Literature DB >> 26111445

Design and Conduct of an Internet-Based Preconception Cohort Study in North America: Pregnancy Study Online.

Lauren A Wise1,2, Kenneth J Rothman1,3, Ellen M Mikkelsen4, Joseph B Stanford5, Amelia K Wesselink1, Craig McKinnon1, Siobhan M Gruschow1,2, Casie E Horgan1, Aleta S Wiley1, Kristen A Hahn1, Henrik Toft Sørensen4, Elizabeth E Hatch1.   

Abstract

BACKGROUND: We launched the Boston University Pregnancy Study Online (PRESTO) to assess the feasibility of carrying out an Internet-based preconception cohort study in the US and Canada.
METHODS: We recruited female participants age 21-45 and their male partners through Internet advertisements, word of mouth, and flyers. Female participants were randomised with 50% probability to receive a subscription to FertilityFriend.com (FF), a web-based programme that collects real-time data on menstrual characteristics. We compared recruitment methods within PRESTO, assessed the cost-efficiency of PRESTO relative to its Danish counterpart (Snart-Gravid), and validated retrospectively reported date of last menstrual period (LMP) against the FF data.
RESULTS: After 99 weeks of recruitment (2013-15), 2421 women enrolled; 1384 (57%) invited their male partners to participate, of whom 693 (50%) enrolled. Baseline characteristics were balanced across randomisation groups. Cohort retention was similar among those randomised vs. not randomised to FF (84% vs. 81%). At study enrollment, 56%, 22%, and 22% couples had been trying to conceive for < 3, 3-5, and ≥ 6 months, respectively. The cost per subject enrolled was $146 (2013 US$), which was similar to our companion Danish study and half that of a traditional cohort study. Among FF users who conceived, > 97% reported their LMP on the PRESTO questionnaire within 1 day of the LMP recorded via FF.
CONCLUSIONS: Use of the Internet as a method of recruitment and follow-up in a North American preconception cohort study was feasible and cost-effective.
© 2015 John Wiley & Sons Ltd.

Entities:  

Keywords:  Internet; fertility; methods; mobile apps; prospective studies

Mesh:

Year:  2015        PMID: 26111445      PMCID: PMC4662659          DOI: 10.1111/ppe.12201

Source DB:  PubMed          Journal:  Paediatr Perinat Epidemiol        ISSN: 0269-5022            Impact factor:   3.980


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