Literature DB >> 28839617

Inflammatory bowel disease in transition: challenges and solutions in adolescent care.

Sara McCartney.   

Abstract

The prevalence of inflammatory bowel disease (IBD) in childhood is increasing with a phenotype now established as one of complicated and extensive disease. Adolescent patients form a significant proportion of those requiring lifelong care. One of the most important steps in establishing a personal ability to effectively manage chronic disease is appropriate education, communication and a good relationship with healthcare professionals and a successful transition programme and subsequent transfer to adult care underpins this. It is vital to build trust and include parental input while transferring responsibility to the young person Although the literature confirms that the majority of paediatric gastroenterology units now have planned provision for transfer, the quality and appropriateness of these services have not been assessed or audited. This article discusses the drivers for establishing and improving transition services from both the patient's and healthcare provider's perspective. This heterogeneity of provision of healthcare for adolescents needs to be addressed and the experience of young people themselves is good evidence of this need. Barriers to optimal care need to be identified and managed and healthcare providers need to 'buy in' to establishing a flexible, patient focused achievable service for their patient population.

Entities:  

Year:  2011        PMID: 28839617      PMCID: PMC5517229          DOI: 10.1136/fg.2010.002741

Source DB:  PubMed          Journal:  Frontline Gastroenterol        ISSN: 2041-4137


  16 in total

1.  Transition of the patient with inflammatory bowel disease from pediatric to adult care: recommendations of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition.

Authors:  Robert Baldassano; George Ferry; Anne Griffiths; David Mack; James Markowitz; Harland Winter
Journal:  J Pediatr Gastroenterol Nutr       Date:  2002-03       Impact factor: 2.839

2.  Transition clinics for adolescents with chronic gastrointestinal disease in the UK and Ireland.

Authors:  Ieuan H Davies; Huw R Jenkins
Journal:  J Pediatr Gastroenterol Nutr       Date:  2003-04       Impact factor: 2.839

Review 3.  Transitioning care of the pediatric recipient to adult caregivers.

Authors:  Janet E McDonagh; Deirdre A Kelly
Journal:  Pediatr Clin North Am       Date:  2003-12       Impact factor: 3.278

4.  Transition clinics in paediatric gastroenterology in the United Kingdom: room for improvement.

Authors:  Rafeeq Muhammed; Huw Jenkins
Journal:  J Pediatr Gastroenterol Nutr       Date:  2010-08       Impact factor: 2.839

5.  Barriers to adherence among adolescents with inflammatory bowel disease.

Authors:  Rachel Neff Greenley; Mike Stephens; Alyssa Doughty; Tara Raboin; Subra Kugathasan
Journal:  Inflamm Bowel Dis       Date:  2010-01       Impact factor: 5.325

6.  Inflammatory bowel disease in children and adolescents: recommendations for diagnosis--the Porto criteria.

Authors: 
Journal:  J Pediatr Gastroenterol Nutr       Date:  2005-07       Impact factor: 2.839

7.  Self-management of older adolescents with inflammatory bowel disease: a pilot study of behavior and knowledge as prelude to transition.

Authors:  Laurie N Fishman; Renée M Barendse; Elizabeth Hait; Cynthia Burdick; Janis Arnold
Journal:  Clin Pediatr (Phila)       Date:  2010-09-13       Impact factor: 1.168

8.  Transition of patients with inflammatory bowel disease from pediatric to adult care.

Authors:  A Dabadie; F Troadec; D Heresbach; L Siproudhis; M Pagenault; J-F Bretagne
Journal:  Gastroenterol Clin Biol       Date:  2008-05-08

Review 9.  Transition of children with inflammatory bowel disease: big task, little evidence.

Authors:  Wael El-Matary
Journal:  World J Gastroenterol       Date:  2009-08-14       Impact factor: 5.742

10.  Transitional care for adolescents with juvenile idiopathic arthritis: a Delphi study.

Authors:  K L Shaw; T R Southwood; J E McDonagh
Journal:  Rheumatology (Oxford)       Date:  2004-05-18       Impact factor: 7.580

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  2 in total

1.  Maintaining clinical governance when giving telephone advice.

Authors:  William Alazawi; Kosh Agarwal; Abid Suddle; Varuna Aluvihare; Michael A Heneghan
Journal:  Frontline Gastroenterol       Date:  2013-07-06

2.  A multidisciplinary team model of caring for patients with perianal Crohn's disease incorporating a literature review, topical therapy and personal practice.

Authors:  Vikki Garrick; Emily Stenhouse; Graham Haddock; Richard K Russell
Journal:  Frontline Gastroenterol       Date:  2012-12-14
  2 in total

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