Literature DB >> 27354431

Conducting research with minimally verbal participants with autism spectrum disorder.

Helen Tager-Flusberg1, Daniela Plesa Skwerer1, Robert M Joseph1, Brianna Brukilacchio1, Jessica Decker1, Brady Eggleston1, Steven Meyer1, Anne Yoder1.   

Abstract

A growing number of research groups are now including older minimally verbal individuals with autism spectrum disorder in their studies to encompass the full range of heterogeneity in the population. There are numerous barriers that prevent researchers from collecting high-quality data from these individuals, in part because of the challenging behaviors with which they present alongside their very limited means for communication. In this article, we summarize the practices that we have developed, based on applied behavioral analysis techniques, and have used in our ongoing research on behavioral, eye-tracking, and electrophysiological studies of minimally verbal children and adolescents with autism spectrum disorder. Our goal is to provide the field with useful guidelines that will promote the inclusion of the entire spectrum of individuals with autism spectrum disorder in future research investigations.

Entities:  

Keywords:  behavioral assessment; electrophysiology; eye-tracking; minimally verbal autism spectrum disorder; research methods

Mesh:

Year:  2016        PMID: 27354431      PMCID: PMC6988898          DOI: 10.1177/1362361316654605

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  14 in total

Review 1.  Minimally verbal school-aged children with autism spectrum disorder: the neglected end of the spectrum.

Authors:  Helen Tager-Flusberg; Connie Kasari
Journal:  Autism Res       Date:  2013-10-07       Impact factor: 5.216

2.  Context modulates attention to social scenes in toddlers with autism.

Authors:  Katarzyna Chawarska; Suzanne Macari; Frederick Shic
Journal:  J Child Psychol Psychiatry       Date:  2012-03-17       Impact factor: 8.982

Review 3.  Assessing the minimally verbal school-aged child with autism spectrum disorder.

Authors:  Connie Kasari; Nancy Brady; Catherine Lord; Helen Tager-Flusberg
Journal:  Autism Res       Date:  2013-10-29       Impact factor: 5.216

Review 4.  Gene hunting in autism spectrum disorder: on the path to precision medicine.

Authors:  Daniel H Geschwind; Matthew W State
Journal:  Lancet Neurol       Date:  2015-04-16       Impact factor: 44.182

5.  EXCLUSION LEARNING AND EMERGENT SYMBOLIC CATEGORY FORMATION IN INDIVIDUALS WITH SEVERE LANGUAGE IMPAIRMENTS AND INTELLECTUAL DISABILITIES.

Authors:  Krista M Wilkinson; Celia Rosenquist; William J McIlvane
Journal:  Psychol Rec       Date:  2009-04-01

6.  Comparing methods for assessing receptive language skills in minimally verbal children and adolescents with autism spectrum disorders.

Authors:  Daniela Plesa Skwerer; Samantha E Jordan; Briana H Brukilacchio; Helen Tager-Flusberg
Journal:  Autism       Date:  2015-09-25

Review 7.  The nature of brain dysfunction in autism: functional brain imaging studies.

Authors:  Nancy J Minshew; Timothy A Keller
Journal:  Curr Opin Neurol       Date:  2010-04       Impact factor: 5.710

Review 8.  Brain imaging research in autism spectrum disorders: in search of neuropathology and health across the lifespan.

Authors:  Janet E Lainhart
Journal:  Curr Opin Psychiatry       Date:  2015-03       Impact factor: 4.741

9.  Mavoglurant in adolescents with fragile X syndrome: analysis of Clinical Global Impression-Improvement source data from a double-blind therapeutic study followed by an open-label, long-term extension study.

Authors:  Donald B Bailey; Elizabeth Berry-Kravis; Anne Wheeler; Melissa Raspa; Florence Merrien; Javier Ricart; Barbara Koumaras; Gerd Rosenkranz; Mark Tomlinson; Florian von Raison; George Apostol
Journal:  J Neurodev Disord       Date:  2015-12-15       Impact factor: 4.025

10.  Eye tracking in early autism research.

Authors:  Terje Falck-Ytter; Sven Bölte; Gustaf Gredebäck
Journal:  J Neurodev Disord       Date:  2013-09-26       Impact factor: 4.025

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  17 in total

1.  Do minimally verbal and verbally fluent individuals with autism spectrum disorder differ in their viewing patterns of dynamic social scenes?

Authors:  Daniela Plesa Skwerer; Briana Brukilacchio; Andrea Chu; Brady Eggleston; Steven Meyer; Helen Tager-Flusberg
Journal:  Autism       Date:  2019-05-09

2.  Behavioral predictors of improved speech output in minimally verbal children with autism.

Authors:  Karen Chenausky; Andrea Norton; Helen Tager-Flusberg; Gottfried Schlaug
Journal:  Autism Res       Date:  2018-09-19       Impact factor: 5.216

3.  Concurrent Social Communication Predictors of Expressive Language in Minimally Verbal Children and Adolescents with Autism Spectrum Disorder.

Authors:  Meredith Pecukonis; Daniela Plesa Skwerer; Brady Eggleston; Steven Meyer; Helen Tager-Flusberg
Journal:  J Autism Dev Disord       Date:  2019-09

4.  Predicting Imminent Aggression Onset in Minimally-Verbal Youth with Autism Spectrum Disorder Using Preceding Physiological Signals.

Authors:  Matthew S Goodwin; Ozan Özdenizci; Catalina Cumpanasoiu; Peng Tian; Yuan Guo; Amy Stedman; Christine Peura; Carla Mazefsky; Matthew Siegel; Deniz Erdoğmuş; Stratis Ioannidis
Journal:  Int Conf Pervasive Comput Technol Healthc       Date:  2018-05

5.  Verbal Ability and Psychiatric Symptoms in Clinically Referred Inpatient and Outpatient Youth with ASD.

Authors:  Matthew D Lerner; Carla A Mazefsky; Rebecca J Weber; Emilie Transue; Matthew Siegel; Kenneth D Gadow
Journal:  J Autism Dev Disord       Date:  2018-11

Review 6.  Framework for assessing individuals with rare genetic disorders associated with profound intellectual and multiple disabilities (PIMD): the example of Phelan McDermid Syndrome.

Authors:  Latha Soorya; Jill Leon; M Pilar Trelles; Audrey Thurm
Journal:  Clin Neuropsychol       Date:  2017-12-21       Impact factor: 3.535

7.  EEG Data Collection in Children with ASD: The Role of State in Data Quality and Spectral Power.

Authors:  Charlotte DiStefano; Abigail Dickinson; Elizabeth Baker; Shafali Spurling Jeste
Journal:  Res Autism Spectr Disord       Date:  2018-11-06

8.  Prerequisite Skills in Cognitive Testing: Innovations in theory and recommendations for practice.

Authors:  Aaron J Kaat; Somer Bishop; Emma Condy; Nancy R Sullivan; Latha Soorya; Audrey Thurm
Journal:  Cogn Dev       Date:  2021-03-25

9.  Inclusion of individuals with low IQ in drug development for autism spectrum disorder.

Authors:  Cristan Farmer; Audrey Thurm
Journal:  Eur Neuropsychopharmacol       Date:  2021-05-20       Impact factor: 5.415

10.  A novel measure of matching categories for early development: Item creation and pilot feasibility study.

Authors:  Emma Condy; Aaron J Kaat; Lindsey Becker; Nancy Sullivan; Latha Soorya; Natalie Berger; Elizabeth Berry-Kravis; Claire Michalak; Audrey Thurm
Journal:  Res Dev Disabil       Date:  2021-05-25
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