Literature DB >> 28589610

Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience.

Sarah E Gollust1, Stacy W Gray2, Deanna Alexis Carere3, Barbara A Koenig4, Lisa Soleymani Lehmann5, Amy L McGUIRE6, Richard R Sharp7, Kayte Spector-Bagdady8, N A Wang9, Robert C Green5, J Scott Roberts10.   

Abstract

Keywords:  ethics; genetic testing; public opinion; regulation

Mesh：

Year:  2017        PMID： 28589610      PMCID： PMC5461393          DOI： 10.1111/1468-0009.12262

Source DB:  PubMed          Journal:  Milbank Q        ISSN： 0887-378X            Impact factor:   4.911


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  35 in total

1.  Direct-to-consumer sales of genetic services on the Internet.

Authors:  Sarah E Gollust; Benjamin S Wilfond; Sara Chandros Hull
Journal:  Genet Med       Date:  2003 Jul-Aug       Impact factor: 8.822

2.  Community involvement in developing policies for genetic testing: assessing the interests and experiences of individuals affected by genetic conditions.

Authors:  Sarah E Gollust; Kira Apse; Barbara P Fuller; Paul Steven Miller; Barbara B Biesecker
Journal:  Am J Public Health       Date:  2005-01       Impact factor: 9.308

3.  Awareness and use of direct-to-consumer nutrigenomic tests, United States, 2006.

Authors:  Katrina A B Goddard; Cynthia Moore; Denae Ottman; Kathleen L Szegda; Linda Bradley; Muin J Khoury
Journal:  Genet Med       Date:  2007-08       Impact factor: 8.822

4.  Public awareness and use of direct-to-consumer genetic tests: results from 3 state population-based surveys, 2006.

Authors:  Katrina A B Goddard; Debra Duquette; Amy Zlot; Jenny Johnson; Ann Annis-Emeott; Patrick W Lee; Mary Pat Bland; Karen L Edwards; Kristin Oehlke; Rebecca T Giles; Ann Rafferty; Michelle L Cook; Muin J Khoury
Journal:  Am J Public Health       Date:  2008-12-23       Impact factor: 9.308

Review 5.  The current landscape for direct-to-consumer genetic testing: legal, ethical, and policy issues.

Authors:  Stuart Hogarth; Gail Javitt; David Melzer
Journal:  Annu Rev Genomics Hum Genet       Date:  2008       Impact factor: 8.929

6.  Perceptions of familial risk in those seeking a genetic risk assessment for Alzheimer's disease.

Authors:  Susan Hiraki; Clara A Chen; J Scott Roberts; L Adrienne Cupples; Robert C Green
Journal:  J Genet Couns       Date:  2008-10-23       Impact factor: 2.537

7.  An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons.

Authors:  Amy L McGuire; Wylie Burke
Journal:  JAMA       Date:  2008-12-10       Impact factor: 56.272

8.  Health care provider and consumer awareness, perceptions, and use of direct-to-consumer personal genomic tests, United States, 2008.

Authors:  Katherine Kolor; Tiebin Liu; Jeanette St Pierre; Muin J Khoury
Journal:  Genet Med       Date:  2009-08       Impact factor: 8.822

9.  Direct to consumer genetic testing: Avoiding a culture war.

Authors:  James P Evans; Robert C Green
Journal:  Genet Med       Date:  2009-08       Impact factor: 8.822

10.  Characteristics of users of online personalized genomic risk assessments: implications for physician-patient interactions.

Authors:  Colleen M McBride; Sharon Hensley Alford; Robert J Reid; Eric B Larson; Andreas D Baxevanis; Lawrence C Brody
Journal:  Genet Med       Date:  2009-08       Impact factor: 8.822
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  6 in total

1.  An Unhealthy Mismatch.

Authors:  Sandro Galea
Journal:  Milbank Q       Date:  2017-09       Impact factor: 4.911

Review 2.  Considerations for developing regulations for direct-to-consumer genetic testing: a scoping review using the 3-I framework.

Authors:  Alexandra Cernat; Naazish S Bashir; Wendy J Ungar
Journal:  J Community Genet       Date:  2022-02-16

3.  Prospective Decision Analysis Study of Clinical Genomic Testing in Metastatic Breast Cancer: Impact on Outcomes and Patient Perceptions.

Authors:  Daniel G Stover; Raquel E Reinbolt; Elizabeth J Adams; Sarah Asad; Katlyn Tolliver; Mahmoud Abdel-Rasoul; Cynthia D Timmers; Susan Gillespie; James L Chen; Siraj Mahamed Ali; Katharine A Collier; Mathew A Cherian; Anne M Noonan; Sagar Sardesai; Jeffrey VanDeusen; Robert Wesolowski; Nicole Williams; Clara N Lee; Charles L Shapiro; Erin R Macrae; Bhuvaneswari Ramaswamy; Maryam B Lustberg
Journal:  JCO Precis Oncol       Date:  2019-11-18

4.  Direct-to-Consumer Genetic Testing Data Privacy: Key Concerns and Recommendations Based on Consumer Perspectives.

Authors:  Rachele M Hendricks-Sturrup; Christine Y Lu
Journal:  J Pers Med       Date:  2019-05-09

5.  "…This Has to Do With My Identity. And I Don't Want to Make it Totally Transparent." Identity Relevance in the Attitudes of Affected People and Laypersons to the Handling of High-Throughput Genomic Data.

Authors:  Alexander Urban
Journal:  Front Sociol       Date:  2020-12-01

6.  Direct-to-consumer advertising of prescription medications: what the Canadian medical trainee needs to know.

Authors:  Michael D Elfassy; Sharef Danho; Alexander Adibfar; Joel Lexchin
Journal:  Can Med Educ J       Date:  2019-07-24
  6 in total

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