Literature DB >> 25551265

Caregiver strain and sensory features in children with autism spectrum disorder and other developmental disabilities.

Anne V Kirby, Tamira J White, Grace T Baranek.   

Abstract

Caring for children with disabilities contributes to increased levels of parent stress or caregiver strain. However, the potential relationship of sensory features to strain among caregivers of children with autism spectrum disorder (ASD) and other developmental disabilities (DD) is unknown. Sensory features include overreactions, underreactions, and unusual interests in sensations, which may negatively impact family functioning. This descriptive study confirmed three caregiver strain types (i.e., objective, subjective internalized, subjective externalized) and explored differences among ASD (n  =  71) and DD (n  =  36) groups, with the ASD group reporting higher levels. Furthermore, this study explored the contribution of sensory features to caregiver strain, finding differential contributions to strain in the ASD group and covariate contributions (i.e., child cognition, mother's education) in the DD group.

Entities:  

Keywords:  autism spectrum disorder; caregiver strain; developmental disability; parent stress; sensory features; sensory processing

Mesh:

Year:  2015        PMID: 25551265      PMCID: PMC4562396          DOI: 10.1352/1944-7558-120.1.32

Source DB:  PubMed          Journal:  Am J Intellect Dev Disabil        ISSN: 1944-7558


  40 in total

1.  National survey of sensory features in children with ASD: factor structure of the sensory experience questionnaire (3.0).

Authors:  Karla Ausderau; John Sideris; Melissa Furlong; Lauren M Little; John Bulluck; Grace T Baranek
Journal:  J Autism Dev Disord       Date:  2014-04

2.  Standardizing ADOS scores for a measure of severity in autism spectrum disorders.

Authors:  Katherine Gotham; Andrew Pickles; Catherine Lord
Journal:  J Autism Dev Disord       Date:  2008-12-12

3.  Searching for acceptance: challenges encountered while raising a child with autism.

Authors:  Matthew J Altiere; Silvia von Kluge
Journal:  J Intellect Dev Disabil       Date:  2009-06

4.  Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay.

Authors:  Annette Estes; Jeffrey Munson; Geraldine Dawson; Elizabeth Koehler; Xiao-Hua Zhou; Robert Abbott
Journal:  Autism       Date:  2009-07

5.  Transition and change in adolescents and young adults with autism: longitudinal effects on maternal well-being.

Authors:  Julie Lounds; Marsha Mailick Seltzer; Jan S Greenberg; Paul T Shattuck
Journal:  Am J Ment Retard       Date:  2007-11

6.  Parent reports of sensory experiences of preschool children with and without autism: a qualitative study.

Authors:  Virginia A Dickie; Grace T Baranek; Beth Schultz; Linda R Watson; Cara S McComish
Journal:  Am J Occup Ther       Date:  2009 Mar-Apr

7.  The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning.

Authors:  Patricia A Rao; Deborah C Beidel
Journal:  Behav Modif       Date:  2009-05-12

8.  A meta-analysis of sensory modulation symptoms in individuals with autism spectrum disorders.

Authors:  Ayelet Ben-Sasson; Liat Hen; Ronen Fluss; Sharon A Cermak; Batya Engel-Yeger; Eynat Gal
Journal:  J Autism Dev Disord       Date:  2008-05-30

9.  Predicting maternal parenting stress in middle childhood: the roles of child intellectual status, behaviour problems and social skills.

Authors:  C Neece; B Baker
Journal:  J Intellect Disabil Res       Date:  2008-05-29

10.  Associated features of Asperger Syndrome and their relationship to parenting stress.

Authors:  T Epstein; J Saltzman-Benaiah; A O'Hare; J C Goll; S Tuck
Journal:  Child Care Health Dev       Date:  2008-07       Impact factor: 2.508

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  12 in total

1.  Assessment of Caregiver Inventory for Rett Syndrome.

Authors:  Jane B Lane; Amber R Salter; Nancy E Jones; Gary Cutter; Joseph Horrigan; Steve A Skinner; Walter E Kaufmann; Daniel G Glaze; Jeffrey L Neul; Alan K Percy
Journal:  J Autism Dev Disord       Date:  2017-04

2.  Examining the Efficacy of a Family Peer Advocate Model for Black and Hispanic Caregivers of Children with Autism Spectrum Disorder.

Authors:  J M Jamison; E Fourie; P M Siper; M P Trelles; Julia George-Jones; A Buxbaum Grice; J Krata; E Holl; J Shaoul; B Hernandez; L Mitchell; M M McKay; J D Buxbaum; Alexander Kolevzon
Journal:  J Autism Dev Disord       Date:  2017-05

3.  'I am so fearful for him': a mixed-methods exploration of stress among caregivers of Black children with autism.

Authors:  Sarah Dababnah; Irang Kim; Wendy E Shaia
Journal:  Int J Dev Disabil       Date:  2021-01-13

4.  Caregiver strain among North American parents of children from the Autism Treatment Network Registry Call-Back Study.

Authors:  Olivia J Lindly; Amy M Shui; Noa M Stotts; Karen A Kuhlthau
Journal:  Autism       Date:  2021-10-16

5.  Sensory and repetitive behaviors among children with autism spectrum disorder at home.

Authors:  Anne V Kirby; Brian A Boyd; Kathryn L Williams; Richard A Faldowski; Grace T Baranek
Journal:  Autism       Date:  2016-07-09

6.  Predictors of Caregiver Strain for Parents of Children with Autism Spectrum Disorder.

Authors:  Jessica Bradshaw; Scott Gillespie; Courtney McCracken; Bryan H King; James T McCracken; Cynthia R Johnson; Luc Lecavalier; Tristram Smith; Naomi Swiezy; Karen Bearss; Linmarie Sikich; Craig Donnelly; Eric Hollander; Christopher J McDougle; Lawrence Scahill
Journal:  J Autism Dev Disord       Date:  2021-09

7.  Caregiver Burden Varies by Sensory Subtypes and Sensory Dimension Scores of Children with Autism.

Authors:  Brittany N Hand; Alison E Lane; Paul De Boeck; D Michele Basso; Deborah S Nichols-Larsen; Amy R Darragh
Journal:  J Autism Dev Disord       Date:  2018-04

8.  Sensory Features and Family Functioning in Families of Children With Autism and Developmental Disabilities: Longitudinal Associations.

Authors:  Anne V Kirby; Kathryn L Williams; Linda R Watson; John Sideris; John Bulluck; Grace T Baranek
Journal:  Am J Occup Ther       Date:  2019 Mar/Apr

9.  Understanding the support experiences of families of children with autism and sensory processing difficulties: A qualitative study.

Authors:  Sarah Milosevic; Lucy Brookes-Howell; Elizabeth Randell; Rhys Williams-Thomas; Sue Delport; Monica Busse; David Gillespie; Alka S Ahuja; Anne Marie McKigney; Eleni Glarou; Rachel McNamara
Journal:  Health Expect       Date:  2022-03-18       Impact factor: 3.318

10.  Sensory Reactivity at 1 and 2 Years Old is Associated with ASD Severity During the Preschool Years.

Authors:  Rebecca Grzadzinski; Kevin Donovan; Kinh Truong; Sallie Nowell; Helen Lee; John Sideris; Lauren Turner-Brown; Grace T Baranek; Linda R Watson
Journal:  J Autism Dev Disord       Date:  2020-11
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