| Literature DB >> 27379302 |
Abstract
Purpose. To understand barriers facing high-risk individuals and to solicit the suggestions of these individuals, especially nonusers, on how to change the eye care delivery system to better meet their needs. Methods. Four focus groups were conducted. All discussion was audiotaped and transcribed. Content analysis was performed by the authors and with the assistance of qualitative software, NUD(*)IST Vivo. Results. The most frequently cited barriers include (1) cost, (2) trust, (3) communication, (4) clinic accessibility (transportation/distance), and (5) doctor-patient relationship. In underutilizers, trust was the most identified barrier to care. Suggestions on increasing educational opportunities/awareness of eye care and addressing cost and insurance issues as a means of improving trust and communications were most frequently offered, including using the Department of Social Services as a focal point for eye care education and assessment. Discussion. Trust is a major barrier to eye care, especially among underutilizers of disadvantaged populations. Increasing trust and eye care education at the community and individual levels is essential to increasing eye care utilization.Entities:
Year: 2014 PMID: 27379302 PMCID: PMC4897391 DOI: 10.1155/2014/527831
Source DB: PubMed Journal: Int Sch Res Notices ISSN: 2356-7872
Examples of comments on most frequently identified barriers.
| Barrier (% of total comments, | Example |
|---|---|
| Cost (24.0%) | “It's about the finances. They wouldn't let the doctor see me because I didn't have the $20…They want all of the money before the doctor sees you, you know, so that knocks a lot of us in this community out of it.” (Focus group 1, participant 4) |
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| Trust (15.5%) | “But I'm not gonna trust these doctors who are all about the money. They tell us we need glasses when we don't…It's not my care that they're going after that day. It's the number of patients they see that day to make their quota and be able to make the payroll. Trust is key.” (Focus group 3, participant 4) |
| “All the hospitals around here, nobody should be going blind. They need to start treating people b/c they want to and b/c they care, not so they can make money. I've seen animals get better treatment than some of us poor folks, and we don't even go around biting people!” (Focus group 4, participant 5) | |
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| Communication (12.5%) | “I don't want him to be talking to me about words that I don't understand. Just tell me exactly what's going on in a language I can understand…You know, explain it very well. Don't try to go over my head and I don't understand.” (Focus group 2, participant 2) |
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| Distance/transportation (10.2%) | “And transportation to be able to get to the eye doctor also. A lot of people don't have their own transportation, then you have to ask someone and pay for them to take you.” (Focus group 2, participant 2) |
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| Doctor-patient relationship (8.7%) | “…they are not sincere. They don't have any feelings for you…They're not concerned about the person…I'm a whole person!” (Focus group 1, participant 6) |
| “…If you go to the grocery store and the cashier is rude, you don't wanna go back to that store no more. Same thing with the doctor. Except you'll probably go back to the store b/c you gotta eat. You don't have to go to the doctor.” (Focus group 4, participant 5) | |
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| Lack of knowledge/education about eye care (6.1%) | “We hear about the heart, the lungs, kidneys, cancer, all of that, but we never hear about the eyes…we don't know what we need to do to take care of our eyes. We don't know enough about prevention in order to keep our eyes.” (Focus group 3, participant 4) |
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| Insurance (5.8%) | “…And the first thing is “Do you have insurance?” And if you don't have insurance, you might have an appointment, but they're gonna turn you away.” (Focus group 3, participant 4) |
| “Look, the only time I've ever experienced staff that's cranky and rude is when I didn't have insurance…” (Focus group 4, participant 4) | |
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| Service at the doctor's office (5.8%) | “They tell you to be there at some early time in the morning and you get there and you wait for hours! Our time is valuable too! Maybe I'm not an eye doctor but I have valuable things to do, like work to feed my family.” (Focus group 3, participant 3) |
| “An unfriendly doctor or unfriendly staff will keep me from going back every time.” (Focus group 4, participant 3) | |
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| Procrastination (5.0%) | “I think we have a tendency to put it off unless they have a problem directly with seeing. But just for an eye exam, I think we have a tendency to put it off.” (Focus group 2, participant 5) |
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| Other (2.9%) | “There are some practices that don't want new patients. So where do you start?” (Focus group 3, participant 4) |
| “That's why someone who knows the person should go with them [to the eye doctor] b/c I don't feel like they would receive the same treatment as someone who knows what's going on…that's one thing that really discourages me about doctors…I don't think you should treat anybody different or put them down b/c of their economic status and things of that nature. But it happens.” (Focus group 2, participant 2) | |
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| Problems with vision devices (1.7%) | “Well I think the glasses damaged my eyes. I was not having any problems until I wore those glasses for about a week. Now I take them off and I can't see nothing.” (Focus group 3, participant 6) |
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| Race (1.3%) | “It's not pointed out as a factor. But deep down, it's still a little bit of tension there. It's not supposed to be a factor.” (Focus group 2, participant 5) |
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| Fear (0.7%) | “You know, I just have a fear… That's why I'm debating whether I'm going back or not…” (Focus group 3, participant 5) |
Examples of suggested changes to current eye care system.
