Literature DB >> 17952074

Islamic ethical framework for research into and prevention of genetic diseases.

Aida I Al Aqeel1.   

Abstract

Medical genetics involves the application of genetic knowledge and technology to specific clinical and epidemiologic concerns. Using genetics to benefit society requires that empirically verified knowledge be used within an ethical framework that combines appeal to written precedent with sensitivity to the options of individuals and families dealing with choices and necessities within the laws, norms and traditions of their society. Islamic bioethics is derived from a combination of principles, duties and rights, and to a certain extent a call to virtue, ihsan. It emphasizes prevention, and it teaches that the patient must be treated with respect and compassion and that the physical, mental and spiritual dimensions of the illness experience must be taken into account. Strategic planning for the prevention and care of genetic disorders, and for genomic research, within the context of Islamic religion and culture is promising and may provide lessons to the developed world. Islamic bioethics provides fundamental principles for genetic counseling, particularly in regard to consanguinity, which was part of the Arabian culture long before Islam but which was discouraged by the second Islamic khalifa. These fundamental principles are important for implementing many preventive and genomic research programs and for maintaining flexibility to respond to new biomedical technologies.

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Year:  2007        PMID: 17952074     DOI: 10.1038/ng.2007.14

Source DB:  PubMed          Journal:  Nat Genet        ISSN: 1061-4036            Impact factor:   38.330


  21 in total

1.  The Moral Reasoning of Genetic Dilemmas Amongst Jewish Israeli Undergraduate Students with Different Religious Affiliations and Scientific Backgrounds.

Authors:  Merav Siani; Orit Ben-Zvi Assaraf
Journal:  J Genet Couns       Date:  2015-12-07       Impact factor: 2.537

2.  The development of genetic counseling services and training program in Saudi Arabia.

Authors:  Alya A Qari; Ameera S Balobaid; Rifaat R Rawashdeh; Moeenaldeen D Al-Sayed
Journal:  J Genet Couns       Date:  2013-09-14       Impact factor: 2.537

3.  National bioethical legislation and guidelines for biomedical research in the Islamic Republic of Iran.

Authors:  Farzaneh Zahedi; Bagher Larijani
Journal:  Bull World Health Organ       Date:  2008-08       Impact factor: 9.408

4.  Genetic counseling in southern Iran: consanguinity and reason for referral.

Authors:  Mohsen Fathzadeh; Mohammad Ali Babaie Bigi; Masood Bazrgar; Majid Yavarian; Hamid Reza Tabatabaee; Seyed Mohammad Akrami
Journal:  J Genet Couns       Date:  2008-06-13       Impact factor: 2.537

5.  The struggle for clinical ethics in Jordanian Hospitals.

Authors:  Ala Obeidat; Paul A Komesaroff
Journal:  J Bioeth Inq       Date:  2019-07-11       Impact factor: 1.352

6.  A Qualitative Look into Israeli Genetic Experts' Insights Regarding Culturally Competent Genetic Counseling and Recommendations for Its Enhancement.

Authors:  Merav Siani; Orit Ben-Zvi Assaraf
Journal:  J Genet Couns       Date:  2017-04-25       Impact factor: 2.537

7.  Epidemiological profile of common haemoglobinopathies in Arab countries.

Authors:  Hanan A Hamamy; Nasir A S Al-Allawi
Journal:  J Community Genet       Date:  2012-12-08

8.  Meckel-Gruber syndrome: Antenatal diagnosis and ethical perspectives.

Authors:  Sarar Mohamed; Fatima Ibrahim; Kameel Kamil; Satti A Satti
Journal:  Sudan J Paediatr       Date:  2012

9.  Practical guidelines addressing ethical issues pertaining to the curation of human locus-specific variation databases (LSDBs).

Authors:  Sue Povey; Aida I Al Aqeel; Anne Cambon-Thomsen; Raymond Dalgleish; Johan T den Dunnen; Helen V Firth; Marc S Greenblatt; Carol Isaacson Barash; Michael Parker; George P Patrinos; Judith Savige; Maria-Jesus Sobrido; Ingrid Winship; Richard G H Cotton
Journal:  Hum Mutat       Date:  2010-11       Impact factor: 4.878

10.  Should I Perform Genetic Testing? A Qualitative Look into the Decision Making Considerations of Religious Israeli Undergraduate Students.

Authors:  Merav Siani; Orit Ben-Zvi Assaraf
Journal:  J Genet Couns       Date:  2016-03-15       Impact factor: 2.537

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