Literature DB >> 25642274

'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeq Project.

Jason L Vassy1, Kurt D Christensen2, Melody J Slashinski3, Denise M Lautenbach2, Sridharan Raghavan4, Jill Oliver Robinson5, Jennifer Blumenthal-Barby5, Lindsay Zausmer Feuerman5, Lisa Soleymani Lehmann6, Michael F Murray7, Robert C Green2, Amy L McGuire5.   

Abstract

AIM: To describe practicing physicians' perceived clinical utility of genome sequencing. MATERIALS &
METHODS: We conducted a mixed-methods analysis of data from 18 primary care physicians and cardiologists in a study of the clinical integration of whole-genome sequencing. Physicians underwent brief genomics continuing medical education before completing surveys and semi-structured interviews.
RESULTS: Physicians described sequencing as currently lacking clinical utility because of its uncertain interpretation and limited impact on clinical decision-making, but they expressed the idea that its clinical integration was inevitable. Potential clinical uses for sequencing included complementing other clinical information, risk stratification, motivating patient behavior change and pharmacogenetics.
CONCLUSION: Physicians given genomics continuing medical education use the language of both evidence-based and personalized medicine in describing the utility of genome-wide testing in patient care.

Entities:  

Keywords:  genomics; high-throughput nucleotide sequencing; pharmacogenetics; physician’s practice patterns; qualitative research

Year:  2015        PMID: 25642274      PMCID: PMC4306284          DOI: 10.2217/pme.14.68

Source DB:  PubMed          Journal:  Per Med        ISSN: 1741-0541            Impact factor:   2.512


  43 in total

1.  Academic family physicians' perception of genetic testing and integration into practice: a CERA study.

Authors:  Arch G Mainous; Sharleen P Johnson; Svetlana Chirina; Richard Baker
Journal:  Fam Med       Date:  2013-04       Impact factor: 1.756

2.  Whole-genome sequencing for optimized patient management.

Authors:  Matthew N Bainbridge; Wojciech Wiszniewski; David R Murdock; Jennifer Friedman; Claudia Gonzaga-Jauregui; Irene Newsham; Jeffrey G Reid; John K Fink; Margaret B Morgan; Marie-Claude Gingras; Donna M Muzny; Linh D Hoang; Shahed Yousaf; James R Lupski; Richard A Gibbs
Journal:  Sci Transl Med       Date:  2011-06-15       Impact factor: 17.956

Review 3.  Diagnostic clinical genome and exome sequencing.

Authors:  Leslie G Biesecker; Robert C Green
Journal:  N Engl J Med       Date:  2014-06-19       Impact factor: 91.245

4.  Inviting patients to read their doctors' notes: a quasi-experimental study and a look ahead.

Authors:  Tom Delbanco; Jan Walker; Sigall K Bell; Jonathan D Darer; Joann G Elmore; Nadine Farag; Henry J Feldman; Roanne Mejilla; Long Ngo; James D Ralston; Stephen E Ross; Neha Trivedi; Elisabeth Vodicka; Suzanne G Leveille
Journal:  Ann Intern Med       Date:  2012-10-02       Impact factor: 25.391

5.  Genomic risk profiling: attitudes and use in personal and clinical care of primary care physicians who offer risk profiling.

Authors:  Susanne B Haga; Madeline M Carrig; Julianne M O'Daniel; Lori A Orlando; Ley A Killeya-Jones; Geoffrey S Ginsburg; Alex Cho
Journal:  J Gen Intern Med       Date:  2011-02-11       Impact factor: 5.128

6.  Physicians' perceived usefulness of and satisfaction with test reports for cystic fibrosis (DeltaF508) and factor V Leiden.

Authors:  Marie Krousel-Wood; Hans C Andersson; Janet Rice; Kelly E Jackson; Eunice R Rosner; Ira M Lubin
Journal:  Genet Med       Date:  2003 May-Jun       Impact factor: 8.822

7.  Barriers for integrating personalized medicine into clinical practice: a qualitative analysis.

Authors:  Mehdi Najafzadeh; Jennifer C Davis; Pamela Joshi; Carlo Marra
Journal:  Am J Med Genet A       Date:  2013-02-26       Impact factor: 2.802

Review 8.  Effects of communicating DNA-based disease risk estimates on risk-reducing behaviours.

Authors:  Theresa M Marteau; David P French; Simon J Griffin; A T Prevost; Stephen Sutton; Clare Watkinson; Sophie Attwood; Gareth J Hollands
Journal:  Cochrane Database Syst Rev       Date:  2010-10-06

9.  The Evaluation of Genomic Applications in Practice and Prevention (EGAPP) Initiative: methods of the EGAPP Working Group.

Authors:  Steven M Teutsch; Linda A Bradley; Glenn E Palomaki; James E Haddow; Margaret Piper; Ned Calonge; W David Dotson; Michael P Douglas; Alfred O Berg
Journal:  Genet Med       Date:  2009-01       Impact factor: 8.822

Review 10.  How can polygenic inheritance be used in population screening for common diseases?

