Literature DB >> 36210891

'I am so fearful for him': a mixed-methods exploration of stress among caregivers of Black children with autism.

Sarah Dababnah1, Irang Kim2, Wendy E Shaia1.   

Abstract

Parenting stress is correlated with negative child and parent outcomes. Accurate parenting stress assessments are critical to inform appropriate service delivery. This study used mixed methods to identify stressors influencing parents of Black children with autism. Twenty-two parents of Black children with autism participated in individual interviews; 19 of these parents also completed the Parenting Stress Index (4th edition). While we found some consistency between our qualitative and quantitative findings, the Parenting Stress Index did not capture key stressors parents described in interviews, including cultural factors (e.g., perception of provider pushback due to race), challenges related to single parenting, and neighborhood violence. We detail recommendations for family-centered and culturally relevant efforts to assess and address parenting stress in this population. © The British Society of Developmental Disabilities 2021.

Entities:  

Keywords:  African American; Black; autism; autism spectrum disorder; parenting stress; parents

Year:  2021        PMID: 36210891      PMCID: PMC9542792          DOI: 10.1080/20473869.2020.1870418

Source DB:  PubMed          Journal:  Int J Dev Disabil        ISSN: 2047-3869


  45 in total

1.  Protective Factors Against Distress for Caregivers of a Child with Autism Spectrum Disorder.

Authors:  Rebecca A Lindsey; Tammy D Barry
Journal:  J Autism Dev Disord       Date:  2018-04

2.  The quality of mixed methods studies in health services research.

Authors:  Alicia O'Cathain; Elizabeth Murphy; Jon Nicholl
Journal:  J Health Serv Res Policy       Date:  2008-04

3.  Life After an Autism Spectrum Disorder Diagnosis: A Comparison of Stress and Coping Profiles of African American and Euro-American Caregivers.

Authors:  Takeshia V Williams; Kathrin Hartmann; James F Paulson; C Teal Raffaele; Maria R Urbano
Journal:  J Autism Dev Disord       Date:  2019-03

4.  Family-centered care for US children with special health care needs: who gets it and why?

Authors:  Tumaini R Coker; Michael A Rodriguez; Glenn Flores
Journal:  Pediatrics       Date:  2010-05-03       Impact factor: 7.124

5.  To address racial disparities in autism research, we must think globally, act locally.

Authors:  Desiree R Jones; David S Mandell
Journal:  Autism       Date:  2020-10

6.  Determinants of stress in parents of children with autism spectrum disorders.

Authors:  Mélina Rivard; Amélie Terroux; Claudel Parent-Boursier; Céline Mercier
Journal:  J Autism Dev Disord       Date:  2014-07

7.  The Relationship Between Social Affect and Restricted and Repetitive Behaviors Measured on the ADOS-2 and Maternal Stress.

Authors:  Claire Schutte; Wendy Richardson; Morgan Devlin; Jeanna Hill; Maliki Ghossainy; Laura Hewitson
Journal:  J Autism Dev Disord       Date:  2018-03

8.  Trauma and Autism Spectrum Disorder: Review, Proposed Treatment Adaptations and Future Directions.

Authors:  Jessica L Peterson; Rachel Earl; Emily A Fox; Ruqian Ma; Ghina Haidar; Micah Pepper; Lucy Berliner; Arianne Wallace; Raphael Bernier
Journal:  J Child Adolesc Trauma       Date:  2019-04-10

9.  Comparing Neighborhoods of Children With Autism Spectrum Disorder in a Medicaid Waiver Program and a State Population, 2007-2015.

Authors:  Marissa E Yingling; Bethany A Bell; Robert M Hock
Journal:  Psychiatr Serv       Date:  2019-08-05       Impact factor: 3.084

10.  Parenting African American Children With Autism: The Influence of Respect and Faith in Mother, Father, Single-, and Two-Parent Care.

Authors:  Karen Burkett; Edith Morris; Jean Anthony; Donna Shambley-Ebron; Patricia Manning-Courtney
Journal:  J Transcult Nurs       Date:  2016-08-10       Impact factor: 1.959

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