Literature DB >> 29423568

A Two-Phase Approach to Developing SNAP: an iPhone Application to Support Appointment Scheduling and Management for Women with a BRCA Mutation.

Courtney Lynam Scherr1,2, Jessica L Feuston3, Dawn M Nixon4, Stephanie A Cohen4.   

Abstract

Professional organizations provide surveillance guidelines for BRCA1 and BRCA2 (BRCA) carriers with intact breasts and/or ovaries to facilitate early cancer detection. However, literature indicates adherence to surveillance guidelines is inconsistent at best. Using the Messaging Model for Health Communication Campaigns framework, we undertook a two-phase formative research approach to develop an intervention to promote adherence to surveillance guidelines. Discussion groups identified preferred intervention format and function in phase I. Findings indicated carriers desired a phone application (app) to assist with surveillance management and appointment tracking. Thus, an iPhone app for carriers to track appointments based on published surveillance guidelines was developed. In phase II, we obtained feedback from BRCA carriers via a survey during a prototype demonstration at a regional conference. Participants in phase II wanted reminder capabilities and the ability to add and modify information fields. This feedback informed intervention modifications, resulting in the Scheduling Necessary Advised Procedures (SNAP) iPhone app currently being pilot tested by BRCA carriers throughout the USA.

Entities:  

Keywords:  BRCA; Cancer surveillance; Communication intervention; Formative research; Hereditary breast and ovarian cancer; mhealth

Mesh:

Year:  2018        PMID: 29423568     DOI: 10.1007/s10897-018-0222-z

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  10 in total

1.  Utilization of breast cancer screening in a clinically based sample of women after BRCA1/2 testing.

Authors:  Beth N Peshkin; Marc D Schwartz; Claudine Isaacs; Chanita Hughes; David Main; Caryn Lerman
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2002-10       Impact factor: 4.254

2.  Center for Disease Control's Diethylstilbestrol Update: a case for effective operationalization of messaging in social marketing practice.

Authors:  Marifran Mattson; Ambar Basu
Journal:  Health Promot Pract       Date:  2008-12-30

3.  Genetic testing for a BRCA1 mutation: prophylactic surgery and screening behavior in women 2 years post testing.

Authors:  Jeffrey R Botkin; Ken R Smith; Robert T Croyle; Bonnie J Baty; Jean E Wylie; Debra Dutson; Anna Chan; Heidi A Hamann; Caryn Lerman; Jamie McDonald; Vickie Venne; John H Ward; Elaine Lyon
Journal:  Am J Med Genet A       Date:  2003-04-30       Impact factor: 2.802

4.  Some Lingering Concerns about the Precision Medicine Initiative: Currents in Contemporary Bioethics.

Authors:  Mark A Rothstein
Journal:  J Law Med Ethics       Date:  2016-09       Impact factor: 1.718

5.  Risk management options elected by women after testing positive for a BRCA mutation.

Authors:  Christine Garcia; Jacqueline Wendt; Liisa Lyon; Jennifer Jones; Ramey D Littell; Mary Anne Armstrong; Tina Raine-Bennett; C Bethan Powell
Journal:  Gynecol Oncol       Date:  2013-12-16       Impact factor: 5.482

6.  Genetic/Familial High-Risk Assessment: Breast and Ovarian, Version 2.2015.

Authors:  Mary B Daly; Robert Pilarski; Jennifer E Axilbund; Michael Berry; Saundra S Buys; Beth Crawford; Meagan Farmer; Susan Friedman; Judy E Garber; Seema Khan; Catherine Klein; Wendy Kohlmann; Allison Kurian; Jennifer K Litton; Lisa Madlensky; P Kelly Marcom; Sofia D Merajver; Kenneth Offit; Tuya Pal; Huma Rana; Gwen Reiser; Mark E Robson; Kristen Mahoney Shannon; Elizabeth Swisher; Nicoleta C Voian; Jeffrey N Weitzel; Alison Whelan; Myra J Wick; Georgia L Wiesner; Mary Dwyer; Rashmi Kumar; Susan Darlow
Journal:  J Natl Compr Canc Netw       Date:  2016-02       Impact factor: 11.908

7.  Risk-reducing surgery, screening and chemoprevention practices of BRCA1 and BRCA2 mutation carriers: a prospective cohort study.