Authors:  Muin J Khoury; A Cecile J W Janssens; David F Ransohoff
Journal:  Genet Med       Date:  2013-02-14       Impact factor: 8.822

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  15 in total

1.  Integrating next-generation sequencing into pediatric oncology practice: An assessment of physician confidence and understanding of clinical genomics.

Authors:  Liza-Marie Johnson; Jessica M Valdez; Emily A Quinn; April D Sykes; Rose B McGee; Regina Nuccio; Stacy J Hines-Dowell; Justin N Baker; Chimene Kesserwan; Kim E Nichols; Belinda N Mandrell
Journal:  Cancer       Date:  2017-02-13       Impact factor: 6.860

2.  Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.

Authors:  Josephine Johnston; John D Lantos; Aaron Goldenberg; Flavia Chen; Erik Parens; Barbara A Koenig
Journal:  Hastings Cent Rep       Date:  2018-07       Impact factor: 2.683

3.  How Primary Care Providers Talk to Patients about Genome Sequencing Results: Risk, Rationale, and Recommendation.

Authors:  Jason L Vassy; J Kelly Davis; Christine Kirby; Ian J Richardson; Robert C Green; Amy L McGuire; Peter A Ubel
Journal:  J Gen Intern Med       Date:  2018-01-26       Impact factor: 5.128

4.  Patients' perceived utility of whole-genome sequencing for their healthcare: findings from the MedSeq project.

Authors:  Philip J Lupo; Jill O Robinson; Pamela M Diamond; Leila Jamal; Heather E Danysh; Jennifer Blumenthal-Barby; Lisa Soleymani Lehmann; Jason L Vassy; Kurt D Christensen; Robert C Green; Amy L McGuire
Journal:  Per Med       Date:  2016-01-08       Impact factor: 2.512

5.  Patient and provider perspectives on the development of personalized medicine: a mixed-methods approach.

Authors:  Lauren Puryear; Natalie Downs; Andrea Nevedal; Eleanor T Lewis; Kelly E Ormond; Maria Bregendahl; Carlos J Suarez; Sean P David; Steven Charlap; Isabella Chu; Steven M Asch; Neda Pakdaman; Sang-Ick Chang; Mark R Cullen; Latha Palaniappan
Journal:  J Community Genet       Date:  2017-12-27

6.  Are physicians prepared for whole genome sequencing? a qualitative analysis.

Authors:  K D Christensen; J L Vassy; L Jamal; L S Lehmann; M J Slashinski; D L Perry; J O Robinson; J Blumenthal-Barby; L Z Feuerman; M F Murray; R C Green; A L McGuire
Journal:  Clin Genet       Date:  2015-07-07       Impact factor: 4.438

7.  Medical student preparedness for an era of personalized medicine: findings from one US medical school.

Authors:  Caroline Eden; Kipp W Johnson; Omri Gottesman; Erwin P Bottinger; Noura S Abul-Husn
Journal:  Per Med       Date:  2016-03       Impact factor: 2.512

8.  Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Authors:  Robert C Green; Katrina A B Goddard; Gail P Jarvik; Laura M Amendola; Paul S Appelbaum; Jonathan S Berg; Barbara A Bernhardt; Leslie G Biesecker; Sawona Biswas; Carrie L Blout; Kevin M Bowling; Kyle B Brothers; Wylie Burke; Charlisse F Caga-Anan; Arul M Chinnaiyan; Wendy K Chung; Ellen W Clayton; Gregory M Cooper; Kelly East; James P Evans; Stephanie M Fullerton; Levi A Garraway; Jeremy R Garrett; Stacy W Gray; Gail E Henderson; Lucia A Hindorff; Ingrid A Holm; Michelle Huckaby Lewis; Carolyn M Hutter; Pasi A Janne; Steven Joffe; David Kaufman; Bartha M Knoppers; Barbara A Koenig; Ian D Krantz; Teri A Manolio; Laurence McCullough; Jean McEwen; Amy McGuire; Donna Muzny; Richard M Myers; Deborah A Nickerson; Jeffrey Ou; Donald W Parsons; Gloria M Petersen; Sharon E Plon; Heidi L Rehm; J Scott Roberts; Dan Robinson; Joseph S Salama; Sarah Scollon; Richard R Sharp; Brian Shirts; Nancy B Spinner; Holly K Tabor; Peter Tarczy-Hornoch; David L Veenstra; Nikhil Wagle; Karen Weck; Benjamin S Wilfond; Kirk Wilhelmsen; Susan M Wolf; Julia Wynn; Joon-Ho Yu
Journal:  Am J Hum Genet       Date:  2016-05-12       Impact factor: 11.025

9.  Clinician Perspectives on Using Pharmacogenomics in Clinical Practice.

Authors:  Kim M Unertl; Habiba Jaffa; Julie R Field; Lisa Price; Josh F Peterson
Journal:  Per Med       Date:  2015       Impact factor: 2.512

Review 10.  Personal Genome Sequencing in Ostensibly Healthy Individuals and the PeopleSeq Consortium.

Authors:  Michael D Linderman; Daiva E Nielsen; Robert C Green
Journal:  J Pers Med       Date:  2016-03-25
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