Literature DB >> 26479564

A Family-Centered Model for Sharing Genetic Risk.

Mary B Daly1.   

Abstract

The successes of the Human Genome Project have ushered in a new era of genomic science. To effectively translate these discoveries, it will be critical to improve the communication of genetic risk within families. This will require a systematic approach that accounts for the nature of family relationships and sociocultural beliefs. This paper proposes the application of the Family Systems Illness Model, used in the setting of cancer care, to the evolving field of genomics.
© 2015 American Society of Law, Medicine & Ethics, Inc.

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Year:  2015        PMID： 26479564      PMCID： PMC4617664          DOI： 10.1111/jlme.12297

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN： 1073-1105            Impact factor:   1.718


  27 in total

1.  Family system characteristics and psychological adjustment to cancer susceptibility genetic testing: a prospective study.

Authors:  I van Oostrom; H Meijers-Heijboer; H J Duivenvoorden; A H J T Bröcker-Vriends; C J van Asperen; R H Sijmons; C Seynaeve; A R van Gool; J G M Klijn; A Tibben
Journal:  Clin Genet       Date:  2007-01       Impact factor: 4.438

2.  Sharing genetic test results in Lynch syndrome: communication with close and distant relatives.

Authors:  Elena M Stoffel; Beth Ford; Rowena C Mercado; Darashana Punglia; Wendy Kohlmann; Peggy Conrad; Amie Blanco; Kristen M Shannon; Mark Powell; Stephen B Gruber; Jonathan Terdiman; Daniel C Chung; Sapna Syngal
Journal:  Clin Gastroenterol Hepatol       Date:  2008-02-07       Impact factor: 11.382

3.  Challenges in evaluating next-generation sequence data for clinical decisions.

Authors:  Janet K Williams; Ann K Cashion; David L Veenstra
Journal:  Nurs Outlook       Date:  2014-08-23       Impact factor: 3.250

4.  Study of dyadic communication in couples managing prostate cancer: a longitudinal perspective.

Authors:  Lixin Song; Laurel L Northouse; Lingling Zhang; Thomas M Braun; Bernadine Cimprich; David L Ronis; Darlene W Mood
Journal:  Psychooncology       Date:  2010-10-22       Impact factor: 3.894

5.  The ClinSeq Project: piloting large-scale genome sequencing for research in genomic medicine.

Authors:  Leslie G Biesecker; James C Mullikin; Flavia M Facio; Clesson Turner; Praveen F Cherukuri; Robert W Blakesley; Gerard G Bouffard; Peter S Chines; Pedro Cruz; Nancy F Hansen; Jamie K Teer; Baishali Maskeri; Alice C Young; Teri A Manolio; Alexander F Wilson; Toren Finkel; Paul Hwang; Andrew Arai; Alan T Remaley; Vandana Sachdev; Robert Shamburek; Richard O Cannon; Eric D Green
Journal:  Genome Res       Date:  2009-07-14       Impact factor: 9.043

Review 6.  Communication strategies and cultural issues in the delivery of bad news.

Authors:  Joshua S Barclay; Leslie J Blackhall; James A Tulsky
Journal:  J Palliat Med       Date:  2007-08       Impact factor: 2.947

Review 7.  Centering families in cancer communication research: acknowledging the impact of support, culture and process on client/provider communication in cancer management.

Authors:  Deborah S Ballard-Reisch; Joyce A Letner
Journal:  Patient Educ Couns       Date:  2003-05

Review 8.  The impact of caregiving on the psychological well-being of family caregivers and cancer patients.

Authors:  Laurel L Northouse; Maria C Katapodi; Ann M Schafenacker; Denise Weiss
Journal:  Semin Oncol Nurs       Date:  2012-11       Impact factor: 2.315

9.  The responses of research participants and their next of kin to receiving feedback of genetic test results following participation in the Australian Ovarian Cancer Study.

Authors:  Nina Hallowell; Kathryn Alsop; Margaret Gleeson; Ashley Crook; Loren Plunkett; David Bowtell; Gillian Mitchell; Mary-Anne Young
Journal:  Genet Med       Date:  2013-02-28       Impact factor: 8.822

10.  The impact of a cancer diagnosis on the health behaviors of cancer survivors and their family and friends.

Authors:  Nancy Humpel; Christopher Magee; Sandra C Jones
Journal:  Support Care Cancer       Date:  2007-01-05       Impact factor: 3.359
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  9 in total

1.  Unsolicited information letters to increase awareness of Lynch syndrome and familial colorectal cancer: reactions and attitudes.

Authors:  Helle Vendel Petersen; Birgitte Lidegaard Frederiksen; Charlotte Kvist Lautrup; Lars Joachim Lindberg; Steen Ladelund; Mef Nilbert
Journal:  Fam Cancer       Date:  2019-01       Impact factor: 2.375

2.  "If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens.

Authors:  Deborah R Gordon; Barbara A Koenig
Journal:  New Genet Soc       Date:  2021-12-13

Review 3.  A systematic review of theory-informed strategies used in interventions fostering family genetic risk communication.

Authors:  Jingsong Zhao; Yue Guan; Colleen M McBride
Journal:  Patient Educ Couns       Date:  2022-03-11

4.  Sharing genetic test results with family members of BRCA, PALB2, CHEK2, and ATM carriers.

Authors:  Marleah Dean; Ann L Tezak; Sabrina Johnson; Joy K Pierce; Anne Weidner; Kate Clouse; Tuya Pal; Deborah Cragun
Journal:  Patient Educ Couns       Date:  2021-01-05

5.  Whether, when, and how to communicate genetic risk to minors: 'I wanted more information but I think they were scared I couldn't handle it'.

Authors:  Kelsey Stuttgen; Allison McCague; Juli Bollinger; Rachel Dvoskin; Debra Mathews
Journal:  J Genet Couns       Date:  2020-07-23       Impact factor: 2.537

Review 6.  The utility of Leventhal's model in the analysis of the psycho-behavioral implications of familial cancer - a literature review.

Authors:  Roxana Postolica; Magdalena Iorga; Mihaela Savin; Doina Azoicai; Violeta Enea
Journal:  Arch Med Sci       Date:  2016-10-19       Impact factor: 3.318

Review 7.  Family Adjustment to Hereditary Cancer Syndromes: A Systematic Review.

Authors:  Pedro Gomes; Giada Pietrabissa; Eunice R Silva; João Silva; Paula Mena Matos; Maria Emília Costa; Vanessa Bertuzzi; Eliana Silva; Maria Carolina Neves; Célia M D Sales
Journal:  Int J Environ Res Public Health       Date:  2022-01-30       Impact factor: 3.390

Review 8.  Germline testing and genetic counselling in prostate cancer.

Authors:  Jessica Russo; Veda N Giri
Journal:  Nat Rev Urol       Date:  2022-04-21       Impact factor: 16.430

9.  The Communication Chain of Genetic Risk: Analyses of Narrative Data Exploring Proband-Provider and Proband-Family Communication in Hereditary Breast and Ovarian Cancer.

Authors:  Carla Pedrazzani; Monica Aceti; Reka Schweighoffer; Andrea Kaiser-Grolimund; Nicole Bürki; Pierre O Chappuis; Rossella Graffeo; Christian Monnerat; Olivia Pagani; Manuela Rabaglio; Maria C Katapodi; Maria Caiata-Zufferey
Journal:  J Pers Med       Date:  2022-07-29
  9 in total

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