OBJECTIVE: Patients gradually assume responsibility for self-management. This study sought to determine whether adolescents with inflammatory bowel disease (IBD) have developed key skills of self-management prior to the age at which many transfer to adult care. PATIENTS AND METHODS: Adolescents aged 16 to 18 years old in the Children's Hospital Boston IBD database (94 total) received a mailed survey assessing knowledge and confidence of their own health information and behaviors. RESULTS: Respondents (43%) could name medication and dose with confidence but had very poor knowledge of important side effects. Most patients deferred responsibility mostly or completely to parents for scheduling appointments (85%), requesting refills (75%), or contacting provider between visits (74%). CONCLUSIONS: Older adolescents with IBD have good recall of medications but not of side effects. Parents remain responsible for the majority of tasks related to clinic visits and the acquisition of medications.
OBJECTIVE:Patients gradually assume responsibility for self-management. This study sought to determine whether adolescents with inflammatory bowel disease (IBD) have developed key skills of self-management prior to the age at which many transfer to adult care. PATIENTS AND METHODS: Adolescents aged 16 to 18 years old in the Children's Hospital Boston IBD database (94 total) received a mailed survey assessing knowledge and confidence of their own health information and behaviors. RESULTS: Respondents (43%) could name medication and dose with confidence but had very poor knowledge of important side effects. Most patients deferred responsibility mostly or completely to parents for scheduling appointments (85%), requesting refills (75%), or contacting provider between visits (74%). CONCLUSIONS: Older adolescents with IBD have good recall of medications but not of side effects. Parents remain responsible for the majority of tasks related to clinic visits and the acquisition of medications.
Authors: Bonney Reed-Knight; Debra Lobato; Sarah Hagin; Elizabeth L McQuaid; Ronald Seifer; Sheryl J Kopel; Julie Boergers; Jack H Nassau; Kristina Suorsa; Barbara Bancroft; Neal S LeLeiko Journal: Child Health Care Date: 2013-10-22
Authors: Karla K H Vaz; Julia K Carmody; Yue Zhang; Lee A Denson; Kevin A Hommel Journal: J Pediatr Gastroenterol Nutr Date: 2019-11 Impact factor: 2.839
Authors: Zaid Bilgrami; Ameer Abutaleb; Kenechukwu Chudy-Onwugaje; Patricia Langenberg; Miguel Regueiro; David A Schwartz; J Kathleen Tracy; Leyla Ghazi; Seema A Patil; Sandra M Quezada; Katharine M Russman; Charlene C Quinn; Guruprasad Jambaulikar; Dawn B Beaulieu; Sara Horst; Raymond K Cross Journal: Dig Dis Sci Date: 2019-01-02 Impact factor: 3.199
Authors: Alice L Bennett; David Moore; Peter A Bampton; Robert V Bryant; Jane M Andrews Journal: World J Gastroenterol Date: 2016-02-28 Impact factor: 5.742
Authors: Bonney Reed-Knight; Debra Lobato; Sarah Hagin; Elizabeth L McQuaid; Ronald Seifer; Sheryl J Kopel; Julie Boergers; Jack H Nassau; Kristina Suorsa; Barbara Bancroft; Jason Shapiro; Neal S Leleiko Journal: Inflamm Bowel Dis Date: 2014-04 Impact factor: 5.325
Authors: Laurie N Fishman; Paul D Mitchell; Paul R Lakin; Lisa Masciarelli; Sarah N Flier Journal: J Pediatr Gastroenterol Nutr Date: 2016-11 Impact factor: 2.839