Literature DB >> 28661757

Beyond Belmont: Ensuring Respect for AI/AN Communities Through Tribal IRBs, Laws, and Policies.

Sara Chandros Hull1, David R Wilson Diné1.   

Abstract

Entities:  

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Year:  2017        PMID: 28661757      PMCID: PMC6097707          DOI: 10.1080/15265161.2017.1328531

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


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  5 in total

1.  After Havasupai litigation, Native Americans wary of genetic research.

Authors: 
Journal:  Am J Med Genet A       Date:  2010-07       Impact factor: 2.802

2.  Creating research capacity through a tribally based institutional review board.

Authors:  Deborah J Morton; Joely Proudfit; Daniel Calac; Martina Portillo; Geneva Lofton-Fitzsimmons; Theda Molina; Raymond Flores; Barbara Lawson-Risso; Romelle Majel-McCauley
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

3.  Rethinking the Belmont Report?

Authors:  Phoebe Friesen; Lisa Kearns; Barbara Redman; Arthur L Caplan
Journal:  Am J Bioeth       Date:  2017-07       Impact factor: 11.229

4.  Federal Policy for the Protection of Human Subjects. Final rule.

Authors: 
Journal:  Fed Regist       Date:  2017-01-19

5.  Partnering in research: a national research trial exemplifying effective collaboration with American Indian Nations and the Indian Health Service.

Authors:  Jennifer Q Chadwick; Kenneth C Copeland; Mary R Daniel; Julie A Erb-Alvarez; Beverly A Felton; Sohail I Khan; Bobby R Saunkeah; David F Wharton; Marisa L Payan
Journal:  Am J Epidemiol       Date:  2014-11-11       Impact factor: 4.897

  5 in total
  14 in total

1.  IDeA States Pediatric Clinical Trials Network for Underserved and Rural Communities.

Authors:  Robert D Annett; Sheva Chervinskiy; Thomas H Chun; Kelly Cowan; Kristina Foster; Nathaniel Goodrich; Matthew Hirschfeld; Daniel S Hsia; J Dean Jarvis; Kurtis Kulbeth; Christi Madden; Clare Nesmith; Hengameh Raissy; Judith Ross; J Philip Saul; Bruce Shiramizu; Paul Smith; Janice E Sullivan; Lauren Tucker; Andrew M Atz
Journal:  Pediatrics       Date:  2020-09-17       Impact factor: 7.124

2.  Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field.

Authors:  Sara Chandros Hull
Journal:  J Health Care Poor Underserved       Date:  2019

3.  Virtual Research with Urban Native Young Women: Cautionary Tales in the Time of a Pandemic.

Authors:  Nicole R Tuitt; Umit Shrestha; Nicole Reed; Roland S Moore; Michelle Sarche; Carol E Kaufman
Journal:  Prog Community Health Partnersh       Date:  2022

4.  Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: An Adapted Model of Deliberation Used with Three Tribal Communities in the United States.

Authors:  Erika Blacksher; Vanessa Y Hiratsuka; Jessica W Blanchard; Justin R Lund; Justin Reedy; Julie A Beans; Bobby Saunkeah; Micheal Peercy; Christie Byars; Joseph Yracheta; Krystal S Tsosie; Marcia O'Leary; Guthrie Ducheneaux; Paul G Spicer
Journal:  AJOB Empir Bioeth       Date:  2021-06-14

5.  Fostering Ethical, Legal, and Social Implications Research in Tribal Communities: The Center for the Ethics of Indigenous Genomic Research.

Authors:  Vanessa Y Hiratsuka; Julie A Beans; Justin Reedy; Joseph M Yracheta; Michael T Peercy; Bobby Saunkeah; R Brian Woodbury; Marcia O'Leary; Paul G Spicer
Journal:  J Empir Res Hum Res Ethics       Date:  2019-09-09       Impact factor: 1.742

6.  Urban American Indian and Alaska Native Data Sovereignty: Ethical Issues.

Authors:  Emily A Haozous; Juliet Lee; Claradina Soto
Journal:  Am Indian Alsk Native Ment Health Res       Date:  2021

7.  Extending Research Protections to Tribal Communities.

Authors:  Bobby Saunkeah; Julie A Beans; Michael T Peercy; Vanessa Y Hiratsuka; Paul Spicer
Journal:  Am J Bioeth       Date:  2021-01-15       Impact factor: 14.676

8.  Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation.

Authors:  Vanessa Y Hiratsuka; Julie A Beans; Renee F Robinson; Jennifer L Shaw; Ileen Sylvester; Denise A Dillard
Journal:  Int J Environ Res Public Health       Date:  2017-10-31       Impact factor: 3.390

Review 9.  A framework for enhancing ethical genomic research with Indigenous communities.

Authors:  Katrina G Claw; Matthew Z Anderson; Rene L Begay; Krystal S Tsosie; Keolu Fox; Nanibaa' A Garrison
Journal:  Nat Commun       Date:  2018-07-27       Impact factor: 14.919

10.  Community Protections in American Indian and Alaska Native Participatory Research-A Scoping Review.

Authors:  Julie A Beans; Bobby Saunkeah; R Brian Woodbury; Terry S Ketchum; Paul G Spicer; Vanessa Y Hiratsuka
Journal:  Soc Sci (Basel)       Date:  2019-04-20
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