| Literature DB >> 29776901 |
Rika Tanaka1, Anita Banerjee1, Jelena Surikova1, Jacqueline Tracey1, Ada Payne2, Heather Ross3,4, Robert Nolan1,3.
Abstract
BACKGROUND: Self-care behaviors are commonly prescribed to manage both cardiovascular disease and hypertension to reduce modifiable risk factors and improve quality of life. Nevertheless, long-term adherence to self-care recommendations for cardiac patients has been problematic. In cardiac patients, moderated online forums have been found to be particularly useful in supporting maintenance of heart-healthy diet and fewer hospital visits. As such, we developed the e-Forum, a Web-based moderated forum designed to promote continued user engagement and long-term self-care adherence.Entities:
Keywords: cardiovascular disease; qualitative research; support groups
Year: 2018 PMID: 29776901 PMCID: PMC5984275 DOI: 10.2196/humanfactors.8820
Source DB: PubMed Journal: JMIR Hum Factors ISSN: 2292-9495
Figure 1Final version of e-Forum home page. On the basis of user feedback, the final version of the e-Forum home page included a button on the upper left corner that allows users to add a post to the forum without first accessing a topic. It also included a search function as well as a scroll button on the upper right corner.
Figure 3Final version of My Profile page. The final version of the “My Profile” page reflected user feedback in that it guided users to edit their profile by including both an icon and a verbal description of this button’s function.
Demographic characteristics of study participants.
| Demographic variables | Round 1 (n=5), n (%) | Round 2 (n=5), n (%) | Round 3 (n=3), n (%) | |
| 30-49 | 1 (20) | 2 (40) | 0 (0) | |
| 50-69 | 3 (60) | 1 (20) | 2 (67) | |
| >70 | 1 (20) | 2 (40) | 1 (33) | |
| Male | 5 (100) | 2 (40) | 2 (67) | |
| Female | 0 (0) | 3 (60) | 1 (33) | |
| Married/common-law | 3 (60) | 4 (80) | 1 (33) | |
| Single/separated/divorced | 2 (40) | 1 (20) | 2 (67) | |
| High school | 2 (40) | 1 (20) | 0 (0) | |
| Some college/college | 1 (20 | 1 (20) | 1 (33) | |
| Graduate/professional degree | 2 (40) | 3 (60) | 2 (67) | |
| Full-time/part-time | 2 (40) | 2 (40) | 2 (67) | |
| Retired/disability/leave of absence | 3 (60) | 3 (60) | 1 (33) | |
| White | 3 (60) | 4 (80) | 3 (100) | |
| Other | 2 (40) | 1 (20) | 0 (0) | |
| Heart failure/cardiomyopathy | 1 (20) | 4 (80) | 2 (67) | |
| Other cardiovascular disease | 4 (80) | 1 (20) | 1 (33) | |
Self-reported computer and internet use.
| Computer and internet usage variables | Round 1 (n=5), n (%) | Round 2 (n=5), n (%) | Round 3 (n=3), n (%) | |
| Yes | 3 (60) | 2 (40) | 2 (67) | |
| No | 0 (0) | 0 (0) | 1 (33) | |
| Not applicable | 2 (40) | 3 (60) | 0 (0) | |
| Yes | 3 (60) | 2 (40) | 3 (100) | |
| Not applicable | 2 (40) | 3 (60) | 0 (0) | |
| Yes | 5 (100) | 5 (100) | 2 (67) | |
| No | 0 (0) | 0 (0) | 1 (33) | |
| <5 hours per week | 4 (80) | 1 (20) | 1 (33) | |
| >5 hours per week | 1 (20) | 4 (80) | 1 (33) | |
| Not applicable | 0 (0) | 0 (0) | 1 (33) | |
| Yes | 5 (100) | 5 (100) | 3 (100) | |
| <5 hours per week | 3 (60) | 2 (40) | 2 (67) | |
| > 5 hours per week | 2 (40) | 3 (60) | 1 (33) | |
| Yes | 1 (20) | 2 (40) | 2 (67) | |
| No | 4 (80) | 3 (60) | 1 (33) | |
| Somewhat or comfortable | 4 (80) | 3 (60) | 1 (33) | |
| Very comfortable | 1 (20) | 2 (40) | 2 (67) | |
| Comfortable | 4 (80) | 3 (60) | 1 (33) | |
| Very comfortable | 1 (20) | 2 (40) | 2 (67) | |
| Not at all comfortable | 1 (20) | 0 (0) | 0 (0) | |
| Somewhat or comfortable | 3 (60) | 3 (60) | 1 (33) | |
| Very comfortable | 0 (0) | 0 (0) | 1 (33) | |
| Not sure | 1 (20) | 2 (40) | 1 (33) | |
User satisfaction with e-Forum.
