Literature DB >> 23124500

Ethics of clear health communication: applying the CLEAN Look approach to communicate biobanking information for cancer research.

Alexis Koskan1, Mariana Arevalo, Clement K Gwede, Gwendolyn P Quinn, Shalewa A Noel-Thomas, John S Luque, Kristen J Wells, Cathy D Meade.   

Abstract

Cancer innovations, such as biobanking technologies, are continuously evolving to improve our understanding and knowledge about cancer prevention and treatment modalities. However, the public receives little communication about biobanking and is often unaware about this innovation until asked to donate biospecimens. It is the researchers' ethical duty to provide clear communications about biobanking and biospecimen research. Such information allows the public to understand biobanking processes and facilitates informed decision making about biospecimen donation. The aims of this paper are 1) to examine the importance of clear communication as an ethical imperative when conveying information about cancer innovations and 2) to illustrate the use of an organizing framework, the CLEAN ( C ulture, L iteracy, E ducation, A ssessment, and N etworking) Look approach for creating educational priming materials about the topic of biobanking.

Entities:  

Mesh:

Year:  2012        PMID: 23124500      PMCID: PMC3735435          DOI: 10.1353/hpu.2012.0192

Source DB:  PubMed          Journal:  J Health Care Poor Underserved        ISSN: 1049-2089


  19 in total

Review 1.  Cultural sensitivity in public health: defined and demystified.

Authors:  K Resnicow; T Baranowski; J S Ahluwalia; R L Braithwaite
Journal:  Ethn Dis       Date:  1999       Impact factor: 1.847

Review 2.  Ethical issues in tissue banking for research: a brief review of existing organizational policies.

Authors:  Keith Bauer; Sara Taub; Kayhan Parsi
Journal:  Theor Med Bioeth       Date:  2004

3.  Donating tissue for research: patient and provider perspectives.

Authors:  Allison R Baer; Mary Lou Smith; Johanna C Bendell
Journal:  J Oncol Pract       Date:  2011-09       Impact factor: 3.840

Review 4.  Public health literacy in America: an ethical imperative.

Authors:  Julie A Gazmararian; James W Curran; Ruth M Parker; Jay M Bernhardt; Barbara A DeBuono
Journal:  Am J Prev Med       Date:  2005-04       Impact factor: 5.043

5.  The ethics of research using biobanks: reason to question the importance attributed to informed consent.

Authors:  Klaus Hoeyer; Bert-Ove Olofsson; Tom Mjörndal; Niels Lynöe
Journal:  Arch Intern Med       Date:  2005-01-10

Review 6.  Interventions to improve patient comprehension in informed consent for medical and surgical procedures: a systematic review.

Authors:  Yael Schenker; Alicia Fernandez; Rebecca Sudore; Dean Schillinger
Journal:  Med Decis Making       Date:  2010-03-31       Impact factor: 2.583

7.  Principles of human subjects protections applied in an opt-out, de-identified biobank.

Authors:  Jill Pulley; Ellen Clayton; Gordon R Bernard; Dan M Roden; Daniel R Masys
Journal:  Clin Transl Sci       Date:  2010-02       Impact factor: 4.689

8.  Formative research on perceptions of biobanking: what community members think.

Authors:  John S Luque; Gwendolyn P Quinn; Francisco A Montel-Ishino; Mariana Arevalo; Shalanda A Bynum; Shalewa Noel-Thomas; Kristen J Wells; Clement K Gwede; Cathy D Meade
Journal:  J Cancer Educ       Date:  2012-03       Impact factor: 2.037

9.  The ethics of health communication.

Authors:  T Strasser; J Gallagher
Journal:  World Health Forum       Date:  1994

10.  Research ethics. Aligning regulations and ethics in human research.

Authors:  Rebecca Dresser
Journal:  Science       Date:  2012-08-03       Impact factor: 47.728

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  4 in total

1.  Knowledge and willingness to provide research biospecimens among foreign-born Latinos using safety-net clinics.

Authors:  Christopher A Loffredo; Gheorghe Luta; Sherrie Wallington; Solomon B Makgoeng; Claire Selsky; Jeanne S Mandelblatt; Lucile L Adams-Campbell
Journal:  J Community Health       Date:  2013-08

2.  Community Perceptions of Biobanking Participation: A Qualitative Study among Mexican-Americans in Three Texas Cities.

Authors:  Natalia I Heredia; Sarah Krasny; Larkin L Strong; Laura Von Hatten; Lynne Nguyen; Belinda M Reininger; Lorna H McNeill; María E Fernández
Journal:  Public Health Genomics       Date:  2016-12-08       Impact factor: 2.000

3.  Introducing Biospecimen Science to Communities: Tools from Two Cities.

Authors:  Cathy D Meade; Elisa M Rodriguez; Mariana Arevalo; John S Luque; Narseary Harris; Gloria San Miguel; Clement K Gwede; Deborah O Erwin
Journal:  Prog Community Health Partnersh       Date:  2015

4.  Learner Verification: A Methodology to Create Suitable Education Materials.

Authors:  Enmanuel A Chavarria; Shannon M Christy; Vani N Simmons; Susan T Vadaparampil; Clement K Gwede; Cathy D Meade
Journal:  Health Lit Res Pract       Date:  2021-02-01
  4 in total

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