Literature DB >> 26975858

Should I Perform Genetic Testing? A Qualitative Look into the Decision Making Considerations of Religious Israeli Undergraduate Students.

Merav Siani1, Orit Ben-Zvi Assaraf2.   

Abstract

The aim of this study is to draw a picture of the concerns that guide the decision making of Israeli religious undergraduate students and the complex considerations they take into account while facing the need to have genetic testing or to attend a genetic counseling session. We examined how the religious affiliation of the students influences their perceptions toward genetics and how these are expressed. Qualitative data were collected from 51 semi-structured interviews with students, in which recurring themes were identified using 'thematic analysis.' The codes from the thematic analysis were obtained according to 'grounded theory'. Our results show that religious undergraduate students' decision making in these issues is influenced by factors that fall under three main categories: knowledge and perceptions, values, and norms. In order to include all the components of influence, we created the Triple C model: "Culture influences Choices towards genetic Counseling" which aims to generalize the complex decision making considerations that we detected. Our model places religion, as part of culture, as its central point of influence that impacts all three of the main categories we detected. It also traces the bidirectional influences that each of these main categories have on one another. Using this model may help identify the sociocultural differences between different types of patients, helping genetic counselors to better assist them in addressing their genetic status by tailoring the counseling more specifically to the patient's cultural uniqueness.

Entities:  

Keywords:  Decision making; Genetic knowledge; Genetic perceptions; Genetic testing; Norms; Qualitative analysis; Religion; Semi-structured interviews; Values

Mesh:

Year:  2016        PMID: 26975858     DOI: 10.1007/s10897-016-9942-0

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  57 in total

1.  Is informed choice in genetic testing a different breed of informed decision-making? A discussion paper.

Authors:  J Emery
Journal:  Health Expect       Date:  2001-06       Impact factor: 3.377

2.  The modern shift to below-replacement fertility: has Israel's population joined the process?

Authors:  D Friedlander; C Feldmann
Journal:  Popul Stud (Camb)       Date:  1993-07

3.  Prenatal genetic testing: an investigation of determining factors affecting the decision-making process.

Authors:  Monica Pivetti; Giannino Melotti
Journal:  J Genet Couns       Date:  2012-04-03       Impact factor: 2.537

4.  A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report.

Authors:  Robert Resta; Barbara Bowles Biesecker; Robin L Bennett; Sandra Blum; Susan Estabrooks Hahn; Michelle N Strecker; Janet L Williams
Journal:  J Genet Couns       Date:  2006-04       Impact factor: 2.537

5.  Cystic fibrosis heterozygote screening in the Orthodox Community of Ashkenazi Jews: the Dor Yesharim approach and heterozygote frequency.

Authors:  D Abeliovich; A Quint; N Weinberg; G Verchezon; I Lerer; J Ekstein; E Rubinstein
Journal:  Eur J Hum Genet       Date:  1996       Impact factor: 4.246

6.  Perceptions of Ashkenazi Jewish breast cancer patients on genetic testing for mutations in BRCA1 and BRCA2.

Authors:  K A Phillips; E Warner; W S Meschino; J Hunter; M Abdolell; G Glendon; I L Andrulis; P J Goodwin
Journal:  Clin Genet       Date:  2000-05       Impact factor: 4.438

7.  The quest for the perfect baby: why do Israeli women seek prenatal genetic testing?

Authors:  Larissa Remennick
Journal:  Sociol Health Illn       Date:  2006-01

Review 8.  Islamic ethical framework for research into and prevention of genetic diseases.

Authors:  Aida I Al Aqeel
Journal:  Nat Genet       Date:  2007-10-22       Impact factor: 38.330

9.  "What is this genetics, anyway?" Understandings of genetics, illness causality and inheritance among British Pakistani users of genetic services.

Authors:  Alison Shaw; Jane A Hurst
Journal:  J Genet Couns       Date:  2008-07-08       Impact factor: 2.537

10.  "Why do we have to learn this stuff?"--a new genetics for 21st century students.

Authors:  Rosemary J Redfield
Journal:  PLoS Biol       Date:  2012-07-03       Impact factor: 8.029

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  2 in total

1.  A Qualitative Look into Israeli Genetic Experts' Insights Regarding Culturally Competent Genetic Counseling and Recommendations for Its Enhancement.

Authors:  Merav Siani; Orit Ben-Zvi Assaraf
Journal:  J Genet Couns       Date:  2017-04-25       Impact factor: 2.537

2.  Drama as a Powerful Tool to Enrich Socio-scientific Argumentation.

Authors:  Pablo Antonio Archila; Silvia Restrepo; Anne-Marie Truscott de Mejía; Natasha I Bloch
Journal:  Int J Sci Math Educ       Date:  2022-10-06
  2 in total

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