| User satisfaction assessment | Round 1 (n=5), | Round 2 (n=5), | Round 3 (n=3), |
| I learned how to use the forum quickly and easily | 4 (0.6) | 5 (0.6) | 5 (0.6) |
| I can find the information I am looking for on the forum with no problems | 4 (1.3) | 5 (0.6) | 5 (0.6) |
| I can make and reply to posts on the forum with no problems | 4 (0.8) | 4 (0.9) | 5 (0.6) |
| I am confident that I can remember how to get around the forum on my own every time I log on | 4 (0.6) | 4 (0.6) | 4 (1.0) |
| If I get lost on the forum, I am confident that I can find my way again | 4 (0.6) | 4 (0.8) | 4 (1.0) |
| I am satisfied with the forum | 4 (1.1) | 4 (0.0) | 4 (0.6) |
| I would use the forum regularly to help me better manage my heart condition | 5 (0.5) | 4 (1.1) | 4 (0.6) |
Content analysis of usability of e-Forum.
| Themes | Round 1 (n=5) | Round 2 (n=5) | Round 3 (n=3) | ||||||||||
| C/Ia, n | Ucsb, n | Pc, n | Mean # of C/I per Pd | C/I, n | Ucs, n | P, n | Mean # of | C/I, n | Ucs, n | P, n | Mean # of | ||
| Positive comments | 14 | 5 | 4 | 3.5 | 10 | 3 | 5 | 2.0 | 8 | 2 | 3 | 2.7 | |
| Negative comments | 8 | 5 | 3 | 2.7 | 16 | 9 | 4 | 4.0 | 4 | 3 | 2 | 2.0 | |
| Neutral comments | 19 | 12 | 5 | 3.8 | 20 | 12 | 4 | 5.0 | 14 | 5 | 3 | 4.7 | |
| Positive comments | 12 | 2 | 4 | 3.0 | 9 | 2 | 5 | 1.8 | 5 | 2 | 2 | 2.5 | |
| Negative comments | 1 | 1 | 1 | 1.0 | 4 | 2 | 3 | 1.3 | 1 | 1 | 1 | 1.0 | |
| Positive comments | 15 | 5 | 5 | 3.0 | 21 | 5 | 5 | 4.2 | 10 | 4 | 3 | 3.3 | |
| Negative comments | 10 | 6 | 2 | 5.0 | 15 | 8 | 4 | 3.8 | 1 | 1 | 1 | 1.0 | |
| Correct navigation | 69 | 17 | 5 | 13.8 | 70 | 16 | 5 | 14.0 | 44 | 16 | 3 | 14.7 | |
| Navigation errors | 21 | 13 | 5 | 4.2 | 19 | 9 | 5 | 3.8 | 11 | 7 | 3 | 3.7 | |
| Satisfaction with | 14 | 3 | 4 | 3.5 | 9 | 3 | 5 | 1.8 | 15 | 3 | 3 | 5.0 | |
| Potential barriers | 12 | 4 | 4 | 3.0 | 5 | 2 | 3 | 1.7 | 4 | 1 | 2 | 2.0 | |
| Description of use | 18 | 5 | 5 | 3.6 | 15 | 4 | 5 | 3.0 | 8 | 3 | 3 | 2.7 | |
aComments or incidents.
bUnique comments.
cParticipants reported.
dComments or incidents per participant.
