| Literature DB >> 31496352 |
Vanessa Y Hiratsuka1, Julie A Beans1, Justin Reedy2, Joseph M Yracheta3, Michael T Peercy4, Bobby Saunkeah4, R Brian Woodbury1, Marcia O'Leary3, Paul G Spicer2.
Abstract
Genomic research raises unique ethical concerns among Alaska Native and American Indian (AN/AI) people and their communities. The Center for the Ethics of Indigenous Genomic Research (CEIGR) was created to foster research that takes these concerns into account while considering the sovereign status of AN/AI tribal nations. Relationships developed within CEIGR have allowed for effective, collaborative research among individuals who come from diverse cultures, political and historical backgrounds, and academic disciplines, and who work for organizations with varying resources, capacities, and expectations. The CEIGR framework may inform other groups seeking to conduct social science research related to genomic research with tribal people and their communities.Entities:
Keywords: Alaska Native; American Indian; ELSI; academic–community partnership; genomic research
Year: 2019 PMID: 31496352 PMCID: PMC7061084 DOI: 10.1177/1556264619872640
Source DB: PubMed Journal: J Empir Res Hum Res Ethics ISSN: 1556-2646 Impact factor: 1.742