Authors:  K-A Phillips; M A Jenkins; G J Lindeman; S A McLachlan; J M McKinley; P C Weideman; J L Hopper; M L Friedlander
Journal:  Clin Genet       Date:  2006-09       Impact factor: 4.438

8.  Bilateral prophylactic oophorectomy and ovarian cancer screening following BRCA1/BRCA2 mutation testing.

Authors:  Marc D Schwartz; Elizabeth Kaufman; Beth N Peshkin; Claudine Isaacs; Chanita Hughes; Tiffani DeMarco; Clinton Finch; Caryn Lerman
Journal:  J Clin Oncol       Date:  2003-11-01       Impact factor: 44.544

9.  NSGC practice guideline: risk assessment and genetic counseling for hereditary breast and ovarian cancer.

Authors:  Janice L Berliner; Angela Musial Fay; Shelly A Cummings; Brittany Burnett; Todd Tillmanns
Journal:  J Genet Couns       Date:  2012-11-28       Impact factor: 2.537

10.  Risks of Breast, Ovarian, and Contralateral Breast Cancer for BRCA1 and BRCA2 Mutation Carriers.

Authors:  Karoline B Kuchenbaecker; John L Hopper; Daniel R Barnes; Kelly-Anne Phillips; Thea M Mooij; Marie-José Roos-Blom; Sarah Jervis; Flora E van Leeuwen; Roger L Milne; Nadine Andrieu; David E Goldgar; Mary Beth Terry; Matti A Rookus; Douglas F Easton; Antonis C Antoniou; Lesley McGuffog; D Gareth Evans; Daniel Barrowdale; Debra Frost; Julian Adlard; Kai-Ren Ong; Louise Izatt; Marc Tischkowitz; Ros Eeles; Rosemarie Davidson; Shirley Hodgson; Steve Ellis; Catherine Nogues; Christine Lasset; Dominique Stoppa-Lyonnet; Jean-Pierre Fricker; Laurence Faivre; Pascaline Berthet; Maartje J Hooning; Lizet E van der Kolk; Carolien M Kets; Muriel A Adank; Esther M John; Wendy K Chung; Irene L Andrulis; Melissa Southey; Mary B Daly; Saundra S Buys; Ana Osorio; Christoph Engel; Karin Kast; Rita K Schmutzler; Trinidad Caldes; Anna Jakubowska; Jacques Simard; Michael L Friedlander; Sue-Anne McLachlan; Eva Machackova; Lenka Foretova; Yen Y Tan; Christian F Singer; Edith Olah; Anne-Marie Gerdes; Brita Arver; Håkan Olsson
Journal:  JAMA       Date:  2017-06-20       Impact factor: 56.272

  10 in total
  4 in total

1.  Introduction to the "Technology in Practice" Special Issue.

Authors:  Vickie Venne; Megan Doerr
Journal:  J Genet Couns       Date:  2018-03-01       Impact factor: 2.537

Review 2.  Systemic Barriers to Risk-Reducing Interventions for Hereditary Cancer Syndromes: Implications for Health Care Inequities.

Authors:  Kathleen F Mittendorf; Sarah Knerr; Tia L Kauffman; Nangel M Lindberg; Katherine P Anderson; Heather Spencer Feigelson; Marian J Gilmore; Jessica Ezzell Hunter; Galen Joseph; Stephanie A Kraft; Jamilyn M Zepp; Sapna Syngal; Benjamin S Wilfond; Katrina A B Goddard
Journal:  JCO Precis Oncol       Date:  2021-11-03

3.  Development and Testing of a Decision Aid for Unaffected Women with a BRCA1 or BRCA2 Mutation.

Authors:  Terri Jabaley; Meghan L Underhill-Blazey; Donna L Berry
Journal:  J Cancer Educ       Date:  2020-04       Impact factor: 2.037

4.  Mobilizing Breast Cancer Prevention Research Through Smartphone Apps: A Systematic Review of the Literature.

Authors:  Lauren C Houghton; Renata E Howland; Jasmine A McDonald
Journal:  Front Public Health       Date:  2019-11-06
  4 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.