Literature DB >> 32959029

Improving the Validity and Generalizability of Adult Autism Research Through Incorporating Family and Cultural Contexts.

Kristin A Long1, Monica Gordillo1, Gael I Orsmond2.   

Abstract

The relatively nascent empirical knowledge base regarding autism in adulthood provides an opportunity to adopt a contextual approach that conceptualizes autism features, outcomes, and supportive services as interactions between the characteristics of the condition and contextual factors across the life course. Although a contextual approach encompasses many aspects of a person's identity and social ecology, we focus here on the closely interrelated family and cultural contexts, which have been poorly integrated into adult autism research. We argue that designing studies with a priori attention to context (e.g., family and culture) will improve the relevance and comprehensiveness of findings, which in turn will improve construct validity and provide a more accurate understanding of autism-related outcomes in adulthood. Similarly, designing and/or selecting measures that have been validated with culturally and linguistically diverse samples will improve the utility of findings and reduce spurious or null effects. More contextually informed methodologies will lead to improved generalizability and practical applications of findings. We offer concrete guidance regarding how to increase the social ecological perspective within adult autism research as it relates to study conceptualization, methodology, and measurement. Copyright 2020, Mary Ann Liebert, Inc., publishers.

Entities:  

Keywords:  adulthood; autism; culture; family

Year:  2020        PMID: 32959029      PMCID: PMC7497873          DOI: 10.1089/aut.2019.0061

Source DB:  PubMed          Journal:  Autism Adulthood        ISSN: 2573-9581


  40 in total

1.  Aspects of quality of life in adults diagnosed with autism in childhood: a population-based study.

Authors:  Eva Billstedt; I Carina Gillberg; Christopher Gillberg
Journal:  Autism       Date:  2010-10-05

2.  Trajectories of emotional well-being in mothers of adolescents and adults with autism.

Authors:  Erin T Barker; Sigan L Hartley; Marsha Mailick Seltzer; Frank J Floyd; Jan S Greenberg; Gael I Orsmond
Journal:  Dev Psychol       Date:  2011-03

3.  Autism after adolescence: population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood.

Authors:  Eva Billstedt; I Carina Gillberg; Carina Gillberg; Christopher Gillberg
Journal:  J Autism Dev Disord       Date:  2005-06

4.  Psychological distress and well-being of Latina and non-Latina White mothers of youth and adults with an autism spectrum disorder: cultural attitudes towards coresidence status.

Authors:  Sandra Magaña; Matthew J Smith
Journal:  Am J Orthopsychiatry       Date:  2006-07

5.  Collaboration strategies in nontraditional community-based participatory research partnerships: lessons from an academic−community partnership with autistic self-advocates.

Authors:  Christina Nicolaidis; Dora Raymaker; Katherine McDonald; Sebastian Dern; Elesia Ashkenazy; Cody Boisclair; Scott Robertson; Amanda Baggs
Journal:  Prog Community Health Partnersh       Date:  2011

6.  Diagnostic Utility of the ADI-R and DSM-5 in the Assessment of Latino Children and Adolescents.

Authors:  Sandy Magaña; Sandra B Vanegas
Journal:  J Autism Dev Disord       Date:  2017-05

7.  Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom.

Authors:  Tim Cadman; Hanna Eklund; Deirdre Howley; Hannah Hayward; Hanna Clarke; James Findon; Kiriakos Xenitidis; Declan Murphy; Philip Asherson; Karen Glaser
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2012-08-02       Impact factor: 8.829

8.  Parent Expectations Mediate Outcomes for Young Adults with Autism Spectrum Disorder.

Authors:  Anne V Kirby
Journal:  J Autism Dev Disord       Date:  2016-05

9.  Adult outcome for children with autism.

Authors:  Patricia Howlin; Susan Goode; Jane Hutton; Michael Rutter
Journal:  J Child Psychol Psychiatry       Date:  2004-02       Impact factor: 8.982

10.  Transcreation: an implementation science framework for community-engaged behavioral interventions to reduce health disparities.

Authors:  Anna María Nápoles; Anita L Stewart
Journal:  BMC Health Serv Res       Date:  2018-09-12       Impact factor: 2.655

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  1 in total

1.  Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings.

Authors:  Kristin A Long; Lydia Chevalier; Andrea Chu; Kate M Guthrie; Barbara Kao; Wendy Plante; Debra Lobato
Journal:  J Autism Dev Disord       Date:  2021-09-24
  1 in total

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