Literature DB >> 30093794

Seeing Beyond the Margins: Challenges to Informed Inclusion of Vulnerable Populations in Research.

Sarah Gehlert1, Jessica Mozersky1.   

Abstract

Entities:  

Mesh：

Year:  2018        PMID： 30093794      PMCID： PMC6077979          DOI： 10.1177/1073110518766006

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN： 1073-1105            Impact factor:   1.718


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  64 in total

1.  Is informed consent enough? Monetary incentives for research participation and the integrity of biomedicine.

Authors:  M Kuczewski
Journal:  Am J Bioeth       Date:  2001       Impact factor: 11.229

Review 2.  Money for research participation: does in jeopardize informed consent?

Authors:  C Grady
Journal:  Am J Bioeth       Date:  2001       Impact factor: 11.229

3.  Public Health in the Precision-Medicine Era.

Authors:  Ronald Bayer; Sandro Galea
Journal:  N Engl J Med       Date:  2015-08-06       Impact factor: 91.245

4.  Context is key for voluntary and informed consent.

Authors:  Jeanne M Sears
Journal:  Am J Bioeth       Date:  2005       Impact factor: 11.229

5.  Clinical research in low-literacy populations: using teach-back to assess comprehension of informed consent and privacy information.

Authors:  Sunil Kripalani; Rachel Bengtzen; Laura E Henderson; Terry A Jacobson
Journal:  IRB       Date:  2008 Mar-Apr

6.  Informed consent: its history, meaning, and present challenges.

Authors:  Tom L Beauchamp
Journal:  Camb Q Healthc Ethics       Date:  2011-10       Impact factor: 1.284

7.  From consent to institutions: designing adaptive governance for genomic biobanks.

Authors:  Kieran C O'Doherty; Michael M Burgess; Kelly Edwards; Richard P Gallagher; Alice K Hawkins; Jane Kaye; Veronica McCaffrey; David E Winickoff
Journal:  Soc Sci Med       Date:  2011-07-02       Impact factor: 4.634

8.  The challenges of collaboration for academic and community partners in a research partnership: points to consider.

Authors:  Lainie Friedman Ross; Allan Loup; Robert M Nelson; Jeffrey R Botkin; Rhonda Kost; George R Smith; Sarah Gehlert
Journal:  J Empir Res Hum Res Ethics       Date:  2010-03       Impact factor: 1.742

9.  Recruitment of minority and underserved populations in the United States: the Centers for Population Health and Health Disparities experience.

Authors:  Electra D Paskett; Katherine W Reeves; John M McLaughlin; Mira L Katz; Ann Scheck McAlearney; Mack T Ruffin; Chanita Hughes Halbert; Cristina Merete; Faith Davis; Sarah Gehlert
Journal:  Contemp Clin Trials       Date:  2008-07-31       Impact factor: 2.226

10.  Developing a simplified consent form for biobanking.

Authors:  Laura M Beskow; Joëlle Y Friedman; N Chantelle Hardy; Li Lin; Kevin P Weinfurt
Journal:  PLoS One       Date:  2010-10-08       Impact factor: 3.240
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  8 in total

1.  A Qualitative Study of Unfairness and Distrust in Smoke-free Housing.

Authors:  Jasilyn A Wray; Brynn E Sheehan; Vaughan W Rees; Diane Cooper; Emma Morgan; Andrew D Plunk
Journal:  Am J Health Behav       Date:  2021-09-30

2.  Practices of caring for nursing students: A clinical learning environment.

Authors:  Jennifer Subke; Charlene Downing; Irene Kearns
Journal:  Int J Nurs Sci       Date:  2020-03-19

Review 3.  Informed Consent in Biomedical Research.

Authors:  Fida K Dankar; Marton Gergely; Samar K Dankar
Journal:  Comput Struct Biotechnol J       Date:  2019-03-25       Impact factor: 7.271

4.  Conducting focus groups in neurodegenerative disease populations: ethical and methodological considerations.

Authors:  Annabel Jones; Philippa Morgan-Jones; Monica Busse; Victoria Shepherd; Fiona Wood
Journal:  BMJ Open       Date:  2021-01-13       Impact factor: 3.006

5.  Reporting of Research Ethics in Studies Focusing on Foot Health in Patients with Rheumatoid Arthritis - A Systematic Review.

Authors:  Minna Stolt; Emilia Kielo-Viljamaa; Anne-Marie Laitinen; Riitta Suhonen; Helena Leino-Kilpi
Journal:  J Empir Res Hum Res Ethics       Date:  2021-10-14       Impact factor: 1.742

6.  Neighborhood poverty is associated with failure to be waitlisted and death during liver transplantation evaluation.

Authors:  Kawthar A Mohamed; Marwan Ghabril; Archita Desai; Eric Orman; Kavish R Patidar; John Holden; Susan Rawl; Naga Chalasani; Chandra Shekhar Kubal; Lauren D Nephew
Journal:  Liver Transpl       Date:  2022-06-26       Impact factor: 6.112

7.  A REDCap-based model for electronic consent (eConsent): Moving toward a more personalized consent.

Authors:  Colleen E Lawrence; Leah Dunkel; Mark McEver; Tiffany Israel; Robert Taylor; Germán Chiriboga; Karin Valentine Goins; Elizabeth J Rahn; Amy S Mudano; Erik D Roberson; Carol Chambless; Virginia G Wadley; Maria I Danila; Melissa A Fischer; Yvonne Joosten; Kenneth G Saag; Jeroan J Allison; Stephenie C Lemon; Paul A Harris
Journal:  J Clin Transl Sci       Date:  2020-04-03

8.  Development of a multi-component intervention to promote participation of Black and Latinx individuals in biomedical research.

Authors:  Maria I Danila; Jeroan J Allison; Karin Valentine Goins; Germán Chiriboga; Melissa Fischer; Melissa Puliafico; Amy S Mudano; Elizabeth J Rahn; Jeanne Merchant; Colleen E Lawrence; Leah Dunkel; Tiffany Israel; Bruce Barton; Fred Jenoure; Tiffany Alexander; Danny Cruz; Marva Douglas; Jacqueline Sims; Al Richmond; Erik D Roberson; Carol Chambless; Paul A Harris; Kenneth G Saag; Stephenie C Lemon
Journal:  J Clin Transl Sci       Date:  2021-06-14
  8 in total

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