Literature DB >> 20583166

After Havasupai litigation, Native Americans wary of genetic research.

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Abstract

Mesh：

Year:  2010        PMID： 20583166     DOI： 10.1002/ajmg.a.33592

Source DB:  PubMed          Journal:  Am J Med Genet A        ISSN： 1552-4825            Impact factor:   2.802


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  16 in total

1.  Moving forward: breaking the cycle of mistrust between American Indians and researchers.

Authors:  Christina M Pacheco; Sean M Daley; Travis Brown; Melissa Filippi; K Allen Greiner; Christine M Daley
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

2.  Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research.

Authors:  Nanibaa' A Garrison
Journal:  Sci Technol Human Values       Date:  2012-12-21

3.  Beyond Belmont: Ensuring Respect for AI/AN Communities Through Tribal IRBs, Laws, and Policies.

Authors:  Sara Chandros Hull; David R Wilson Diné
Journal:  Am J Bioeth       Date:  2017-07       Impact factor: 11.229

4.  Diverse perceptions of the informed consent process: implications for the recruitment and participation of diverse communities in the National Children's Study.

Authors:  Kimberley D Lakes; Elaine Vaughan; Marissa Jones; Wylie Burke; Dean Baker; James M Swanson
Journal:  Am J Community Psychol       Date:  2012-03

5.  Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research.

Authors:  Holly K Tabor; Benjamin E Berkman; Sara Chandros Hull; Michael J Bamshad
Journal:  Am J Med Genet A       Date:  2011-10-28       Impact factor: 2.802

6.  Risk terminology in biobanking and genetic research: what's in a name?

Authors:  Gwendolyn P Quinn; Heide Castañeda; Tuya Pal; Janique L Rice; Cathy D Meade; Clement K Gwede
Journal:  Am J Med Genet A       Date:  2013-07-03       Impact factor: 2.802

7.  Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field.

Authors:  Sara Chandros Hull
Journal:  J Health Care Poor Underserved       Date:  2019

Review 8.  Evolving approaches to the ethical management of genomic data.

Authors:  Jean E McEwen; Joy T Boyer; Kathie Y Sun
Journal:  Trends Genet       Date:  2013-02-28       Impact factor: 11.639

Review 9.  Prioritizing diversity in human genomics research.

Authors:  Lucia A Hindorff; Vence L Bonham; Lawrence C Brody; Margaret E C Ginoza; Carolyn M Hutter; Teri A Manolio; Eric D Green
Journal:  Nat Rev Genet       Date:  2017-11-20       Impact factor: 53.242

Review 10.  Weaving the Strands of Life (Iiná Bitł'ool): History of Genetic Research Involving Navajo People.

Authors:  Rene L Begay; Nanibaa' A Garrison; Franklin Sage; Mark Bauer; Ursula Knoki-Wilson; David H Begay; Beverly Becenti-Pigman; Katrina G Claw
Journal:  Hum Biol       Date:  2020-07-09       Impact factor: 0.553
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