Literature DB >> 30652537

Incorporating Digital Tools to Improve Clinical Trial Infrastructure: A White Paper From the Digital Engagement Committee of SWOG.

Don S Dizon1, Mina S Sedrak1, Mark A Lewis1, Elise Cook1, Michael J Fisch1, Jennifer R Klemp1, Jonathan Sommers1, AnneMarie Ciccarella1, Julie Gralow1, Wendy Lawton1, Craig Nichols1.   

Abstract

Progress toward improvement in cancer therapy relies on clinical trials. Yet, only a minority of eligible patients with cancer enroll as a result of multiple barriers at the patient, investigator, center, and national level. However, the rise of the Internet and mobile technology has created a slew of tools with medical applications, from Web sites to apps to social media platforms, all of which may aide clinicians in our quest to improve the clinical research enterprise. SWOG is one of five members in the National Cancer Institute's National Clinical Trials Network-the nation's oldest and largest publicly funded cancer research network-and is taking a leadership role in exploring and testing the promise of digital engagement through the empaneling of the Digital Engagement Committee. This article outlines the mission, principles, and priorities of the Digital Engagement Committee and proposes how this work may inform the use of digital tools for the cancer research community and, hopefully, translate to improved outcomes for our patients.

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Year:  2018        PMID: 30652537      PMCID: PMC6668704          DOI: 10.1200/CCI.17.00122

Source DB:  PubMed          Journal:  JCO Clin Cancer Inform        ISSN: 2473-4276


  20 in total

1.  Evidence-based medicine in the era of social media: Scholarly engagement through participation and online interaction.

Authors:  Teresa Chan; N Seth Trueger; Damian Roland; Brent Thoma
Journal:  CJEM       Date:  2017-01-12       Impact factor: 2.410

2.  Using Twitter to Assess the Public Response to the United States Preventive Services Task Force Guidelines on Lung Cancer Screening with Low Dose Chest CT.

Authors:  Siddharth Khasnavis; Andrew B Rosenkrantz; Vinay Prabhu
Journal:  J Digit Imaging       Date:  2017-06       Impact factor: 4.056

3.  Randomized Trial Comparing a Web-Mediated Follow-up With Routine Surveillance in Lung Cancer Patients.

Authors:  Fabrice Denis; Claire Lethrosne; Nicolas Pourel; Olivier Molinier; Yoann Pointreau; Julien Domont; Hugues Bourgeois; Hélène Senellart; Pierre Trémolières; Thibaut Lizée; Jaafar Bennouna; Thierry Urban; Claude El Khouri; Alexandre Charron; Anne-Lise Septans; Magali Balavoine; Sébastien Landry; Philippe Solal-Céligny; Christophe Letellier
Journal:  J Natl Cancer Inst       Date:  2017-09-01       Impact factor: 13.506

4.  Social media in cancer care: highlights, challenges & opportunities.

Authors:  Deanna J Attai; Mina S Sedrak; Matthew S Katz; Michael A Thompson; Patricia F Anderson; Jennifer C Kesselheim; Michael J Fisch; David L Graham; Audun Utengen; Claire Johnston; Robert S Miller; Don S Dizon
Journal:  Future Oncol       Date:  2016-03-30       Impact factor: 3.404

5.  Organizational and physician factors associated with patient enrollment in cancer clinical trials.

Authors:  Sara R Jacobs; Bryan J Weiner; Bryce B Reeve; Morris Weinberger; Lori M Minasian; Marjorie J Good
Journal:  Clin Trials       Date:  2014-06-05       Impact factor: 2.486

Review 6.  Improvement of informed consent and the quality of consent documents.

Authors:  Michael Jefford; Rosemary Moore
Journal:  Lancet Oncol       Date:  2008-05       Impact factor: 41.316

7.  Participation in surgical oncology clinical trials: gender-, race/ethnicity-, and age-based disparities.

Authors:  John H Stewart; Alain G Bertoni; Jennifer L Staten; Edward A Levine; Cary P Gross
Journal:  Ann Surg Oncol       Date:  2007-08-08       Impact factor: 5.344

8.  Twitter response to the United States Preventive Services Task Force recommendations against screening with prostate-specific antigen.

Authors:  Vinay Prabhu; Ted Lee; Stacy Loeb; John H Holmes; Heather T Gold; Herbert Lepor; David F Penson; Danil V Makarov
Journal:  BJU Int       Date:  2015-03-25       Impact factor: 5.588

Review 9.  Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.

Authors:  Adam Nishimura; Jantey Carey; Patricia J Erwin; Jon C Tilburt; M Hassan Murad; Jennifer B McCormick
Journal:  BMC Med Ethics       Date:  2013-07-23       Impact factor: 2.652

10.  Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey.

Authors:  Deanna J Attai; Michael S Cowher; Mohammed Al-Hamadani; Jody M Schoger; Alicia C Staley; Jeffrey Landercasper
Journal:  J Med Internet Res       Date:  2015-07-30       Impact factor: 5.428

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  3 in total

1.  Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health.

Authors:  Elizabeth M Goldberg; Rochelle K Rosen; Don S Dizon; Kirsten J Langdon; Natalie M Davoodi; Tyler B Wray; Nicole R Nugent; Shira I Dunsiger; Megan L Ranney
Journal:  J Med Internet Res       Date:  2022-06-13       Impact factor: 7.076

2.  Living With Neuroendocrine Tumors: Assessment of Quality of Life Through a Mobile Application.

Authors:  Jared R Adams; David Ray; Renee Willmon; Sonia Pulgar; Arvind Dasari
Journal:  JCO Clin Cancer Inform       Date:  2019-07

3.  Using digital tools in the recruitment and retention in randomised controlled trials: survey of UK Clinical Trial Units and a qualitative study.

Authors:  Amanda Blatch-Jones; Jacqueline Nuttall; Abby Bull; Louise Worswick; Mark Mullee; Robert Peveler; Stephen Falk; Neil Tape; Jeremy Hinks; Athene J Lane; Jeremy C Wyatt; Gareth Griffiths
Journal:  Trials       Date:  2020-04-03       Impact factor: 2.279

  3 in total

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