Literature DB >> 26707626

Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports.

Jinkuk Hong1, Lauren Bishop-Fitzpatrick2, Leann E Smith2, Jan S Greenberg2, Marsha R Mailick2.   

Abstract

We examined factors related to subjective quality of life (QoL) of adults with autism spectrum disorder (ASD) aged 25-55 (n = 60), using the World Health Organization Quality of Life measure (WHOQOL-BREF). We used three different assessment methods: adult self-report, maternal proxy-report, and maternal report. Reliability analysis showed that adults with ASD rated their own QoL reliably. QoL scores derived from adult self-reports were more closely related to those from maternal proxy-report than from maternal report. Subjective factors such as perceived stress and having been bullied frequently were associated with QoL based on adult self-reports. In contrast, level of independence in daily activities and physical health were significant predictors of maternal reports of their son or daughter's QoL.

Entities:  

Keywords:  Autism spectrum disorder; Maternal report; Self-report; Subjective quality of life; WHOQOL-BREF domains

Mesh:

Year:  2016        PMID: 26707626      PMCID: PMC4788526          DOI: 10.1007/s10803-015-2678-0

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  25 in total

1.  The World Health Organization's WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group.

Authors:  S M Skevington; M Lotfy; K A O'Connell
Journal:  Qual Life Res       Date:  2004-03       Impact factor: 4.147

2.  The concept of quality of life: what we know and do not know.

Authors:  R L Schalock
Journal:  J Intellect Disabil Res       Date:  2004-03

3.  Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics.

Authors:  J O Renty; Herbert Roeyers
Journal:  Autism       Date:  2006-09

4.  Quality of life of adults with pervasive developmental disorders and intellectual disabilities.

Authors:  F Gerber; M A Baud; M Giroud; G Galli Carminati
Journal:  J Autism Dev Disord       Date:  2008-02-12

5.  Development of the World Health Organization WHOQOL-BREF quality of life assessment. The WHOQOL Group.

Authors: 
Journal:  Psychol Med       Date:  1998-05       Impact factor: 7.723

6.  A global measure of perceived stress.

Authors:  S Cohen; T Kamarck; R Mermelstein
Journal:  J Health Soc Behav       Date:  1983-12

7.  Comparing residential programmes for adults with autism spectrum disorders and intellectual disability: outcomes of challenging behaviour and quality of life.

Authors:  F Gerber; S Bessero; B Robbiani; D S Courvoisier; M A Baud; M-C Traoré; P Blanco; M Giroud; G Galli Carminati
Journal:  J Intellect Disabil Res       Date:  2011-08-01

8.  The relationship between stress and social functioning in adults with autism spectrum disorder and without intellectual disability.

Authors:  Lauren Bishop-Fitzpatrick; Carla A Mazefsky; Nancy J Minshew; Shaun M Eack
Journal:  Autism Res       Date:  2014-12-19       Impact factor: 5.216

9.  Autism Diagnostic Interview-Revised: a revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders.

Authors:  C Lord; M Rutter; A Le Couteur
Journal:  J Autism Dev Disord       Date:  1994-10

10.  Influence of Autism Traits and Executive Functioning on Quality of Life in Children with an Autism Spectrum Disorder.

Authors:  Marieke de Vries; Hilde Geurts
Journal:  J Autism Dev Disord       Date:  2015-09
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  36 in total

1.  Brief report: Changes in quality of life and social functioning during vocational program - a pilot study of autistic adults.

Authors:  Michelle R Kandalaft; Kilee M DeBrabander
Journal:  J Autism Dev Disord       Date:  2021-01-02

2.  The combined impact of social support and perceived stress on quality of life in adults with autism spectrum disorder and without intellectual disability.

Authors:  Lauren Bishop-Fitzpatrick; Carla A Mazefsky; Shaun M Eack
Journal:  Autism       Date:  2017-06-30

3.  Friendships and social participation as markers of quality of life of adolescents and adults with fragile X syndrome and autism.

Authors:  Leann Smith DaWalt; Lauren V Usher; Jan S Greenberg; Marsha R Mailick
Journal:  Autism       Date:  2017-12-12

4.  Interventions based on early intensive applied behaviour analysis for autistic children: a systematic review and cost-effectiveness analysis.

Authors:  Mark Rodgers; David Marshall; Mark Simmonds; Ann Le Couteur; Mousumi Biswas; Kath Wright; Dheeraj Rai; Stephen Palmer; Lesley Stewart; Robert Hodgson
Journal:  Health Technol Assess       Date:  2020-07       Impact factor: 4.014

5.  Participation in recreational activities buffers the impact of perceived stress on quality of life in adults with autism spectrum disorder.

Authors:  Lauren Bishop-Fitzpatrick; Leann Smith DaWalt; Jan S Greenberg; Marsha R Mailick
Journal:  Autism Res       Date:  2017-02-28       Impact factor: 5.216

6.  Conversational Language Is a Predictor of Vocational Independence and Friendships in Adults with ASD.

Authors:  Laura Friedman; Audra Sterling; Leann Smith DaWalt; Marsha R Mailick
Journal:  J Autism Dev Disord       Date:  2019-10

7.  Perception of Life as Stressful, Not Biological Response to Stress, is Associated with Greater Social Disability in Adults with Autism Spectrum Disorder.

Authors:  Lauren Bishop-Fitzpatrick; Nancy J Minshew; Carla A Mazefsky; Shaun M Eack
Journal:  J Autism Dev Disord       Date:  2017-01

8.  Improving the Validity and Generalizability of Adult Autism Research Through Incorporating Family and Cultural Contexts.

Authors:  Kristin A Long; Monica Gordillo; Gael I Orsmond
Journal:  Autism Adulthood       Date:  2020-09-03

9.  Life Satisfaction in Adolescents with Autism Spectrum Disorder.

Authors:  Kathleen Blackburn Franke; Kimberly Hills; E Scott Huebner; Kate Flory
Journal:  J Autism Dev Disord       Date:  2019-03

10.  Brief Report: Postsecondary Work and Educational Disruptions for Youth on the Autism Spectrum.

Authors:  Julie Lounds Taylor; Leann Smith DaWalt
Journal:  J Autism Dev Disord       Date:  2017-12
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