| Literature DB >> 29151851 |
Norman J Stomski1, Paul Morrison1.
Abstract
BACKGROUND: Facilitation of service user participation in the co-production of mental healthcare planning and service delivery is an integral component of contemporary mental health policy and clinical guidelines. However, many service users continue to experience exclusion from the planning of their care. This review synthesizes qualitative research about participation in mental healthcare and articulates essential processes that enable service user participation in mental health care.Entities:
Keywords: Mental health; Meta-synthesis; Participation
Year: 2017 PMID: 29151851 PMCID: PMC5678577 DOI: 10.1186/s13033-017-0174-y
Source DB: PubMed Journal: Int J Ment Health Syst ISSN: 1752-4458
Fig. 1Implementation of search strategies and selection of studies
Summary of the characteristics of the included studies
| Source/country | Purpose | Method/data collection | CASP total |
|---|---|---|---|
| Bennetts et al. [ | To explore what managers believe consumer participation to be, how they view the role of consumer consultants, and how they developed their understandings of consumer participation | Thematic analysis involving semi-structured interviews with 7 senior mental health managers working within an organization that had included consumer participation for many years | CASP = 20 |
| Chong et al. [ | To explore the perceptions of different healthcare professionals on shared decision-making and current interprofessional collaboration in mental healthcare | Thematic analysis involving interviews with 11 pharmacists, 7 nurses, 4 psychiatrists, 4 general practitioners, 2 social workers, 2 occupational therapists, and 1 psychologist | CASP = 18 |
| Connor and Wilson [ | To obtain the views of a sample of users of mental health services regarding user involvement | Grounded theory study involving focus groups with 31 service users | CASP = 22 |
| El Enany et al. [ | To explore the role of the user, and the basis of their ‘lay’ knowledge, in user involvement processes | Deductive reasoning involving semi-structured interviews with 35 health professionals and 28 service users | CASP = 18 |
| Elstad and Eide [ | To add to our understanding of user participation by exploring the experiences of users and professionals within a community mental health service | Thematic analysis involving interviews with 10 service users of community mental health centres | CASP = 24 |
| Galon and Graor [ | To describe the social process of engagement in primary care treatment from the perspective of persons with severe and persistent mental illness | Grounded theory study involving semi-structured interviews with 32 service users | CASP = 21 |
| Goodwin and Happell [ | To contribute to the body of knowledge regarding psychiatric or mental health nurses’ attitudes toward consumer and carer participation in mental health care | Content analysis involving focus groups with 30 psychiatric nurses | CASP = 16 |
| Kidd et al. [ | To explore the perceptions of consumer advocates and clinicians about the concept of consumer participation in mental health services and examine how consumer participation policy initiatives are enacted at a service delivery level | Thematic analysis involving semi-structured interviews with 8 health professionals and 2 consumer representatives, all of whom were members of a steering committee of mental health services | CASP = 19 |
| Lammers and Happell [ | To explore and discuss the perceptions of mental health service consumers regarding the reality of available opportunities for participation in the development, delivery and evaluation of mental health services | Thematic analysis involving in-depth interviews with 15 service users | CASP = 19 |
| Lester et al. [ | To describe the views on, potential for, and types of patient involvement in primary care from the perspectives of primary care health professionals and patients with serious mental illness | Thematic analysis involving 18 focus groups with 45 service users, 39 general practitioners, and 8 practice nurses | CASP = 14 |
| Lloyd [ | To identify the methods of empowerment used by mental health nurses | Thematic analysis involving semi-structured interviews with 10 mental health nurses | CASP = 23 |
| Matthias et al. [ | To explore how consumers and providers make decisions in medication management consultations | Thematic analysis of directly observed medical consultation involving 4 providers, each of whom provided one consultation with 10 service users | CASP = 16 |
| Petersen et al. [ | To gain insight into how the user’s understand and experience user involvement in mental health rehabilitation | Ethnographic study involving field observations and interviews with 12 service users | CASP = 24 |
| Restall and Strutt [ | To explore the perspectives of people who use mental health services on participation in mental health service planning and evaluation | Thematic analysis involving interviews and focus groups with 63 service users | CASP = 13 |
| Rise et al. [ | To investigate and compare service users’ and service providers’ own definitions of patient and public involvement and their implications | Grounded theory study involving semi-structured interviews with 20 patients, 13 public representatives and 44 health service providers/managers | CASP = 18 |
| Rise et al. [ | To investigate the experiences of professionals and service user representatives who took part in the implementation of a comprehensive development plan intended to enhance user involvement in a mental health hospital | Thematic analysis involving interviews with 5 service users and 13 health professionals. Ten meetings between service users and health professionals were also observed and notes were taken | CASP = 18 |
| Robert [ | To explore the involvement of mental health service users in the redesign of in-patient mental health services | Thematic analysis involving 65 semi-structured exploratory interviews undertaken with project managers, team members, user representatives and other key informants and stakeholders | CASP = 16 |
| Solbjor et al. [ | To investigate mental health service users’ and providers’ views on patient participation during episodes of mental illness | Grounded theory study involving interviews with 17 patients, three service user representatives, 17 health professionals and 8 managers | CASP = 18 |
| Summers [ | To explore psychiatrists’ views on active user involvement in the development of local NHS services | Thematic analysis involving semi-structured interviews with 14 psychiatrists | CASP = 16 |
Results of the critical appraisal
| No/scant details (%) | Addressed but not fully detailed (%) | Comprehensively addressed (%) | |
|---|---|---|---|
| Was the research design appropriate to address the aims of the research? | 52.6 | 26.3 | 21.1 |
| Was the recruitment strategy appropriate to the aims of the research? | 0 | 15.8 | 84.2 |
| Was the data collected in a way that addressed the research issue? | 10.5 | 47.4 | 42.1 |
| Has the relationship between researcher and participants been adequately considered? | 73.7 | 5.3 | 21.1 |
| Have ethical issues been taken into consideration? | 26.3 | 36.8 | 36.8 |
| Was the data analysis sufficiently rigorous? | 15.8 | 26.3 | 57.9 |
| Is there a clear statement of findings? | 5.3 | 0 | 94.7 |
| How valuable is the research? | 5.3 | 5.3 | 89.5 |