Literature DB >> 29232961

Friendships and social participation as markers of quality of life of adolescents and adults with fragile X syndrome and autism.

Leann Smith DaWalt1, Lauren V Usher1, Jan S Greenberg1, Marsha R Mailick1.   

Abstract

Friendships and social participation are key domains of quality of life for individuals with intellectual disabilities. This study examined the friendships, social and recreational activities, and family social networks of individuals with intellectual disabilities from two distinct diagnostic groups: individuals diagnosed with fragile X syndrome (n = 81) compared with those diagnosed with autistic disorder (n = 226). Within each diagnostic group, individuals in two developmental stages were compared: adolescence and adulthood. Quality of life in friendships and social participation domains was notably low for individuals with fragile X and those with autism. Individuals with fragile X had more friendships and a less negative social impact on the family than individuals with autism. Across both groups, adolescents spent less time with friends and neighbors, and more time in exercising, than did adults.

Entities:  

Keywords:  adulthood; autism; fragile X syndrome; friendships; quality of life; social participation

Mesh:

Year:  2017        PMID: 29232961      PMCID: PMC7062207          DOI: 10.1177/1362361317709202

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  37 in total

1.  Differential sensitivity to life stress in FMR1 premutation carrier mothers of children with fragile X syndrome.

Authors:  Marsha Mailick Seltzer; Erin T Barker; Jan S Greenberg; Jinkuk Hong; Christopher Coe; David Almeida
Journal:  Health Psychol       Date:  2011-12-12       Impact factor: 4.267

2.  Contribution of social and information-processing factors to eye-gaze avoidance in fragile X syndrome.

Authors:  Melissa M Murphy; Leonard Abbeduto; Susan Schroeder; Ronald Serlin
Journal:  Am J Ment Retard       Date:  2007-09

3.  Autism spectrum disorder in Fragile X syndrome: differential contribution of adaptive socialization and social withdrawal.

Authors:  Dejan B Budimirovic; Irena Bukelis; Christiane Cox; Robert M Gray; Elaine Tierney; Walter E Kaufmann
Journal:  Am J Med Genet A       Date:  2006-09-01       Impact factor: 2.802

4.  Post-high school service use among young adults with an autism spectrum disorder.

Authors:  Paul T Shattuck; Mary Wagner; Sarah Narendorf; Paul Sterzing; Melissa Hensley
Journal:  Arch Pediatr Adolesc Med       Date:  2011-02

5.  Preschool children with intellectual disability: syndrome specificity, behaviour problems, and maternal well-being.

Authors:  A S Eisenhower; B L Baker; J Blacher
Journal:  J Intellect Disabil Res       Date:  2005-09

6.  Autism spectrum disorder in fragile X syndrome: communication, social interaction, and specific behaviors.

Authors:  Walter E Kaufmann; Ranon Cortell; Alice S M Kau; Irena Bukelis; Elaine Tierney; Robert M Gray; Christiane Cox; George T Capone; Pia Stanard
Journal:  Am J Med Genet A       Date:  2004-09-01       Impact factor: 2.802

7.  Predictors of perceived negative impact in mothers of children with autism spectrum disorder.

Authors:  Somer L Bishop; Jennifer Richler; Albert C Cain; Catherine Lord
Journal:  Am J Ment Retard       Date:  2007-11

Review 8.  Comparison groups in autism family research: Down syndrome, fragile X syndrome, and schizophrenia.

Authors:  Marsha Mailick Seltzer; Leonard Abbeduto; Marty Wyngaarden Krauss; Jan Greenberg; April Swe
Journal:  J Autism Dev Disord       Date:  2004-02

9.  The symptoms of autism spectrum disorders in adolescence and adulthood.

Authors:  Marsha Mailick Seltzer; Marty Wyngaarden Krauss; Paul T Shattuck; Gael Orsmond; April Swe; Catherine Lord
Journal:  J Autism Dev Disord       Date:  2003-12

10.  Behavioral relationship between autism and fragile x syndrome.

Authors:  Jenny L Demark; Maurice A Feldman; Jeanette J A Holden
Journal:  Am J Ment Retard       Date:  2003-09
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  9 in total

1.  A Snapshot of Social Support Networks Among Parental Caregivers of Adults with Autism.

Authors:  Christina N Marsack-Topolewski
Journal:  J Autism Dev Disord       Date:  2020-04

2.  Pediatric Quality of Life Inventory (PedsQL) in Fragile X Syndrome.

Authors:  Sarah E Fitzpatrick; Lauren M Schmitt; Ryan Adams; Ernest V Pedapati; Logan K Wink; Rebecca C Shaffer; Jessica Sage; Jayne Dixon Weber; Kelli C Dominick; Craig A Erickson
Journal:  J Autism Dev Disord       Date:  2020-03

3.  Conversational Language Is a Predictor of Vocational Independence and Friendships in Adults with ASD.

Authors:  Laura Friedman; Audra Sterling; Leann Smith DaWalt; Marsha R Mailick
Journal:  J Autism Dev Disord       Date:  2019-10

4.  "You Feel Like You Kind of Walk Between the Two Worlds": A Participatory Study Exploring How Technology Can Support Emotion Regulation for Autistic People.

Authors:  Lauren Gillies-Walker; Naeem Ramzan; Jean Rankin; Emy Nimbley; Karri Gillespie-Smith
Journal:  J Autism Dev Disord       Date:  2022-01-11

5.  "Um" and "Uh" Usage Patterns in Children with Autism: Associations with Measures of Structural and Pragmatic Language Ability.

Authors:  Grace O Lawley; Steven Bedrick; Heather MacFarlane; Jill K Dolata; Alexandra C Salem; Eric Fombonne
Journal:  J Autism Dev Disord       Date:  2022-04-30

Review 6.  Behavior Problems and Social Competence in Fragile X Syndrome: A Systematic Review.

Authors:  Olga Cregenzán-Royo; Carme Brun-Gasca; Albert Fornieles-Deu
Journal:  Genes (Basel)       Date:  2022-01-30       Impact factor: 4.096

7.  Trajectories of Change in the Behavioral and Health Phenotype of Adolescents and Adults with Fragile X Syndrome and Intellectual Disability: Longitudinal Trends Over a Decade.

Authors:  Lauren V Usher; Leann S DaWalt; Jinkuk Hong; Jan S Greenberg; Marsha R Mailick
Journal:  J Autism Dev Disord       Date:  2020-08

8.  "I Met Someone Like Me!": Autistic Adolescents and Their Parents' Experience of the KONTAKT® Social Skills Group Training.

Authors:  Bahareh Afsharnejad; Marita Falkmer; Tanya Picen; Melissa H Black; Tasha Alach; Anna Fridell; Cristina Coco; Kelly Milne; Jill Perry; Sven Bölte; Sonya Girdler
Journal:  J Autism Dev Disord       Date:  2021-05-03

9.  Examining Growth Among College Students With Intellectual and Developmental Disability: A Longitudinal Study.

Authors:  Chung Eun Lee; Tammy Lynn Day; Erik William Carter; Julie Lounds Taylor
Journal:  Behav Modif       Date:  2020-12-23
  9 in total

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