Frances R Nedjat-Haiem1, Iraida V Carrion2, Krystyna Gonzalez1, Alejandra Quintana1, Kathleen Ell3, Mary O'Connell1, Beti Thompson4, Shiraz I Mishra5. 1. 1 School of Social Work, New Mexico State University , Las Cruces, New Mexico . 2. 2 School of Social Work, University of South Florida , Tampa, Florida. 3. 3 Suzanne Dworak-Peck School of Social Work, University of Southern California , Los Angeles, California. 4. 4 School of Public Health, University of Washington , Seattle, Washington. 5. 5 School of Medicine, University of New Mexico , Albuquerque, New Mexico .
Abstract
BACKGROUND:Older Latinos with serious medical conditions such as cancer and other chronic diseases lack information about advance care planning (ACP). ACP Intervention (ACP-I Plan) was designed for informational and communication needs of older Latinos to improve communication and advance directives (ADs). OBJECTIVE: To determine the feasibility of implementing ACP-I Plan among seriously ill, older Latinos (≥50 years) in Southern New Mexico with one or more chronic diseases (e.g., cancer, heart disease, renal/liver failure, stroke, hypertension, diabetes, chronic obstructive pulmonary disease, and HIV/AIDS). DESIGN: We conducted a prospective, pretest/post-test, two-group, randomized, community-based pilot trial by using mixed data collection methods. SETTING/ SUBJECTS:Older Latino/Hispanic participants were recruited from community-based settings in Southern New Mexico. METHODS: All participants received ACP education, whereas the intervention group added: (1) emotional support addressing psychological distress; and (2) systems navigation for resource access, all of which included interactive ACP treatment decisional support and involved motivational interview (MI) methods. Purposive sampling was guided by a sociocultural framework to recruit Latino participants from community-based settings in Southern New Mexico. Feasibility of sample recruitment, implementation, and retention was assessed by examining the following: recruitment strategies, trial enrollment, retention rates, duration of MI counseling, type of visit (home vs. telephone), and satisfaction with the program. RESULTS: We contacted 104 patients, enrolled 74 randomized tousual care 39 (UC) and treatment 35 (TX) groups. Six dropped out before the post-test survey, three from TX before the post-test survey because of sickness (n = 1) or could not be located (n = 2), and the same happened for UC. Completion rates were 91.4% UC and 92.3% TX groups. All participants were Latino/Hispanic, born in the United States (48%) or Mexico (51.4%) on average in the United States for 25 years; majority were female, 76.5%; 48.6% preferred Spanish; and 31.4% had less than sixth-grade education. Qualitative data indicate satisfaction with the ACP-I Plan intervention. CONCLUSIONS: Based on enrollment and intervention completion rates, time to completion tests, and feedback from qualitative post-study, follow-up interviews, the ACP-I Plan was demonstrated to be feasible and perceived as extremely helpful.
RCT Entities:
BACKGROUND: Older Latinos with serious medical conditions such as cancer and other chronic diseases lack information about advance care planning (ACP). ACP Intervention (ACP-I Plan) was designed for informational and communication needs of older Latinos to improve communication and advance directives (ADs). OBJECTIVE: To determine the feasibility of implementing ACP-I Plan among seriously ill, older Latinos (≥50 years) in Southern New Mexico with one or more chronic diseases (e.g., cancer, heart disease, renal/liver failure, stroke, hypertension, diabetes, chronic obstructive pulmonary disease, and HIV/AIDS). DESIGN: We conducted a prospective, pretest/post-test, two-group, randomized, community-based pilot trial by using mixed data collection methods. SETTING/ SUBJECTS: Older Latino/Hispanic participants were recruited from community-based settings in Southern New Mexico. METHODS: All participants received ACP education, whereas the intervention group added: (1) emotional support addressing psychological distress; and (2) systems navigation for resource access, all of which included interactive ACP treatment decisional support and involved motivational interview (MI) methods. Purposive sampling was guided by a sociocultural framework to recruit Latino participants from community-based settings in Southern New Mexico. Feasibility of sample recruitment, implementation, and retention was assessed by examining the following: recruitment strategies, trial enrollment, retention rates, duration of MI counseling, type of visit (home vs. telephone), and satisfaction with the program. RESULTS: We contacted 104 patients, enrolled 74 randomized to usual care 39 (UC) and treatment 35 (TX) groups. Six dropped out before the post-test survey, three from TX before the post-test survey because of sickness (n = 1) or could not be located (n = 2), and the same happened for UC. Completion rates were 91.4% UC and 92.3% TX groups. All participants were Latino/Hispanic, born in the United States (48%) or Mexico (51.4%) on average in the United States for 25 years; majority were female, 76.5%; 48.6% preferred Spanish; and 31.4% had less than sixth-grade education. Qualitative data indicate satisfaction with the ACP-I Plan intervention. CONCLUSIONS: Based on enrollment and intervention completion rates, time to completion tests, and feedback from qualitative post-study, follow-up interviews, the ACP-I Plan was demonstrated to be feasible and perceived as extremely helpful.
Entities:
Keywords:
Latino/Hispanic; advance care planning; advance directives; healthcare provider communication; qualitative research; social work issues
Authors: Angelo E Volandes; Michael Paasche-Orlow; Muriel R Gillick; E F Cook; Shimon Shaykevich; Elmer D Abbo; Lisa Lehmann Journal: J Palliat Med Date: 2008-06 Impact factor: 2.947
Authors: Sarah E Pajka; Mohammad Adrian Hasdianda; Naomi George; Rebecca Sudore; Mara A Schonberg; Edward Bernstein; James A Tulsky; Susan D Block; Kei Ouchi Journal: J Palliat Med Date: 2020-06-01 Impact factor: 2.947
Authors: Frances R Nedjat-Haiem; Tamara Cadet; Humberto Parada; Tessa Jones; Elvira E Jimenez; Beti Thompson; Kristen J Wells; Shiraz I Mishra Journal: Am J Hosp Palliat Care Date: 2020-11-06 Impact factor: 2.090