Literature DB >> 19673014

Transition of children with inflammatory bowel disease: big task, little evidence.

Wael El-Matary1.   

Abstract

Children with chronic long-term disorders need to move to the adult practice at some point in their life. Establishing a smooth and efficient transition process is a complicated task. Transition of medical care to adult practice is defined as the purposeful planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adult-oriented health care systems. This step is of the utmost importance for several reasons. There is an obvious deficiency of research in this area especially when it comes to pediatric inflammatory bowel disease (IBD). There is a considerable difference in individual practice among different centers. Also, age of transition varies among different countries and sometimes, even within the same country, transition age may vary among different provinces and districts! Interestingly, local politics and many factors other than children's welfare often play a role in deciding the age that older children move to adult practice at. This review discusses transition of children with IBD in view of the available evidence.

Entities:  

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Year:  2009        PMID: 19673014      PMCID: PMC2726451          DOI: 10.3748/wjg.15.3744

Source DB:  PubMed          Journal:  World J Gastroenterol        ISSN: 1007-9327            Impact factor:   5.742


  23 in total

1.  A consensus statement on health care transitions for young adults with special health care needs.

Authors: 
Journal:  Pediatrics       Date:  2002-12       Impact factor: 7.124

2.  Implementing transitions for youth with complex chronic conditions using the medical home model.

Authors:  Anne M Kelly; Barbara Kratz; Mary Bielski; Peggy Mann Rinehart
Journal:  Pediatrics       Date:  2002-12       Impact factor: 7.124

Review 3.  Transitioning care of the pediatric recipient to adult caregivers.

Authors:  Janet E McDonagh; Deirdre A Kelly
Journal:  Pediatr Clin North Am       Date:  2003-12       Impact factor: 3.278

4.  Health care issues as the child with chronic illness transitions to adulthood.

Authors:  David K Kalwinsky
Journal:  South Med J       Date:  2002-09       Impact factor: 0.954

5.  A self-efficacy scale for children and adolescents with asthma: construction and validation.

Authors:  M Schlösser; G Havermans
Journal:  J Asthma       Date:  1992       Impact factor: 2.515

Review 6.  Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease.

Authors:  S T Callahan; R F Winitzer; P Keenan
Journal:  Curr Opin Pediatr       Date:  2001-08       Impact factor: 2.856

Review 7.  Transitioning the paediatric IBD patient to adult care.

Authors:  Barbara Désir; Ernest G Seidman
Journal:  Best Pract Res Clin Gastroenterol       Date:  2003-04       Impact factor: 3.043

8.  Transition of adolescents with inflammatory bowel disease from pediatric to adult care: a survey of adult gastroenterologists.

Authors:  Elizabeth J Hait; Renée M Barendse; Janis H Arnold; Clarissa Valim; Bruce E Sands; Joshua R Korzenik; Laurie N Fishman
Journal:  J Pediatr Gastroenterol Nutr       Date:  2009-01       Impact factor: 2.839

9.  Measuring self-care independence in children with cystic fibrosis: the Self-Care Independence Scale (SCIS).

Authors:  Susana R Patton; Julie L Graham; Laurie Varlotta; Douglas Holsclaw
Journal:  Pediatr Pulmonol       Date:  2003-08

10.  Self-efficacy in adolescent girls and boys with insulin-dependent diabetes mellitus.

Authors:  H Y Grossman; S Brink; S T Hauser
Journal:  Diabetes Care       Date:  1987 May-Jun       Impact factor: 19.112

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  12 in total

Review 1.  Adherence in pediatric kidney transplant recipients: solutions for the system.

Authors:  Elizabeth A Steinberg; Mary Moss; Cindy L Buchanan; Jens Goebel
Journal:  Pediatr Nephrol       Date:  2017-03-27       Impact factor: 3.714

2.  Transition of Care in Inflammatory Bowel Disease.

Authors:  Bincy P Abraham; Stacy A Kahn
Journal:  Gastroenterol Hepatol (N Y)       Date:  2014-10

3.  Transition of patients with paediatric IBD to adult services.

Authors:  Victoria M Merrick; Paul Henderson
Journal:  Frontline Gastroenterol       Date:  2015-09-04

4.  Inflammatory bowel disease in transition: challenges and solutions in adolescent care.

Authors:  Sara McCartney
Journal:  Frontline Gastroenterol       Date:  2011-07-31

5.  Barriers and facilitators to successful transition from pediatric to adult inflammatory bowel disease care from the perspectives of providers.

Authors:  Christine W Paine; Natalie B Stollon; Matthew S Lucas; Lauren D Brumley; Erika S Poole; Tamara Peyton; Anne W Grant; Sophia Jan; Symme Trachtenberg; Miriam Zander; Petar Mamula; Christopher P Bonafide; Lisa A Schwartz
Journal:  Inflamm Bowel Dis       Date:  2014-11       Impact factor: 5.325

Review 6.  The Emerging Adult with Inflammatory Bowel Disease: Challenges and Recommendations for the Adult Gastroenterologist.

Authors:  Itishree Trivedi; Laurie Keefer
Journal:  Gastroenterol Res Pract       Date:  2015-05-04       Impact factor: 2.260

7.  Provider awareness alone does not improve transition readiness skills in adolescent patients with inflammatory bowel disease.

Authors:  Laurie N Fishman; Sonja I Ziniel; Max E Adrichem; Susan M Fernandes; Janis Arnold
Journal:  J Pediatr Gastroenterol Nutr       Date:  2014-08       Impact factor: 2.839

8.  Measuring satisfaction with health care in young persons with inflammatory bowel disease--an instrument development and validation study.

Authors:  Andrea Sadlo; Julia Altevers; Jenny Peplies; Birgit Kaltz; Martin Claßen; Alexandra Bauer; Sibylle Koletzko; Antje Timmer
Journal:  BMC Health Serv Res       Date:  2014-03-01       Impact factor: 2.655

9.  Evaluating outpatient transition clinics: a mixed-methods study protocol.

Authors:  Jane N T Sattoe; Mariëlle A C Peeters; Sander R Hilberink; Erwin Ista; AnneLoes van Staa
Journal:  BMJ Open       Date:  2016-08-26       Impact factor: 2.692

Review 10.  UK guideline on transition of adolescent and young persons with chronic digestive diseases from paediatric to adult care.

Authors:  Alenka J Brooks; Philip J Smith; Richard Cohen; Paul Collins; Andrew Douds; Valda Forbes; Daniel R Gaya; Brian T Johnston; Patrick J McKiernan; Charles D Murray; Shaji Sebastian; Monica Smith; Lisa Whitley; Lesley Williams; Richard K Russell; Sara A McCartney; James O Lindsay
Journal:  Gut       Date:  2017-02-21       Impact factor: 23.059

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