Sample comments of each of the themes.
| Themes | Examples | |
| Positive comments | “...the [highlighted] topics...active living, eating healthy, get motivated,...I feel these are all the topics that...people would be interested in.” [B5, round 2] | |
| “...I’m...assuming that with every reply, I’ll get something in my inbox as well, so that’s...good...[because]...after its been forwarded it’ll just send me an email and then I’ll know okay, someone’s replied and...have the answer to my question okay...that’s good.” [B4, round 2] | ||
| Negative comments | “I would definitely use [the forum] if there was more...information and the content was more rich.” [A5, round 1] | |
| “...it wasn’t clear to me what criteria I was supposed to use [to rate posts]...[there] was a bit of guess work involved in there.” [A2, round 1] | ||
| Neutral comments | “...I would make it mobile friendly, I don’t know if it’s a mobile friendly site.” [ B5, round 2] | |
| “Another [topic] is sleeping...Sleeping is critically important...I would find it really interesting to understand how people approach that...what they think are good rules to follow, how they're doing it...” [C1, round 3] | ||
| Positive comments | “It’s very clear...I think once you go through it once or twice, it [is] very simple to...follow.” [A4, round 1] | |
| “This is very user friendly; I don’t think navigating it is a problem...It’s fairly intuitive and easy to follow. I don’t think anyone who uses the internet regularly should have any difficulty...navigating it.” [A5, round 1] | ||
| Negative comments | “It was a little difficult [to navigate]...I should say not very difficult because I’ve had an idea with the keyboard and I've looked at [something] similar to this...but [for] some people it may be very intimidating for them.” [B3, round 2] | |
| “...there’s too many pop up boxes...there’s too many steps...[for something that] could be 1 step there’s...3 steps instead...and I feel like people will get confused...” [B5, round 2] | ||
| Positive comments | “I think [the layout is] very simple and nice; I like the simplicity, I like the use friendliness.” [A5, round 1] | |
| “It’s really well done, like the font and the color, and when you need to know something, it pops up where it needs to be...all of the buttons are great, when you touch them they work the first time...I think it’s an excellent website.” [C2, round 3] | ||
| Negative comments | “[I liked least] the cumbersome aspects of the webpage, having to click on that edit button which I didn't know was an edit button in the first place, unless I roll my mouse over it...” [B1, round 2] | |
| “...[the layout is] a little too busy; keep it simple is the right idea.” [ A1, round 1] | ||
| Satisfaction with forum | “The internet is a source of a lot of useful information but can also be a source of a lot of...misinformation, so...the moderation must be there, otherwise you [end up] working against your own best interests.” [A2, round 1] | |
| “I think [this forum]...would come in handy [for other heart patients] ... [to] check on how they’re doing, and how other people are doing. And it’s pretty easy to use it on a computer.” [C3, round 3] | ||
| Potential barriers | “When it comes to personal life...like health... [people] are not as open, for whatever reason...sometimes they don’t want to talk about it, they just want to leave it alone.” [ A3, round 1] | |
| “There [are] some people that…wouldn’t use it at all, just [because] they don’t have a computer [or] maybe they’re not going to adapt to a computer program and find it very difficult [and] intimidating.” [A4, round 1] | ||
| Description of use | “Yeah [I would use a forum like this]. I would go in and see once you start having situations...with your health you see what other people are doing for exercising, eating healthy…” [A3, round 1] | |
| “It’s the time in between your [appointments] when you have all the questions [about your diagnosis or procedure]...so having something as a resource to refer to would be something good.” [B4, round 1] | ||