| Literature DB >> 23124500 |
Alexis Koskan1, Mariana Arevalo, Clement K Gwede, Gwendolyn P Quinn, Shalewa A Noel-Thomas, John S Luque, Kristen J Wells, Cathy D Meade.
Abstract
Cancer innovations, such as biobanking technologies, are continuously evolving to improve our understanding and knowledge about cancer prevention and treatment modalities. However, the public receives little communication about biobanking and is often unaware about this innovation until asked to donate biospecimens. It is the researchers' ethical duty to provide clear communications about biobanking and biospecimen research. Such information allows the public to understand biobanking processes and facilitates informed decision making about biospecimen donation. The aims of this paper are 1) to examine the importance of clear communication as an ethical imperative when conveying information about cancer innovations and 2) to illustrate the use of an organizing framework, the CLEAN ( C ulture, L iteracy, E ducation, A ssessment, and N etworking) Look approach for creating educational priming materials about the topic of biobanking.Entities:
Mesh:
Year: 2012 PMID: 23124500 PMCID: PMC3735435 DOI: 10.1353/hpu.2012.0192
Source DB: PubMed Journal: J Health Care Poor Underserved ISSN: 1049-2089