Literature DB >> 20526462

National Biobanks: Clinical Labor, Risk Production, and the Creation of Biovalue.

Robert Mitchell1.   

Abstract

The development of genomics has dramatically expanded the scope of genetic research, and collections of genetic biosamples have proliferated in countries with active genomics research programs. In this essay, we consider a particular kind of collection, national biobanks. National biobanks are often presented by advocates as an economic "resource" that will be used by both basic researchers and academic biologists, as well as by pharmaceutical diagnostic and clinical genomics companies. Although national biobanks have been the subject of intense interest in recent social science literature, most prior work on this topic focuses either on bioethical issues related to biobanks, such as the question of informed consent, or on the possibilities for scientific citizenship that they make possible. We emphasize, by contrast, the economic aspect of biobanks, focusing specifically on the way in which national biobanks create biovalue. Our emphasis on the economic aspect of biobanks allows us to recognize the importance of what we call clinical labor-that is, the regularized, embodied work that members of the national population are expected to perform in their role as biobank participants-in the creation of biovalue through biobanks. Moreover, it allows us to understand how the technical way in which national biobanks link clinical labor to databases alters both medical and popular understandings of risk for common diseases and conditions.

Entities:  

Year:  2010        PMID: 20526462      PMCID: PMC2879701          DOI: 10.1177/0162243909340267

Source DB:  PubMed          Journal:  Sci Technol Human Values        ISSN: 0162-2439


  15 in total

1.  The needs for database research and for privacy collide.

Authors:  S E Hyman
Journal:  Am J Psychiatry       Date:  2000-11       Impact factor: 18.112

2.  Biobanks. Population databases boom, from Iceland to the U.S.

Authors:  Jocelyn Kaiser
Journal:  Science       Date:  2002-11-08       Impact factor: 47.728

Review 3.  Ethics in population-based genetic research.

Authors:  Matthew DeCamp; Jeremy Sugarman
Journal:  Account Res       Date:  2004 Jan-Mar       Impact factor: 2.622

4.  Monitoring ethical, legal, and social issues in developing population genetic databases.

Authors:  Melissa A Austin; Sarah E Harding; Courtney E McElroy
Journal:  Genet Med       Date:  2003 Nov-Dec       Impact factor: 8.822

Review 5.  Genetic epidemiology and public health: hope, hype, and future prospects.

Authors:  George Davey Smith; Shah Ebrahim; Sarah Lewis; Anna L Hansell; Lyle J Palmer; Paul R Burton
Journal:  Lancet       Date:  2005 Oct 22-28       Impact factor: 79.321

6.  Merging and emerging cohorts: necessary but not sufficient.

Authors:  Francis S Collins; Teri A Manolio
Journal:  Nature       Date:  2007-01-18       Impact factor: 49.962

7.  Studies of the HER-2/neu proto-oncogene in human breast and ovarian cancer.

Authors:  D J Slamon; W Godolphin; L A Jones; J A Holt; S G Wong; D E Keith; W J Levin; S G Stuart; J Udove; A Ullrich
Journal:  Science       Date:  1989-05-12       Impact factor: 47.728

8.  Increased risk of venous thrombosis in oral-contraceptive users who are carriers of factor V Leiden mutation.

Authors:  J P Vandenbroucke; T Koster; E Briët; P H Reitsma; R M Bertina; F R Rosendaal
Journal:  Lancet       Date:  1994-11-26       Impact factor: 79.321

9.  The case for a US prospective cohort study of genes and environment.

Authors:  Francis S Collins
Journal:  Nature       Date:  2004-05-27       Impact factor: 49.962

10.  Biobanks for genomics and genomics for biobanks.

Authors:  Anne Cambon-Thomsen; Pascal Ducournau; Pierre-Antoine Gourraud; David Pontille
Journal:  Comp Funct Genomics       Date:  2003
View more
  16 in total

1.  Assessing Researcher Needs for a Virtual Biobank.

Authors:  Jenna van Draanen; Pamela Davidson; Helene Bour-Jordan; LeeAnna Bowman-Carpio; David Boyle; Steve Dubinett; Brian Gardner; Jachael Gardner; Courtney McFall; Dan Mercola; Terry Nakazono; Stephanie Soares; Hubert Stoppler; Margaret Tempero; Scott Vandenberg; Yu Jui Wan; Sarah Dry
Journal:  Biopreserv Biobank       Date:  2016-12-08       Impact factor: 2.300

2.  A biorepository for ophthalmic surgical specimens.

Authors:  Jessica M Skeie; Stephen H Tsang; Ryan Vande Zande; Macy M Fickbohm; Shaival S Shah; John G Vallone; Vinit B Mahajan
Journal:  Proteomics Clin Appl       Date:  2013-11-22       Impact factor: 3.494

3.  Gut Health in the era of the human gut microbiota: from metaphor to biovalue.

Authors:  Vincent Baty; Bruno Mougin; Catherine Dekeuwer; Gérard Carret
Journal:  Med Health Care Philos       Date:  2014-11

4.  Obligations of the "Gift": Reciprocity and Responsibility in Precision Medicine.

Authors:  Sandra Soo-Jin Lee
Journal:  Am J Bioeth       Date:  2020-12-16       Impact factor: 11.229

5.  Origin stories from a regional placenta tissue collection.

Authors:  Maria Fannin; Julie Kent
Journal:  New Genet Soc       Date:  2015-02-04

6.  Biobanking and translation of human genetics and genomics for infectious diseases.

Authors:  Ivan Branković; Jelena Malogajski; Servaas A Morré
Journal:  Appl Transl Genom       Date:  2014-04-12

7.  How Does One "Open" Science? Questions of Value in Biological Research.

Authors:  Nadine Levin; Sabina Leonelli
Journal:  Sci Technol Human Values       Date:  2016-10-04

8.  Biobank integration of large-scale clinical and histopathology melanoma studies within the European Cancer Moonshot Lund Center.

Authors:  Johan Malm; Yutaka Sugihara; Marcell Szasz; Ho Jeong Kwon; Henrik Lindberg; Roger Appelqvist; György Marko-Varga
Journal:  Clin Transl Med       Date:  2018-08-20

Review 9.  Governing the research-care divide in clinical biobanking: Dutch perspectives.

Authors:  Martin Boeckhout; Conor M W Douglas
Journal:  Life Sci Soc Policy       Date:  2015-08-06

10.  Autobiologies on YouTube: Narratives of Direct-to-Consumer Genetic Testing.

Authors:  Anna Harris; Susan E Kelly; Sally Wyatt
Journal:  New Genet Soc       Date:  2014-03-07
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