| Category of change (% of total comments, | Example |
|---|---|
| Education (33.6%) | “Social Services Agency can be used as focal points to make educational presentations. You can do that by contacting the workers there first, so that, with the customer's permission, the social worker can present the names of people who really need the information.” (Focus group 2, participant 3) |
| “You know how they have Fire Prevention Week? Is there an Eye Disease Prevention Week? Maybe we need something like that for the eye. Maybe something though the mail. Or maybe they could send something every month…Stress the importance of eye care.” (Focus group 2, participant 4) | |
| “I think if you start with children, there won't be a problem. By the time they're adults, they're so used to going to the eye doctor, it's nothing to them.” (Focus group 4, participant 5) | |
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| Cost/insurance (19.2%) | “…you're supposed to have a yearly physical right? Why can't they combine that? Why can't your eye exam be a part of your yearly exam?…as far as insurance or paying goes?” (Focus group 1, participant 5) |
| “Well if we had a clinic, funded by the government or whoever, and we had to pay, you know $5 or $10, even $25 or $30. Just something so low-income people could afford to not go blind.” (Focus group 1, participant 1) | |
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| Distance to doctor/transportation (11.2%) | “It goes back to incentives to get doctors to come to this area…are any programs for eye doctors that give incentives, whether they're financial or tuition repayment or whatever, to work in these underserved areas for |
| “We need more doctors in our community. Or maybe some sort of satellite clinic that brings good doctors to the area. So if Duke is mass-producing good doctors, send some of them our way! Attach themselves to other facilities, put themselves in the community. So that people won't have the barrier or distance or transportation.” (Focus group 3, participant 4) | |
| “Well maybe we could have a volunteer service…we'll volunteer to take people to get their eyes examined. Then more people would volunteer for another month and just do it like that. Through our churches would work. The church has to take care of its people. A lot of people are retired and would love to get out and do something to help others…” (Focus group 2, participant 4) | |
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| Social support (10.2%) | “I think we're aware of preventive eye care and we just don't do what we need to do. Maybe those who are aware or familiar can get a buddy, a senior citizen that's your buddy, a person that you could look out for. If you have to take them to the eye doctor, help them keep up with their appointments, and so forth…A buddy system is my suggestion.” (Focus group 2, participant 2) |
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| Communication (9.1%) | “I want them to ask me questions, about how I'm doing. And then about my eyes. Explain things well. And then go on and tell me what we're going to do. Answer my questions with honest answers. If they do that, we'll have no problems.” (Focus group 2, participant 4) |
| “Talk to me! Sit down and talk to me. Explain what you're gonna do. The last doctor, he told me what he was gonna do, what he was gonna check…and that's exactly what he did. So I felt real comfortable with him.” (Focus group 3, participant 6) | |
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| Doctor-patient relationship (8.1%) | “…If people are made to feel like they are apart of what you're doing to them and for them, you'll get cooperation.” (Focus group 3, participant 4) |
| “I think it's their attitude. They should be a little nicer and be concerned more about the patient.” (Focus group 1, participant 6) | |
| “…don't talk down to me. Make sure the doctor is patient and willing to explain any terms that are unfamiliar.” (Focus group 2, participant 3) | |
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| Government (5.1%) | “With all the money the government has, why not have an eye care card? Something where people could go to and access that…have a listing of programs that would serve for that plan. It would at least give people a window to get what they need for the eye.” (Focus group 3, participant 4) |
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| Service at clinic (4.0%) | “I mean, they do need a different way to schedule patients. They schedule everyone to come in at 8 am knowing they're not gonna see them until 3 in the afternoon!…my father…he's old, sitting around for 5 or 6 hours, that's hard. So regardless of whether the eye doctor's good or not, you're already angry!” (Focus group 3, participant 3) |
| “Well I'm looking at it not just from the doctor, but the entire office. When I walk in the door, do the receptionists and nurses greet me with a smile? Are they polite to me? You know, telling me what's going to happen. If the doctor is running late, you know they acknowledge it and apologize…It would be a perfect visit.” (Focus group 2, participant 3) | |
Differences in ranking of barriers among recent and nonusers.
| Recent users | Barrier | Nonusers |
|---|---|---|
| 2nd | Communication | 3rd |
| 1st | Cost | 2nd |
| 3rd | Distance/transportation | 7th |
| 4th | Doctor-patient relationship | 5th |
| 7th | Education/knowledge | 6th |
| 8th | Insurance | 4th |
| 6th | Service in clinic | 8th |
| 5th | Trust | 1st |
Summary of suggested changes to increase eye care utilization.
| Patient-doctor interactions | |
| Be more courteous, patient, and understanding | |
| Explain things clearly and in nondoctor terms | |
| Follow up with patients in between visits | |
| Always explain the problem, treatment plan, and options; patients want to feel a part of their care | |
| Cost/insurance | |
| Create more eye care clinics for low-income people | |
| Make eye examinations part of yearly physical for insurance purposes | |
| Offer in-house financing or payment plans | |
| Offer mail-in rebates after eye examinations | |
| Offer more treatment options/programs to assist with purchasing eye glasses | |
| Increase number of free vision screenings in underserved communities | |
| Accessibility | |
| Develop satellite clinics of larger hospitals in underserved communities | |
| Have doctors from larger hospitals practice in already established facilities in underserved communities once or twice a week | |
| Provide incentives for eye care providers to practice in underserved communities | |
| Have mobile units for eye care | |
| Notify local board of supervisors of need for more eye care providers in community | |
| Volunteer transportation in community | |
| Education/knowledge of eye care importance | |
| Monthly mailings on eye care education | |
| Create eye disease prevention week with daily postal mailings (modeled after fire prevention week) | |
| Use department of social services and churches as focal points for educational interventions | |
| More educational seminars in the community led by providers or students | |
| Create community eye care awareness groups run by members of the community | |
| Use various forms of media (newspaper, radio, or television) to increase eye care awareness | |
| Use marquees on local businesses to increase awareness | |
| Community/social support | |
| Implement eye care “buddy system” | |
| Get family members to encourage each other about importance of eye care | |
| Set up community committees/organizations for eye care issues | |
| Service at clinic | |
| Find better way to schedule patients to decrease waiting time | |
| Train all personnel to treat patients courteously | |
| Government | |
| Make lawmakers and political candidates more aware of the problems with receiving eye care |