Literature DB >> 28168677

Examining the Efficacy of a Family Peer Advocate Model for Black and Hispanic Caregivers of Children with Autism Spectrum Disorder.

J M Jamison1, E Fourie1, P M Siper1,2, M P Trelles1,2, Julia George-Jones1, A Buxbaum Grice1, J Krata3, E Holl4, J Shaoul5, B Hernandez6, L Mitchell6, M M McKay7, J D Buxbaum1,2,8,9,10,11, Alexander Kolevzon12,13,14,15,16.   

Abstract

Autism spectrum disorder (ASD) affects individuals across all racial and ethnic groups, yet rates of diagnosis are disproportionately higher for Black and Hispanic children. Caregivers of children with ASD experience significant stressors, which have been associated with parental strain, inadequate utilization of mental health services and lower quality of life. The family peer advocate (FPA) model has been utilized across service delivery systems to provide family-to-family support, facilitate engagement, and increase access to care. This study used a randomized controlled design to examine the efficacy of FPAs in a racially and ethnically diverse sample. Results demonstrate significantly increased knowledge of ASD and reduced levels of stress for caregivers who received the FPA intervention as compared to treatment as usual.

Entities:  

Keywords:  Autism spectrum disorder; Caregiver stress; Family peer advocate; Minority

Mesh:

Year:  2017        PMID: 28168677     DOI: 10.1007/s10803-017-3045-0

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  31 in total

1.  Family advocacy, support and education in children's mental health: results of a national survey.

Authors:  Kimberly E Hoagwood; Evelyn Green; Kelly Kelleher; Sonja Schoenwald; Jennifer Rolls-Reutz; John Landsverk; Charles Glisson; Stephen Mayberg
Journal:  Adm Policy Ment Health       Date:  2007-11-13

2.  Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism.

Authors:  Rahul Khanna; S Suresh Madhavan; Michael J Smith; Cindy Tworek; Julie H Patrick; Barbara Becker-Cottrill
Journal:  Autism       Date:  2011-06-29

3.  Brief Report: Recruitment and Retention of Minority Children for Autism Research.

Authors:  Irina Zamora; Marian E Williams; Marcia Higareda; Barbara Y Wheeler; Pat Levitt
Journal:  J Autism Dev Disord       Date:  2016-02

4.  Caregiver strain and sensory features in children with autism spectrum disorder and other developmental disabilities.

Authors:  Anne V Kirby; Tamira J White; Grace T Baranek
Journal:  Am J Intellect Dev Disabil       Date:  2015-01

Review 5.  An update on pharmacotherapy for autism spectrum disorder in children and adolescents.

Authors:  Na Young Ji; Robert L Findling
Journal:  Curr Opin Psychiatry       Date:  2015-03       Impact factor: 4.741

6.  Association of childhood autism spectrum disorders and loss of family income.

Authors:  Guillermo Montes; Jill S Halterman
Journal:  Pediatrics       Date:  2008-04       Impact factor: 7.124

7.  Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay.

Authors:  Annette Estes; Jeffrey Munson; Geraldine Dawson; Elizabeth Koehler; Xiao-Hua Zhou; Robert Abbott
Journal:  Autism       Date:  2009-07

8.  Factors Associated with Stress Among Parents of Children with Autism.

Authors:  Syeda Shahida Batool; Sumaira Khurshid
Journal:  J Coll Physicians Surg Pak       Date:  2015-10       Impact factor: 0.711

9.  Have Racial and Ethnic Disparities in the Quality of Health Care Relationships Changed for Children With Developmental Disabilities and ASD?

Authors:  Sandra Magaña; Susan L Parish; Esther Son
Journal:  Am J Intellect Dev Disabil       Date:  2015-11

10.  Family Peer Advocates: A Pilot Study of the Content and Process of Service Provision.

Authors:  Jennifer P Wisdom; Serene Olin; Priscilla Shorter; Geraldine Burton; Kimberly Hoagwood
Journal:  J Child Fam Stud       Date:  2011-02-12
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  15 in total

1.  Considerations in implementing evidence-based early autism spectrum disorder interventions in community settings.

Authors:  Aubyn C Stahmer; Sarah Dababnah; Sarah R Rieth
Journal:  Pediatr Med       Date:  2019-05-29

2.  Parenting Stress and its Associated Components Prior to an Autism Spectrum Disorder (ASD) Diagnostic Evaluation.

Authors:  Yair Voliovitch; John M Leventhal; Ada M Fenick; Abha R Gupta; Emily Feinberg; Emily J Hickey; Veronika Shabanova; Carol Weitzman
Journal:  J Autism Dev Disord       Date:  2021-01-02

3.  A Study of the Families Included in Receiving Better Special Education Services (FIRME) Project for Latinx Families of Children with Autism and Developmental Disabilities.

Authors:  Kristina Rios; Meghan M Burke; Janeth Aleman-Tovar
Journal:  J Autism Dev Disord       Date:  2021-01-04

4.  Future Directions in Lay Health Worker Involvement in Children's Mental Health Services in the U.S.

Authors:  Miya L Barnett; B Erika Luis Sanchez; Yessica Green Rosas; Sarabeth Broder-Fingert
Journal:  J Clin Child Adolesc Psychol       Date:  2021-09-23

5.  "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children.

Authors:  Olivia J Lindly; Jacqueline Cabral; Ruqayah Mohammed; Ivonne Garber; Kamila B Mistry; Karen A Kuhlthau
Journal:  J Autism Dev Disord       Date:  2021-08-25

6.  Black Children With Developmental Disabilities Receive Less Augmentative and Alternative Communication Intervention Than Their White Peers: Preliminary Evidence of Racial Disparities From a Secondary Data Analysis.

Authors:  Lauramarie Pope; Janice Light; Amber Franklin
Journal:  Am J Speech Lang Pathol       Date:  2022-08-31       Impact factor: 4.018

7.  Caregiver strain among North American parents of children from the Autism Treatment Network Registry Call-Back Study.

Authors:  Olivia J Lindly; Amy M Shui; Noa M Stotts; Karen A Kuhlthau
Journal:  Autism       Date:  2021-10-16

Review 8.  Peer support interventions for parents and carers of children with complex needs.

Authors:  Gina-Maree Sartore; Anastasia Pourliakas; Vince Lagioia
Journal:  Cochrane Database Syst Rev       Date:  2021-12-20

9.  Evaluation of a Train-The-Trainers Model for Family Peer Advocates in Children's Mental Health.

Authors:  Kimberly Eaton Hoagwood; S Serene Olin; Amy Storfer-Isser; Anne Kuppinger; Priscilla Shorter; Nicole M Wang; Michele Pollock; Robin Peth-Pierce; Sarah Horwitz
Journal:  J Child Fam Stud       Date:  2017-12-01

10.  Interventions to Improve Outcomes for Parents of Children with Autism Spectrum Disorder: A Meta-Analysis.

Authors:  Kristen T MacKenzie; Shaun M Eack
Journal:  J Autism Dev Disord       Date:  2021-06-29
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