Literature DB >> 23415588

A paradox in healthcare service development: professionalization of service users.

Nellie El Enany1, Graeme Currie, Andy Lockett.   

Abstract

Policy makers increasingly regard user involvement as an important dimension of service development. However, research suggests user involvement is often unrepresentative and tokenistic. Drawing on an in-depth case study in mental health carried out in 2008-2012, we examine the processes that give rise to unrepresentative service user involvement. We show that through a combination of self-selection by those wanting to be involved, and professionals actively selecting, educating and socializing certain users, unrepresentative involvement occurs. The selected users tend to be more articulate and able to work with professionals, and are complicit in the processes which give rise to unrepresentative involvement. They pursue their own professional status by delineating a distinctive body of 'expert' management knowledge that bounds their jurisdiction, and from which they can exclude those they perceive as 'less expert' users.
Copyright © 2013 Elsevier Ltd. All rights reserved.

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Year:  2013        PMID: 23415588     DOI: 10.1016/j.socscimed.2013.01.004

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  22 in total

1.  'A limpet on a ship': Spatio-temporal dynamics of patient and public involvement in research.

Authors:  Stan Constantina Papoulias; Felicity Callard
Journal:  Health Expect       Date:  2021-03-21       Impact factor: 3.377

2.  Spaces for Citizen Involvement in Healthcare: An Ethnographic Study.

Authors:  Alicia Renedo; Cicely Marston
Journal:  Sociology       Date:  2015-06

3.  A little more conversation please? Qualitative study of researchers' and patients' interview accounts of training for patient and public involvement in clinical trials.

Authors:  Louise Dudley; Carrol Gamble; Alison Allam; Philip Bell; Deborah Buck; Heather Goodare; Bec Hanley; Jennifer Preston; Alison Walker; Paula Williamson; Bridget Young
Journal:  Trials       Date:  2015-04-27       Impact factor: 2.279

4.  Developing patient-centred care: an ethnographic study of patient perceptions and influence on quality improvement.

Authors:  Alicia Renedo; Cicely Marston
Journal:  BMC Health Serv Res       Date:  2015-04-23       Impact factor: 2.655

5.  Priorities for methodological research on patient and public involvement in clinical trials: A modified Delphi process.

Authors:  Anna Kearney; Paula Williamson; Bridget Young; Heather Bagley; Carrol Gamble; Simon Denegri; Delia Muir; Natalie A Simon; Stephen Thomas; Jim T Elliot; Helen Bulbeck; Joanna C Crocker; Claire Planner; Claire Vale; Mike Clarke; Tim Sprosen; Kerry Woolfall
Journal:  Health Expect       Date:  2017-06-15       Impact factor: 3.377

6.  Major health service transformation and the public voice: conflict, challenge or complicity?

Authors:  Graham P Martin; Pam Carter; Mike Dent
Journal:  J Health Serv Res Policy       Date:  2017-09-04

7.  Liminality in the occupational identity of mental health peer support workers: A qualitative study.

Authors:  Alan Simpson; Candice Oster; Eimear Muir-Cochrane
Journal:  Int J Ment Health Nurs       Date:  2017-05-26       Impact factor: 3.503

8.  Patient involvement in a qualitative meta-synthesis: lessons learnt.

Authors:  Kerin Bayliss; Bella Starling; Karim Raza; Eva C Johansson; Codruta Zabalan; Susan Moore; Diana Skingle; Tiina Jasinski; Susan Thomas; Rebecca Stack
Journal:  Res Involv Engagem       Date:  2016-05-12

9.  Working with public contributors to improve the patient experience at the Manchester Clinical Research Facility: an evaluation of the Experience Based Design approach.

Authors:  Kerin Bayliss; Rebecca Prince; Hal Dewhurst; Suzanne Parsons; Leah Holmes; Paul Brown
Journal:  Res Involv Engagem       Date:  2017-04-26

Review 10.  Participation in mental healthcare: a qualitative meta-synthesis.

Authors:  Norman J Stomski; Paul Morrison
Journal:  Int J Ment Health Syst       Date:  2017-11-07
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