AIM: Describe patient, caregiver and clinician views toward engagement as partners in health research. MATERIALS & METHODS: Online surveys of patients and caregivers managing rare (n = 560 patients, n = 609 caregivers) or chronic conditions (n = 762 patients, n = 776 caregivers) and practicing clinicians (n = 638). RESULTS: Over half of respondents were unfamiliar with the concept of partnering with researchers but most expressed interest in working in a research partnership. Potential facilitators endorsed were ensuring research is meaningful, applying results in an understandable way, and sharing results. Lack of time is a potential barrier. Clinicians were most interested in helping researchers decide on intervention comparisons and identifying implications for clinical practice. CONCLUSION: Patients, caregivers and clinicians are interested in research roles that emphasize usefulness and understandability of research.
AIM: Describe patient, caregiver and clinician views toward engagement as partners in health research. MATERIALS & METHODS: Online surveys of patients and caregivers managing rare (n = 560 patients, n = 609 caregivers) or chronic conditions (n = 762 patients, n = 776 caregivers) and practicing clinicians (n = 638). RESULTS: Over half of respondents were unfamiliar with the concept of partnering with researchers but most expressed interest in working in a research partnership. Potential facilitators endorsed were ensuring research is meaningful, applying results in an understandable way, and sharing results. Lack of time is a potential barrier. Clinicians were most interested in helping researchers decide on intervention comparisons and identifying implications for clinical practice. CONCLUSION:Patients, caregivers and clinicians are interested in research roles that emphasize usefulness and understandability of research.
Authors: Thomas W Concannon; Sean Grant; Vivian Welch; Jennifer Petkovic; Joseph Selby; Sally Crowe; Anneliese Synnot; Regina Greer-Smith; Evan Mayo-Wilson; Ellen Tambor; Peter Tugwell Journal: J Gen Intern Med Date: 2018-12-18 Impact factor: 5.128
Authors: Jennifer M Poger; Hsin-Chieh Yeh; Cindy L Bryce; Jennifer K Carroll; Lan Kong; Erica B Francis; Jennifer L Kraschnewski Journal: Healthc (Amst) Date: 2019-05-14
Authors: Marc L Berger; Harold Sox; Richard J Willke; Diana L Brixner; Hans-Georg Eichler; Wim Goettsch; David Madigan; Amr Makady; Sebastian Schneeweiss; Rosanna Tarricone; Shirley V Wang; John Watkins; C Daniel Mullins Journal: Pharmacoepidemiol Drug Saf Date: 2017-09 Impact factor: 2.890