Literature DB >> 26213404

Introducing Biospecimen Science to Communities: Tools from Two Cities.

Cathy D Meade, Elisa M Rodriguez, Mariana Arevalo, John S Luque, Narseary Harris, Gloria San Miguel, Clement K Gwede, Deborah O Erwin.   

Abstract

BACKGROUND: This article describes community-engaged processes employed by two Community Network Program Center (CNPC) sites located in Tampa, Florida, and Buffalo, New York, toward the development of Spanish/English educational products about biobanking and biospecimen research.
METHODS: Each CNPC carried out a community-based participatory research (CBPR) approach that underscored six essential components that moved concepts to a final educational product in a highly participatory fashion. The similar CBPR processes at the two locations focused on the same topic, resulted in different engagement approaches and tools for their respective communities: 1) DVD and brochure toolkit and 2) PowerPoint, group program with audience response system (ARS).
RESULTS: We detail a comparison of methods and applications for using these tools among diverse community groups to advance understandings about genetic and biomedical research technologies.
CONCLUSION: Ultimately, these tools and associated educational efforts emphasize the critical value of co-learning among academic and community members in biobanking and biospecimen research.

Entities:  

Mesh:

Year:  2015        PMID: 26213404      PMCID: PMC4834706          DOI: 10.1353/cpr.2015.0024

Source DB:  PubMed          Journal:  Prog Community Health Partnersh        ISSN: 1557-0541


  18 in total

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4.  Community-based partnership to identify keys to biospecimen research participation.

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5.  Formative research on perceptions of biobanking: what community members think.

Authors:  John S Luque; Gwendolyn P Quinn; Francisco A Montel-Ishino; Mariana Arevalo; Shalanda A Bynum; Shalewa Noel-Thomas; Kristen J Wells; Clement K Gwede; Cathy D Meade
Journal:  J Cancer Educ       Date:  2012-03       Impact factor: 2.037

Review 6.  Strategies to improve cancer education materials.

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Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2013-10-03       Impact factor: 4.254

8.  Pilot intervention outcomes of an educational program for biospecimen research participation.

Authors:  Marc T Kiviniemi; Frances G Saad-Harfouche; Gregory L Ciupak; Warren Davis; Kirsten Moysich; Nikia Clark Hargrave; Christine B Ambrosone; Charles Walker; Deborah O Erwin
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Authors:  Elisa Marie Rodriguez; Essie T Torres; Deborah O Erwin
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4.  A Legacy of Science and Community Engagement via the Community Networks Program.

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5.  Community-Based Participatory Research Adds Value to the National Cancer Institute's Research Portfolio.

Authors:  James R Hébert; Kathryn L Braun; Cathy D Meade; Joan Bloom; Erin Kobetz
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6.  The ConNECT Framework: a model for advancing behavioral medicine science and practice to foster health equity.

Authors:  Kassandra I Alcaraz; Jamilia Sly; Kimlin Ashing; Linda Fleisher; Virginia Gil-Rivas; Sabrina Ford; Jean C Yi; Qian Lu; Cathy D Meade; Usha Menon; Clement K Gwede
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7.  Views on clinical trial recruitment, biospecimen collection, and cancer research: population science from landscapes of the Haudenosaunee (People of the Longhouse).

Authors:  Rodney C Haring; Whitney Ann Henry; Maui Hudson; Elisa M Rodriguez; Maile Taualii
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  7 in total

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