Literature DB >> 30034208

Health Research with Big Data: Time for Systemic Oversight.

Effy Vayena1, Alessandro Blasimme2.   

Abstract

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Year:  2018        PMID: 30034208      PMCID: PMC6052857          DOI: 10.1177/1073110518766026

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.718


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  51 in total

Review 1.  From genetic privacy to open consent.

Authors:  Jeantine E Lunshof; Ruth Chadwick; Daniel B Vorhaus; George M Church
Journal:  Nat Rev Genet       Date:  2008-05       Impact factor: 53.242

2.  Informed Consent and the Disclosure of Clinical Results to Research Participants.

Authors:  Alessandro Blasimme; Celine Moret; Samia A Hurst; Effy Vayena
Journal:  Am J Bioeth       Date:  2017-07       Impact factor: 11.229

3.  From consent to institutions: designing adaptive governance for genomic biobanks.

Authors:  Kieran C O'Doherty; Michael M Burgess; Kelly Edwards; Richard P Gallagher; Alice K Hawkins; Jane Kaye; Veronica McCaffrey; David E Winickoff
Journal:  Soc Sci Med       Date:  2011-07-02       Impact factor: 4.634

4.  Disclosing results to genomic research participants: differences that matter.

Authors:  Alessandro Blasimme; Alexandra Soulier; Sophie Julia; Samantha Leonard; Anne Cambon-Thomsen
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

5.  Genomic incidental findings: reducing the burden to be fair.

Authors:  Velizara Anastasova; Alessandro Blasimme; Sophie Julia; Anne Cambon-Thomsen
Journal:  Am J Bioeth       Date:  2013       Impact factor: 11.229

Review 6.  Digital health: meeting the ethical and policy challenges.

Authors:  Effy Vayena; Tobias Haeusermann; Afua Adjekum; Alessandro Blasimme
Journal:  Swiss Med Wkly       Date:  2018-01-16       Impact factor: 2.193

7.  Broad versus blanket consent for research with human biological samples.

Authors:  David Wendler
Journal:  Hastings Cent Rep       Date:  2013 Sep-Oct       Impact factor: 2.683

8.  Linking Broad Consent to Biobank Governance: Support From a Deliberative Public Engagement in California.

Authors:  Sarah B Garrett; Daniel Dohan; Barbara A Koenig
Journal:  Am J Bioeth       Date:  2015       Impact factor: 11.229

9.  Genetic incidental findings: autonomy regained?

Authors:  Effy Vayena; John Tasioulas
Journal:  Genet Med       Date:  2013-08-01       Impact factor: 8.822

10.  From the principles of genomic data sharing to the practices of data access committees.

Authors:  Mahsa Shabani; Bartha Maria Knoppers; Pascal Borry
Journal:  EMBO Mol Med       Date:  2015-05       Impact factor: 12.137

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  22 in total

1.  Using Participatory Design to Inform the Connected and Open Research Ethics (CORE) Commons.

Authors:  John Harlow; Nadir Weibel; Rasheed Al Kotob; Vincent Chan; Cinnamon Bloss; Rubi Linares-Orozco; Michelle Takemoto; Camille Nebeker
Journal:  Sci Eng Ethics       Date:  2019-02-06       Impact factor: 3.525

2.  Identifying Ethical Considerations for Machine Learning Healthcare Applications.

Authors:  Danton S Char; Michael D Abràmoff; Chris Feudtner
Journal:  Am J Bioeth       Date:  2020-11       Impact factor: 11.229

3.  Clinical research underlies ethical integration of healthcare artificial intelligence.

Authors:  Melissa D McCradden; Elizabeth A Stephenson; James A Anderson
Journal:  Nat Med       Date:  2020-09       Impact factor: 53.440

4.  Achieving Value in Population Health Big Data.

Authors:  Daniel D Bu; Shelley H Liu; Bian Liu; Yan Li
Journal:  J Gen Intern Med       Date:  2020-05-11       Impact factor: 5.128

5.  Machine learning in medicine: Addressing ethical challenges.

Authors:  Effy Vayena; Alessandro Blasimme; I Glenn Cohen
Journal:  PLoS Med       Date:  2018-11-06       Impact factor: 11.069

Review 6.  Informed Consent in Biomedical Research.

Authors:  Fida K Dankar; Marton Gergely; Samar K Dankar
Journal:  Comput Struct Biotechnol J       Date:  2019-03-25       Impact factor: 7.271

Review 7.  Elements of Trust in Digital Health Systems: Scoping Review.

Authors:  Afua Adjekum; Alessandro Blasimme; Effy Vayena
Journal:  J Med Internet Res       Date:  2018-12-13       Impact factor: 5.428

8.  Governance of a Learning Health Care System for Oncology: Patient Recommendations.

Authors:  Rochelle D Jones; Chris Krenz; Kent A Griffith; Rebecca Spence; Angela R Bradbury; Raymond De Vries; Sarah T Hawley; Robin Zon; Sage Bolte; Navid Sadeghi; Richard L Schilsky; Reshma Jagsi
Journal:  JCO Oncol Pract       Date:  2020-10-23

Review 9.  Considerations for ethics review of big data health research: A scoping review.

Authors:  Marcello Ienca; Agata Ferretti; Samia Hurst; Milo Puhan; Christian Lovis; Effy Vayena
Journal:  PLoS One       Date:  2018-10-11       Impact factor: 3.240

10.  "Who is watching the watchdog?": ethical perspectives of sharing health-related data for precision medicine in Singapore.

Authors:  Tamra Lysaght; Angela Ballantyne; Vicki Xafis; Serene Ong; Gerald Owen Schaefer; Jeffrey Min Than Ling; Ainsley J Newson; Ing Wei Khor; E Shyong Tai
Journal:  BMC Med Ethics       Date:  2020-11-19       Impact factor: 2.652

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