Literature DB >> 31166302

HPNA 2019-2022 Research Agenda: Development and Rationale.

Rafael D Romo1, Joan G Carpenter, Harleah Buck, Lisa C Lindley, Jiayun Xu, John A Owen, Suzanne S Sullivan, Marie Bakitas, J Nicholas Dionne-Odom, Lisa Zubkoff, Marianne Matzo.   

Abstract

Building on the strong work of previous research agendas (2009-2012, 2012-2015, 2015-2018), the Hospice and Palliative Nurses Association Research Advisory Council developed the 2019-2022 Research Agenda in consultation with Hospice and Palliative Nurses Association (HPNA) membership and assessment of major trends in palliative nursing. The HPNA Research Advisory Council identified 5 priority areas and asked subject experts in each area to summarize the state of the science, identify critical gaps, and provide recommendations for future research. This document expands the executive summary published on the HPNA website (www.advancingexpertcare.org/hpna/) and provides supporting evidence for the 2019-2022 recommendations. The 5 priority areas are as follows: (1) pediatric hospice and palliative nursing research; (2) family caregiving; (3) interprofessional education and collaborative practice; (4) big data science, precision health, and nursing informatics; and (5) implementation science.

Entities:  

Year:  2019        PMID: 31166302      PMCID: PMC6776462          DOI: 10.1097/NJH.0000000000000580

Source DB:  PubMed          Journal:  J Hosp Palliat Nurs        ISSN: 1522-2179            Impact factor:   1.918


  55 in total

1.  Dyspnea in Children with Life-Threatening and Life-Limiting Complex Chronic Conditions.

Authors:  Lucas Pieper; Boris Zernikow; Ross Drake; Michael Frosch; Michael Printz; Julia Wager
Journal:  J Palliat Med       Date:  2018-01-09       Impact factor: 2.947

Review 2.  A review of family caregiving intervention trials in oncology.

Authors:  Betty Ferrell; Elaine Wittenberg
Journal:  CA Cancer J Clin       Date:  2017-03-20       Impact factor: 508.702

3.  Effects of enhanced caregiver training program on cancer caregiver's self-efficacy, preparedness, and psychological well-being.

Authors:  Cristina C Hendrix; Donald E Bailey; Karen E Steinhauser; Maren K Olsen; Karen M Stechuchak; Sarah G Lowman; Abby J Schwartz; Richard F Riedel; Francis J Keefe; Laura S Porter; James A Tulsky
Journal:  Support Care Cancer       Date:  2015-06-12       Impact factor: 3.603

Review 4.  Pain and Symptom Management in Pediatric Palliative Care.

Authors:  Kelly Komatz; Brian Carter
Journal:  Pediatr Rev       Date:  2015-12

5.  Research Priorities in Pediatric Palliative Care.

Authors:  Justin N Baker; Deena R Levine; Pamela S Hinds; Meaghann S Weaver; Melody J Cunningham; Liza Johnson; Doralina Anghelescu; Belinda Mandrell; Deborah V Gibson; Barbara Jones; Joanne Wolfe; Chris Feudtner; Sarah Friebert; Brian Carter; Javier R Kane
Journal:  J Pediatr       Date:  2015-05-28       Impact factor: 4.406

6.  Quality of paediatric hospice care for children with and without multiple complex chronic conditions.

Authors:  Lisa C Lindley; Jessica Keim-Malpass
Journal:  Int J Palliat Nurs       Date:  2017-05-02

7.  Dyadic psychosocial intervention for advanced lung cancer patients and their family caregivers: results of a randomized pilot trial.

Authors:  Hoda Badr; Cardinale B Smith; Nathan E Goldstein; Jorge E Gomez; William H Redd
Journal:  Cancer       Date:  2014-09-10       Impact factor: 6.860

8.  Capacity for Cancer Care Delivery Research in National Cancer Institute Community Oncology Research Program Community Practices: Availability of Radiology and Primary Care Research Partners.

Authors:  Ruth C Carlos; JoRean D Sicks; George J Chang; Alan P Lyss; Teresa L Stewart; Lillian Sung; Kathryn E Weaver
Journal:  J Am Coll Radiol       Date:  2017-10-19       Impact factor: 5.532

9.  Exploring the rewards and challenges of paediatric palliative care work - a qualitative study of a multi-disciplinary children's hospice care team.

Authors:  Johanna Taylor; Jan Aldridge
Journal:  BMC Palliat Care       Date:  2017-12-16       Impact factor: 3.234

10.  A Review of Apps for Calming, Relaxation, and Mindfulness Interventions for Pediatric Palliative Care Patients.

Authors:  Taelyr Weekly; Nicole Walker; Jill Beck; Sean Akers; Meaghann Weaver
Journal:  Children (Basel)       Date:  2018-01-26
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  4 in total

1.  Investigation of Modifiable Variables to Increase Hospice Nurse Comfort With Care Provision to Children and Families in the Community: A Population-Level Study Across Tennessee, Mississippi, and Arkansas.

Authors:  Erica C Kaye; Melanie Gattas; Ashley Kiefer; Jason Reynolds; Kristina Zalud; Chen Li; Zhaohua Lu; Justin N Baker
Journal:  J Pain Symptom Manage       Date:  2020-07-02       Impact factor: 3.612

2.  The Project ENABLE Cornerstone randomized controlled trial: study protocol for a lay navigator-led, early palliative care coaching intervention for African American and rural-dwelling advanced cancer family caregivers.

Authors:  Avery C Bechthold; Andres Azuero; Maria Pisu; Jennifer Young Pierce; Grant R Williams; Richard A Taylor; Rachel Wells; Kayleigh Curry; Rhiannon D Reed; Erin R Harrell; Shena Gazaway; Sarah Mollman; Sally Engler; Frank Puga; Marie A Bakitas; J Nicholas Dionne-Odom
Journal:  Trials       Date:  2022-06-02       Impact factor: 2.728

Review 3.  Applying the Multiphase Optimization Strategy for the Development of Optimized Interventions in Palliative Care.

Authors:  Rachel D Wells; Kate Guastaferro; Andres Azuero; Christine Rini; Bailey A Hendricks; Chinara Dosse; Richard Taylor; Grant R Williams; Sally Engler; Charis Smith; Rebecca Sudore; Abby R Rosenberg; Marie A Bakitas; J Nicholas Dionne-Odom
Journal:  J Pain Symptom Manage       Date:  2020-11-28       Impact factor: 5.576

Review 4.  Pediatric Concurrent Hospice Care: A Scoping Review and Directions for Future Nursing Research.

Authors:  Lisa C Lindley; Jessica Keim-Malpass; Radion Svynarenko; Melanie J Cozad; Jennifer W Mack; Pamela S Hinds
Journal:  J Hosp Palliat Nurs       Date:  2020-06       Impact factor: 2.131

  4 in total

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