Annu Rev Biomed Data Sci       Date:  2021-07-20

Review 5.  Health equality, race and pharmacogenomics.

Authors:  Emma F Magavern; Deepti Gurdasani; Fu L Ng; Sandra Soo-Jin Lee
Journal:  Br J Clin Pharmacol       Date:  2021-08-04       Impact factor: 4.335

6.  Obligations of the "Gift": Reciprocity and Responsibility in Precision Medicine.

Authors:  Sandra Soo-Jin Lee
Journal:  Am J Bioeth       Date:  2020-12-16       Impact factor: 11.229

7.  Beyond inclusion: Enacting team equity in precision medicine research.

Authors:  Melanie Jeske; Emily Vasquez; Stephanie M Fullerton; Aliya Saperstein; Michael Bentz; Nicole Foti; Janet K Shim; Sandra Soo-Jin Lee
Journal:  PLoS One       Date:  2022-02-07       Impact factor: 3.240

8.  Beyond race: Recruitment of diverse participants in clinical genomics research for rare disease.

Authors:  Jennifer L Young; Meghan C Halley; Beatriz Anguiano; Liliana Fernandez; Jonathan A Bernstein; Matthew T Wheeler; Holly K Tabor
Journal:  Front Genet       Date:  2022-08-22       Impact factor: 4.772

  8 in total

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