Literature DB >> 29854231

Current State of Electronic Consent Processes in Behavioral Health: Outcomes from an Observational Study.

Hiral Soni1, Adela Grando1, Anita Murcko1, Mike Bayuk1, Pramod Chandrashekar1, Madhumita Mukundan1, Meredith Abrams1, Marcela P Aliste1, Megan Hiestand1, Julia Varkey1, Wentao Zhou1, Caroline Horrow2, Michael Saks3, Richard Sharp2, Mary Jo Whitfield4, Mark Callesen4, Christy Dye5, Darwyn Chern5.   

Abstract

An integral element of value-based care is care team access to both physical and behavioral health data. Data release processes in both environments are governed by federal and state statutes. The requirements for obtaining consent are complex and often confusing. Little is known about the consent processes and practices in the behavioral health setting, specifically how patients and surrogates engage in the process and their interactions with electronic consent tools. This study analyzes the consent processes from the patient perspective at two community behavioral health clinics. Outcomes include description of the processes using electronic consent, workflows and consenter-provider interactions. Conclusions include need to streamline and standardize consent technologies and improve consenter engagement. This study supports the development of an electronic consent tool, My Data Choices (MDC), funded by the National Institute of Mental Health, that offers individuals with behavioral health conditions more control over their medical records.

Entities:  

Mesh:

Year:  2018        PMID: 29854231      PMCID: PMC5977724     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN: 1559-4076


  12 in total

1.  Lowering the silent barriers to compliance for patients with low literacy skills.

Authors:  L G Doak; C C Doak
Journal:  Promot Health       Date:  1987 Jul-Aug

Review 2.  Using findings in multimedia learning to inform technology-based behavioral health interventions.

Authors:  Ian David Aronson; Lisa A Marsch; Michelle C Acosta
Journal:  Transl Behav Med       Date:  2013-09       Impact factor: 3.046

3.  Measuring the process and quality of informed consent for clinical research: development and testing.

Authors:  Elizabeth Gross Cohn; Haomiao Jia; Winifred Chapman Smith; Katherine Erwin; Elaine L Larson
Journal:  Oncol Nurs Forum       Date:  2011-07       Impact factor: 2.172

4.  Informed consent in adult psychiatry.

Authors:  Ahmed Bait Amer
Journal:  Oman Med J       Date:  2013-07

5.  Consent form readability and educational levels of potential participants in mental health research.

Authors:  Paul P Christopher; Mary Ellen Foti; Kristen Roy-Bujnowski; Paul S Appelbaum
Journal:  Psychiatr Serv       Date:  2007-02       Impact factor: 3.084

6.  An investigation of the efficacy of electronic consenting interfaces of research permissions management system in a hospital setting.

Authors:  Kapil Chalil Madathil; Reshmi Koikkara; Jihad Obeid; Joel S Greenstein; Iain C Sanderson; Katrina Fryar; Jay Moskowitz; Anand K Gramopadhye
Journal:  Int J Med Inform       Date:  2013-06-10       Impact factor: 4.046

7.  Informed consent and the psychiatric patient.

Authors:  A R Dyer; S Bloch
Journal:  J Med Ethics       Date:  1987-03       Impact factor: 2.903

8.  Patients want granular privacy control over health information in electronic medical records.

Authors:  Kelly Caine; Rima Hanania
Journal:  J Am Med Inform Assoc       Date:  2012-11-26       Impact factor: 4.497

9.  Managing clinical research permissions electronically: A novel approach to enhancing recruitment and managing consents.

Authors:  Iain C Sanderson; Jihad S Obeid; Kapil Chalil Madathil; Katherine Gerken; Katrina Fryar; Daniel Rugg; Colin E Alstad; Randall Alexander; Kathleen T Brady; Anand K Gramopadhye; Jay Moskowitz
Journal:  Clin Trials       Date:  2013-08       Impact factor: 2.486

10.  Development of an electronic research permissions management system to enhance informed consents and capture research authorizations data.

Authors:  Jihad S Obeid; Katherine Gerken; Kapil Chalil Madathil; Daniel Rugg; Colin E Alstad; Katrina Fryar; Randall Alexander; Anand K Gramopadhye; Jay Moskowitz; Iain C Sanderson
Journal:  AMIA Jt Summits Transl Sci Proc       Date:  2013-03-18
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  9 in total

1.  State of the art and a mixed-method personalized approach to assess patient perceptions on medical record sharing and sensitivity.

Authors:  Hiral Soni; Adela Grando; Anita Murcko; Sabrina Diaz; Madhumita Mukundan; Nassim Idouraine; George Karway; Michael Todd; Darwyn Chern; Christy Dye; Mary Jo Whitfield
Journal:  J Biomed Inform       Date:  2019-11-11       Impact factor: 6.317

Review 2.  Key components and IT assistance of participant management in clinical research: a scoping review.

Authors:  Johannes Pung; Otto Rienhoff
Journal:  JAMIA Open       Date:  2020-10-14

3.  METORY: Development of a Demand-Driven Blockchain-Based Dynamic Consent Platform Tailored for Clinical Trials.

Authors:  Ki Young Huh; Sang-Un Jeong; Seol Ju Moon; Min-Ji Kim; Wooseok Yang; Myeonggyu Jeong; Ildae Song; Yong-Geun Kwak; SeungHwan Lee; Min-Gul Kim
Journal:  Front Med (Lausanne)       Date:  2022-05-13

4.  GRANULAR PATIENT CONTROL OF PERSONAL HEALTH INFORMATION: FEDERAL AND STATE LAW CONSIDERATIONS.

Authors:  Michael J Saks; Adela Grando; Anita Murcko; Chase Millea
Journal:  Jurimetrics       Date:  2018

Review 5.  Facing new challenges to informed consent processes in the context of translational research: the case in CARPEM consortium.

Authors:  Elise Jacquier; Pierre Laurent-Puig; Cécile Badoual; Anita Burgun; Marie-France Mamzer
Journal:  BMC Med Ethics       Date:  2021-03-02       Impact factor: 2.652

6.  Behavioral Health Professionals' Perceptions on Patient-Controlled Granular Information Sharing (Part 1): Focus Group Study.

Authors:  Julia Ivanova; Tianyu Tang; Nassim Idouraine; Anita Murcko; Mary Jo Whitfield; Christy Dye; Darwyn Chern; Adela Grando
Journal:  JMIR Ment Health       Date:  2022-04-20

Review 7.  Electronic consenting for conducting research remotely: A review of current practice and key recommendations for using e-consenting.

Authors:  Emily Skelton; Nicholas Drey; Mary Rutherford; Susan Ayers; Christina Malamateniou
Journal:  Int J Med Inform       Date:  2020-09-13       Impact factor: 4.046

8.  Mental health professionals' perceptions on patients control of data sharing.

Authors:  Julia Ivanova; Adela Grando; Anita Murcko; Michael Saks; Mary Jo Whitfield; Christy Dye; Darwyn Chern
Journal:  Health Informatics J       Date:  2020-01-08       Impact factor: 2.934

9.  Mental health professional perspectives on health data sharing: Mixed methods study.

Authors:  Adela Grando; Julia Ivanova; Megan Hiestand; Hiral Soni; Anita Murcko; Michael Saks; David Kaufman; Mary Jo Whitfield; Christy Dye; Darwyn Chern; Jonathan Maupin
Journal:  Health Informatics J       Date:  2020-01-11       Impact factor: 2.934

  9 in total

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