BACKGROUND: To better understand what matters to African American elders who are faced with issues of death, dying, and end-of-life care, a qualitative study was conducted to elicit their perspective. METHODS: Focus groups were convened across the state of Connecticut. A total of 196 individuals participated in the 90-minute interview sessions. Using an interview guide, a trained moderator conducted the racially homogeneous discussion groups. Transcriptions of the group narratives with 22 older African Americans were coded to identify themes. Data were organized and analyzed using NUD-IST 4 and constant comparative method of qualitative data analysis. RESULTS: Five major themes emerged from the focus group data on older African Americans: (1) spirituality, (2) burden on family, (3) trust, (4) health insurance coverage, and (5) cultural concerns. CONCLUSION: Recommendations are made for outreach education, involvement of informal helpers, and a level of acceptability in practice for diverse care needs.
BACKGROUND: To better understand what matters to African American elders who are faced with issues of death, dying, and end-of-life care, a qualitative study was conducted to elicit their perspective. METHODS: Focus groups were convened across the state of Connecticut. A total of 196 individuals participated in the 90-minute interview sessions. Using an interview guide, a trained moderator conducted the racially homogeneous discussion groups. Transcriptions of the group narratives with 22 older African Americans were coded to identify themes. Data were organized and analyzed using NUD-IST 4 and constant comparative method of qualitative data analysis. RESULTS: Five major themes emerged from the focus group data on older African Americans: (1) spirituality, (2) burden on family, (3) trust, (4) health insurance coverage, and (5) cultural concerns. CONCLUSION: Recommendations are made for outreach education, involvement of informal helpers, and a level of acceptability in practice for diverse care needs.
Authors: Paula K Baldwin; Elaine Wittenberg-Lyles; Robin L Kruse; George Demiris; Debra Parker Oliver Journal: Am J Hosp Palliat Care Date: 2012-12-10 Impact factor: 2.500
Authors: Frances R Nedjat-Haiem; Iraida V Carrion; Krystyna Gonzalez; Alejandra Quintana; Kathleen Ell; Mary O'Connell; Beti Thompson; Shiraz I Mishra Journal: J Palliat Med Date: 2017-05-03 Impact factor: 2.947